7 Aug 2023 YOU: G'Day my Relapsing... - My MSAA Community

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7 Aug 2023 YOU

RoyceNewton profile image
7 Replies

G'Day my Relapsing-Remitting ms (RRms) sisters & brother. YOU can do this. It is OK, YOU are stronger than this disease. Wipe away your tears, this illness is doable, especially by you YOU can do this. Cry if YOU want, that is okay, but always remember. As down as YOU may be, we are here to help and YOU can.

Believe in yourself. YOU are STRONG and YOU are WORTHY.

Royce

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RoyceNewton profile image
RoyceNewton
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twooldcrows profile image
twooldcrows

yes sometimes a good cry helps and then you feel so much better to start over ...live life with loads of love and happiness...

Cwright170994 profile image
Cwright170994

Thank you ❤️ I've had days where I feel like crying, but after that, I roll my sleeves up, look at what I've got on my t-shirts (MS awareness stuff) and I'm like a whole new woman 🦸‍♀️ a wonder woman, so to say! You battle through your darkest days, and can even say to the world, "I fight MS... What's your super power?" I even had a mug with that on, until my husband accidentally broke the handle off, but I forgave him, and then bought a new one 🤗 I battled 2 hospital admissions this year, because of many epileptic seizures in one do, and I felt a lot better when I woke up with my husband sitting at my side and laughing at why I was in!For example, my 1st one was when I was sat on the toilet one morning before anyone else had woken up. Husband laughed at how he didn't have to clean anything up, which got me laughing as well! My 2nd lot, I apparently had 6, maybe 7 according to paramedics, and he only knew when I woke him up by falling through our bedroom door! We laughed at how he didn't have to clean up after me (not bizarre because the 1st time I had a status epilepticus event, I had wet myself. Not fun when it's in the middle of the pandemic and he couldn't be with me, and I struggled to remember the term "commode," or "lamotrigine" or "copaxone!" I can laugh at that now! 🤣🤣🤣

RoyceNewton profile image
RoyceNewton in reply toCwright170994

Funny we laugh at the most silly of things as well. strange how your sense of humor changes as you get more into this life. Glad YOU are better, I think, these days,

Royce

Cwright170994 profile image
Cwright170994 in reply toRoyceNewton

I think my husband had learned that too! He loves how I can laugh so hard, I'll "squeak," and how I can laugh on his command! We can really only do that in comfortable situations, but he knows his power!Like, the other day, I had slipped on the shower cleaning the bottom of my feet. I swore and he came running in to see if I was ok. I was, and he stayed on our bed because he knew I'd be going to the bedroom to get my pj's on. He said, in a joking manner, "I know you're head over heels for me, but you don't need to go arse over tit!" I had a 5min laugh/squeak/laugh at that comment!

My mum, back in 2021, had me laughing when we talked about a letter I had received (I'm CC'd into the communications between my neurologist and other health professionals) and on the letter it said that the radiologists were querying if I've got tumefactive MS. Mum said to me, "so this isn't your standard MS... this is M&S MS!" (M&S is a store in the UK that used to have TV ads where it'd say, "this isn't just X, this is M&S X.") I can confirm I don't have tumefactive MS, its just my RRMS is very aggressive 🤷‍♀️🤣

RoyceNewton profile image
RoyceNewton in reply toCwright170994

Tumefactivr ms, never heard of iy. Glad that you have relapsing reciting only, if you had to have one. Humour is the best medicine.

Royce

Cwright170994 profile image
Cwright170994 in reply toRoyceNewton

I know right!!! I've only heard of it when I got that letter! 😱😳 proper scared me 😬 I'm glad I'm back to definite RR, it's just the radiologists that did it haven't seen my past ones 🤣 and it definitely is! If you don't laugh, you'll cry lol

Xvettech profile image
Xvettech

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