New here and love the positivity - My MSAA Community

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New here and love the positivity

latellama profile image
31 Replies

I was diagnosed in November withRRMS and am still on medical leave from my work as an instructional coach in elementary school. I have PT, OT, and ST twice weekly and have started copaxone. I miss my "real life" and am trying to adjust to my new reality.

Just want to say hello and thanks to everyone for sharing!

Kim

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latellama profile image
latellama
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31 Replies
GasLight profile image
GasLight

Hi, latellama -- it is very nice to meet you. -- Christopher

latellama profile image
latellama in reply to GasLight

You too!

WAshingtongirl profile image
WAshingtongirl

Welcome, latellama . I look forward to getting to know you. 💕Dawn

dmaskal1 profile image
dmaskal1

Welcome tatellam. We all care here.

Pbailz profile image
Pbailz

Welcome latellama to the group

jimeka profile image
jimeka

Hi Kim, hope you enjoy this group as much as I do, I learn so much not only about ms, everyone here has a great sense of humour, which is good when your not feeling good, it's a great place to vent as well, blessings Jimeka

Iona60 profile image
Iona60

Hi Kim and Welcome to our warm and wonderful chat room.

Jbahnan profile image
Jbahnan

Welcome latellama!

greaterexp profile image
greaterexp

Here is another welcome for you. I'm glad you found us. I'm still fairly new here and was diagnosed in September of 2016. I finally got to start Copaxone today. I hope you are tolerating the medicine well.

This site has been a huge blessing to me, and I hope it will be for you, too.

Erin

latellama profile image
latellama in reply to greaterexp

Thanks Erin.

I haven't had any trouble with the copaxone, other than I get really tired of giving myself injections. And I seem to be thirsty more.

I did have to change up my arthritis med and it has all the side effects. Bleh.

I look forward to getting to know you and the crowd.

K

greaterexp profile image
greaterexp in reply to latellama

I'm tickled pink that you are doing well with the Copaxone. I spoke with someone who has been on it for many years, and she was very encouraging. She takes the daily dosage and told me that after a fairly short while, she didn't even think about it anymore. She's done so well that she only thinks about having MS when her husband gives her her injection. I hope we do just as well!

angelite profile image
angelite

Hello Kim, I like your hair : )

I'm in the UK and awaiting diagnosis. Hope you are able to get back to work soon. Angela x

erash profile image
erash

latellama welcome

So sorry for your recent diagnosis

But glad u have joined us here 😊

P.S. Pretty photo

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Well lm just going to wave hello from the sidelines latellama . Because l think they said it all!😁 I have been on Copaxon for 19mos now, l just put a reminder in to call for a refill😕 OK lm going brain dead here, or maybe it's cog fog. Yup that's it! Lol but what is n educational coach? Is that like gym coach?

Anyway lm glad your here☺

~Helpfull hint~ If you put an @ in front of the person who your addressing they will get a notice from you. IE@ jesmcd2 *With No Spaces*

Jes🌠

latellama profile image
latellama in reply to Jesmcd2

Jesmcd2 An instructional coach gives embedded professional development to teachers. So I model lessons and strategies, work with teachersome to improve their instruction according to their goals.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to latellama

Hang on latellama calling my middle daughter who graduated college to see what you just said.😅😅 Joking with you☺ l got it! Do you think you will go back to work? Or l should ask, what has you out of work?

Jes🌠

Morllyn profile image
Morllyn

Hi! Welcome to the group!

Eleyne92 profile image
Eleyne92

Good morning, latellama and welcome.

I was on copaxone for almost 5 years. The only side effect I ever experienced was a very short episode of heart palpitations about 20 minutes after gave myself my injection. I did the injection before bed, when the news started, so that the palpitations didn't wake me up just after I fell asleep. 😎

Do you think you'll be able to return to your job soon? If you need to, figure out and ask for any reasonable accommodations you might need.

Again, welcome to this very supportive group.

latellama profile image
latellama in reply to Eleyne92

My doc seems to think I need more time, but I don't know why. I'm totally a Type A personality, and 3 months off has been a reboot. I expect I'll need to go back for financial reasons very soon, though. Just worried because I still have numbness and vision issues from the flare.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to latellama

Did your Neuro give you a reason why latellama ? Did they give you something for your relapse? And can they again so you can go back to work? Or are they starting to hint about you stepping down?

Jes🌠

ps l love your pic. You look so happy! ☺

latellama profile image
latellama in reply to Jesmcd2

November was my first official exacerbation and diagnosis. I believe I had an earlier one 2 years ago. Neuro says I am still weak on the left side - improving, but still work to do. I need to have 5 active days in a row without double vision, migraines or exhaustion. She thinks another month. I don't know if she is hinting- this is all new to me. I just miss my colleagues and now am extremely interested in keeping my job for insurance reasons. I do have my paperwork in for LTD since my STD runs out this week.

I appreciate everyone's comments and stories - It helps me navigate what is normal and what isn't.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to latellama

latellama the only normal thing about MS? Is that there is no normal anymore. I was telling someone this morning that all you can do is wake up in the morning and just say OK, whatcha got for me today? And go on with it. ☺ That is my normal anyway.

I can fully understand missing your co-workers, but your Dr is probably doing what is best. Going back to soon could put you into even a worse relaspe. So it's best NOT to push yourself.

mymsaa.org Has a ton of information to read along with Webinars you can check out if you want to.

How are you feeling today?

Jes🌠

latellama profile image
latellama in reply to Jesmcd2

Today is a good day. But then I had PT and OT which wipe me out. At 8:30 it felt like midnight. Of course, I lie down and wide awake! I like that the group digest is delivered at midnight...it's becoming a routine.

Life is good and I'm grateful for your insights.

Goodnight...

Stepinup profile image
Stepinup

Can I just say....I LOVE YOUR HAIR GIRL!!!

latellama profile image
latellama in reply to Stepinup

Thank you! This is my favorite. I change it a couple times a year (have to be a "natural" color for work, but summers and breaks are all me!)

FLlady profile image
FLlady

Welcome. You will love having this support group to share experiences with and lean on for support. ☺

rlh1974 profile image
rlh1974

latellama Welcome abord! This is a wonderful place to come and vent, ask questions, just read about others. You will find so much love and support here! Also, even though it is the internet. What happens here stays here. So yell scream cry, Have fun. There is no judging!

Sorry, we all have to meet you like this with this crazy monster MS in our lives. But nice to meet you !

Rob

kdali profile image
kdali

Welcome! I'm a newbie on Copaxone also, and still adjusting/learning.

Kevin_McMillan profile image
Kevin_McMillan

Welcome to the site latellama

Kevin_McMillan profile image
Kevin_McMillan

I hope you are healing up nicely and feeling better! Are you coping with the Houston heat? I'm really heat sensitive so i got a cooling vest for functions outside in the heat. I believe it was the MSAA website and it was free. Take care of the shoulder and be thankful you aren't having seizures. 😉

latellama profile image
latellama in reply to Kevin_McMillan

I have been released from PT for my shoulder and so that's back to normal! This heat is awful..I've just been hibernating as much as possible. My favorite invention is AC!

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