new here

[RcKitty]

hello I am new here. I am on other communties mainl ythe depression and anxiety community and have been treated for major depressive disorder and anxiety disorder for a couple years now. but its no helping. and I am trying to tell my drs and therapists that I am in pain, everyday single day, chronic for the last 10 years or so, and its real, and I would be told sometimes its anxiety related/depression related. but its getting worse, my hands and feet often are numb my right hand goes numb alot now and I have more difficulty typing these days. sometims it hard foe me to speak I would take pauses between words in therapy...my head always hurts, may back hurts, I lost my balance this morning, ive been told 5 years ago I have vertigo, it improved lobut I fee it coming back I had an mri 3 years ago it was normal. I have seen a neurologist, I have had a short eeg and was normal.

thing is ive bee in chronic pain fr a long long time, so I accepted maybe it was depression when I was diagnosed but I am having worsening symtoms that I cannot ignore, but my mri was normal 3 years ago. I feel like the girl who cried wolf as no one seems to believe me.

the symptoms I described ar only a fraction of what I feel on an off and on basis. I am not here because I have ms, but maybe if there is even the smallest posiibilty I want to know more ... because I need answers, so badly I cry all the time have the weirdest mood swings.

but worried now because I cannot seem to physically function sometimes abd the fatique, it becomes unbearable and hits at the same time at its worst every single day

where do I go from here, how do I get tested for ms, of course I hope it is not that and I greatly admire everyone here for the courage they have in facing this disease

thank you

[greaterexp]

Welcome! I'm sorry you've been suffering so much with so many problems.

We can't diagnose, but can only make suggestions. I would encourage you to find another neurologist to look into your issues more thoroughly. Have you had a lumbar puncture/spinal fluid analysis? Things can change with MRIs, so it might be good to look into updates ones, as well as a thorough physical exam. It's true that depression can cause myriad problems and symptoms, but it's always a good idea to be careful in making any assumptions.

Please keep us updated about how you're doing and what you find out. In the meantime, we're here to listen and allow you to vent.

[Hidden]

I am sorry you are in pain. There could be so many causes. Has any doctor done a full medical history? From birth on? Issues from childhood injuries reared their head in my twenties. BTW, injuries were physical and emotional.

As far as depression goes, a psychiatrist recommend ECT. I did some research and it can be effective for depression. I chose not to do it.

I hope you can find some answers.

[leking1]

Welcome, RcKitty, I am so sorry that you are having to deal with

all of these painful issues. Not knowing is the hardest part of anything. I would encourage you to find a new neurologist, and have a complete work-up, including a new MRI. My MS was diagnosed with a spinal tap, so that is another option.

I hope you don't have it, but you do need to find out what is causing all your pain and other symptoms. My love and prayers are with you. I hope you find the answers and the help you seek. May the angels watch over you.

[RoyceNewton]

G'Day, sorry about your health misadventures. I might politely suggest a Neurologist for testing and that you start taking notes on your health. Best of luck on finding an answer and remember o try to have a good day

[Jazzihorsecat]

A very, very warm welcome to our family here Rckitty, I love your nickname!👍 all I can say is I totally feel for ya! & we've all been there, the pains th@ cause depression, I was under & mis DX'd for over 11 yrs. The Dudes in white coats kept writing me off, until I found a great P.A. & she referred me to a great Neuro. Who did mri & spinal tap/L.P. get first DX'd then let us all know what happens please, you are now still part of the family!💗🙏👍💐Prayers go out for ya! & Many Blessings to ya!💐🌸🌻🌈Keep💪Staying Strong! We're here for ya.

🌹💜Jazzy

[JTZES]

I'm sorry your in this situation and feel like you have for so long. Based on what you described you have many symptoms of MS but there are other diseases that share the same. I would suggest looking for a neurologist that specializes in MS. Your not crying wolf if you request another MRI with Cervical Spine. Not all MS issues are brain based but can be based at the base of the spinal cord.

I hope your in an area that you can find a good neurologist.

Welcome to the group and keep us updated and I hope they will be able find a diagnosis.

[TracyBelle]

Your symptoms certainly mimic those of MS. Keep in mind that the damage shows on an MRI only after your body has “recovered” from the attack. 12 days after being sworn in before the Texas Supreme Court as an attorney, I woke up legally blind in both eyes. I was in the middle of moving, and my mom was there helping me. I finally went to the nearby mall (it was the Saturday after Thanksgiving) and went to an optometrist there. She was beyond spooked and called the ER to tell them she was sending me there. I had an MRI, and it was perfect, and my neurological exam was also perfect. Then, in April of the next year I began to have a horrible pain in my ribs just below my arm, where your bra is. I told my boss at the time and he said that his best friend was a neurosurgeon. I was seen the next day. After MRIs of my brain and spine, the only place that didn’t have lesions was my cervical spine. The plaque on my optic nerve was totally visible, even though I had recovered my vision by January. There was no damage visible during the blindness, only months after I recovered my sight. I would try to get a new MRI of your brain and spine. As well as the Lumbar Puncture, which checks your cerebrospinal fluid for proteins etc, which only occur when the Blood Brain Barrier has been compromised.

We don’t want you to have MS, but misdiagnosis leads to delays in treatment, and we don’t want that for you either. Keep us posted if you get any new test results, and try to find a different Dr, someone who has not already drawn conclusions about your condition based on past testing results.

[CalfeeChick CommunityAmbassador]

RcKitty Sorry to hear all that you are feeling and going through. I would suggest getting a new neurologist, preferably on associated with a teaching university. They tend to be more up to date and often have "Resident" students sit in on visits. There again, they are being taught and work with the newest studies, etc. Sure hope you get some relief and get started on pain symptom relief.