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[Joyful2BDiana]

I am Diana. I am new here. I have ms and may be in later stages. I am not sure. It all gets do confusing so I hope to learn more. I am currently struggling with trying to sleep in a recliner. Any tips?

[Debrajo]

Diana I understand. I am currently going through the same thing but I feel better in my bed as my husband bought me a great bed.

[Jesmcd2 CommunityAmbassador]

Hi Joyful2BDiana and welcome to the best chat ever ☺ Even if it's for that monster they call Ms. This is a great place to ask questions and get ideas from others. It's also a good place to vent and make wonderful friends ☺

What does your neurologist say about the stage your in? As far as sleeping in a recliner? I guess l don't understand the question, are you having trouble sleeping? Or getting comfortable?

Jes🎄

[Joyful2BDiana in reply to Jesmcd2]

So nice to hear Jes. I had a back injury and with the ms, I have screaming pain to sleep in a bed. So am trying upright in a recliner. Just have so much pain am not comfortable. Are there others who sleep in a recliner? Any tips his to make it more comfortable? I am too tiny fot it i think. I feel i am in progressive but not sure. Diana.

[Joyful2BDiana in reply to Jesmcd2]

Will give a little history. I am old enough to have fallen through the cracks in diagnosis. No blood work, or MRIs in those days. So they kind of would guess. I had 3 years of bone crushing fatigue. Was sent for heart tests etc. Same pulsing and vibrating and tingling ,maybe early arthritis they said. Or maybe from my spine injury.And so on with symptoms. We had no neurologist in those days anywhere close.

The good news is my background is medical reaearch experimental psychology. I poured over research and figured it out myself. Also good news was in not knowing, I did everything including helping build a cabin even though in some pain. Ignorance can be bliss and I treated symptoms with alternative medicine which had always helped as lot. I found of too my greast grandmother had why they now call ms, which increased my odds of getting it.

I am now beyond the age where they do formal diagnosis and in progressive there is not much treatment cept one drug, I forget the name but am too drug sensitive for it. Am holding my own for my age but a recent spine injury,relatef to a fall, is kind of effecting all. Anyone else use alternative medicine? It has been a godsend for me though I do use drugs too if needed.

[Jesmcd2 CommunityAmbassador]

Joyful2BDiana lm so sorry to hear that. Maybe surrounding yourself with pillows or blankets might help?

If your in that much pain l would definitely let your PCP know, so that he might give you something to help you. Til that, give the pillows a try?

[Joyful2BDiana in reply to Jesmcd2]

Pillows are great aren't they. Could not do a recliner without them.

[jimeka]

Hi and welcome. I have a really good bed that you can recline electrically until you find the position you are comfy in. Also as Jes suggested pillows are great to give extra comfort and support. Your doc should know how much pain you are in, please talk to him and get help, blessings Jimeka

[Joyful2BDiana in reply to jimeka]

That sounds like a great bed!!!

[Fancy1959]

JoyfulBDiana, it's Fancy1959 welcoming you to this amazing chat room. You have found a safe place to come to ask questions, to voice your concerns, and vent your problems, share your sorrows and joys. We have broad shoulders so feel free to vent on them or cry on them but be warned we might cry on yours at the same time. Have you found a neurologist yet? He should be able to tell you where you are at in your MS's Journey. I have in the past few months gone to Secondary Progressive MS which isn't the best of news but I'm dealing with it.

Welcome to the recliner Club. I slept in it for the past year basically. It started when I messed my shoulder up real bad. I need my shoulder replaced but they say I'm too young to do it. At any rate I can't stand to roll on my right side weight on it so i sleep in the recliner. Then after I had liver surgery it also helped me tremendously. I couldn't stand the extra weight on my back and the recliner I sleep in it's basically a zero gravity recliner we purchased through a local Furniture Company. It feels great. If you are struggling to sleep go out and try to find yourself a zero gravity recliner and just sit in it and try it out at the store and see what you think of it.

We are only a post away if you have additional questions or information once you find out what your official stage of MS is. What I would like you to take away from our first conversation is that together we are stronger. I'm thinking of you and wishing you well. Please feel free to reply and jumping on post. The more you are interactive with us the quicker you can learn about us and we can learn about you. Take care of yourself again and I look forward to hearing back from you.

[Joyful2BDiana in reply to Fancy1959]

Such good info. Zero gravity sounds intriguing. I think I may be secondary progressive too. Maybe I need to write skittle history or bio. I think I am in later stages as the talked of putting me in hospice but I did not want an expiration date smiles. Been wanting to get into palliative care, and they want me, but need a home visit Dr and can't find one.

[greaterexp]

I agree that a talk with your doctor(s) is in order. I know medicine doesn't have all the answers, but there may be several options for you in dealing with the pain.

I pray you find some answers and can get a good night's sleep.

Keep us posted on your progress.

[erash]

Welcome to the group Joyful2BDiana

I love the user name "joyful 2 b"

Good motto, outlook to remember 😊

Sorry, no recliner tips....but agree with others, discuss with your health care providers to see what you can do for pain management. I also have an expensive electric bed. But supportive pillows are often just as good.

[Joyful2BDiana in reply to erash]

Hm I think I answered this in my email. Now confused as have answered some by email but some how landed here too. Oh my ,my ditsy brain is very confused now,smiles

[pixie1120]

hi Diana, there are nights that I sleep on the sofa,carpet or on anything that puts me to sleep. I don't try to fight it anymore. To me it beats taking more meds,I take enoff during the day

tom

[Joyful2BDiana in reply to pixie1120]

Sure know why you mean pixie. I was sleeping upright on a chair for weeks til the recliner came. Darn near impossible!e. I felt so alone with the struggle. Thank you all for making me feel less alone.

[Bygonelines]

Diana - Welcome to our group! I too have a lot of back pain as well as my MS pain. Sometimes it works better for me to sleep in my recliner. Sometimes it is very difficult to get comfortable in it. What I do is put my footrest part way up and put a pillow under my legs and a soft cushy pillow under my head (sometimes I will use a travel neck pillow). By doing this I can get pressure off my hips and lower back and sleep better. I also use a lot of Biofreeze for my pain. I get it on Amazon 3 roll-on bottles for about $24.00. It works wonders. I don't have to use the recliner as much since I got my sleep number bed. I love being able to adjust the firmness for how my body is feeling. I also get quite a bit of relief from Turmeric Curcumin with bioprene. It helps with both the pain and inflamation. Your doctor may have other ideas that are non drug or very mild drug for your condition.

Hope you get to feeling better and get get a good nights sleep.

[Joyful2BDiana]

Such good ideas I have been using salon pas patches. Will try bio freeze etc. I had wondered about the sleep number beds. I just tried to reply to one and my kindle went beserk repeating letters. Hope the message did not post or you will think I am a nut case. Not able to use my hands well of late. Having to use kindle now but it malfunctions a lot.

[Joyful2BDiana]

Am confused. I replied to each one. Then there is a lower reply here. Do all replies go to every one answering this question or just one answered? Yahoo I have used in the past but is different. Is there a place online to see the question and replies? I am getting them by email. I think my brain is a bit confused and dense lately.