MS & Covid

[Workerbea]

I came down with Covid after a trip to Iceland in May. I'd been vaccinated and boostered but my Covid was like symptoms for the Covid19-psychosis I've read about. I had extreme panic attacks, anxiety, agitation, insomnia, anger, feeling the need to flee... It was the hardest thing I've ever been through and I wonder if anyone else has had or has known about this response having Covid & MS? I did have an antiviral (Paxlovid) a day after the postive test which may have played a factor as well.

From my reading it seems like I should have had an MRI, & been given meds to reduce the anxiety. The Covid I had affected my brain vs. my lungs or another part of my body. I'm better now with the help of psychotherapy and grounding activities. I'm wondering if anyone else has experienced this type of Covid? Thank you for sharing your thoughts and experiences.

[kycmary]

WOW I sure am sorry to about that! I have never heard that happening I will keep my eyes & ears open about it I have been full vaccinated & boostered also praying for you hope you get better soon.

[Workerbea in reply to kycmary]

I had never heard about Covid psychosis either until I experienced it. I don't think there is much research on it yet, but it's a real outcome. I was fully vaccinated and boostered too. Thank you for your prayers. I'm doing much better now with the help of psychotherapy, grounding exercises ...It was horrible.

[Sandydemop]

I hope you feel better soon. I have not heard of that either but you can check the research on symptoms of long covid. there are so many.

[Workerbea in reply to Sandydemop]

Thank you! I am doing better now, and hope others won't go through what I had to go through.

[Sandydemop in reply to Workerbea]

How did you get better?

[Amore55]

I am interested in your post. I have been really frustrated with my tv today, angry about anything that goes wrong with it. It’s not like me to be like that. I have been cussing at it even. Really short tempered. Thankfully no one is around to hear me!

[mrsmike9 in reply to Amore55]

Have you taken a Covid test or had it recently?

[Amore55 in reply to mrsmike9]

Yes, I did 2 home tests and went to Walgreen’s for a test because I didn’t trust myself. Sure enough, they were all positive.

[Sandydemop in reply to Amore55]

oh Kelly! so sorry to hear you are sick. Please rest up and listen to your body.

[Amore55 in reply to Sandydemop]

Thanks Sandy. I feel much better now. 🤗

[Sandydemop in reply to Amore55]

thanks for the happy news. i was worried about you!

[Amore55 in reply to Sandydemop]

You are a good friend! 🤗

[Sandydemop in reply to Amore55]

takes one to know one.

[Workerbea in reply to Amore55]

I hope you are feeling better. My experience presented with many symptoms including anger. Talking to a therapist really helped me. I hope you can get any help you need to recover from the virus. Take care of yourself, and get the help you need.

[Amore55 in reply to Workerbea]

I feel better today. I was just so sick Thursday, tired and out of sorts. It didn’t last long. Until I went to bed! 😂 Thank you 🙏

[Workerbea in reply to Amore55]

That's great news!

[Jer29-11]

Oh my! So sorry to hear. I have not heard of this, but Covid can definitely affect the brain. I saw somewhere (can’t remember!) that in people who had long term loss of smell from Covid, their MRIs showed damage in that area of the brain. My husband and I both had Covid brain fog when we had it last year. Wouldn’t surprise me that something more severe is possible. Again, so sorry and I hope you recover soon!

[Workerbea in reply to Jer29-11]

Thank you for your thoughts and wishes. I'm thankful that I'm better & doing what I need to be stronger and recover. I suspect the Paxlovid I took may have helped to minimize the length I had the virus, but not the severity. I looked up Covid-19 psychosis and many of the symptoms were what I was experiencing except no hallucinations. I hope very few of us will have this experience if positive with Covid. This is something I never want to have again!

[JSSimp]

My prayers are with you🙏🏾

[Workerbea in reply to JSSimp]

Thank you so much! Please stay safe.

[Panda52]

So sorry that you went through that. Praying that you continue to heal. I had never heard of this but it seems that Covid attacks in so many ways.

[Workerbea in reply to Panda52]

Thank you. Yes, I agree that Covid strikes in many different ways. My sister has a theory that the virus may strike the weakest part of the body and having MS and brain liasons it makes sense that the brain might be a one area one is vunerable.

[Sandydemop in reply to Workerbea]

that makes sense. so awful.

[mrsmike9]

What a wonderful vacation but what a terrible souvenir!! This is not even anything I've heard about. I hope you are feeling better now.

[Workerbea in reply to mrsmike9]

Thank you. I'm relieved I'm feeling better. It was an amazing vacation, but a terrible outcome. It turned out my sister and her friend had to stay in Iceland for eleven more days until their tests were negative to be able to fly back to the US. They had mild symptoms thankfully. Now that restriction has been lifted. I didn't know anything about Covid psychosis either. I'm hoping it isn't a common experience for anyone.

[Tazmanian]

Feel better!

[Workerbea in reply to Tazmanian]

Thank you. I'm getting back to my old self again.

[twooldcrows]

take care ...

[Workerbea in reply to twooldcrows]

Thank you.

[Humbrd]

Sorry to hear you had such a bad experience with it. As far as I know I've never had Covid. I wouldn't want to go through that either.

[Workerbea in reply to Humbrd]

Thank you. I'm hoping by sharing my experience, others with MS will be mindful & be super careful as this virus changes and continues to spread. It was a horrible experience. Please stay safe.

[Humbrd in reply to Workerbea]

It's a good reminder that you've given us. I know a lot of times lately I've been letting my guard down.

[Workerbea in reply to Humbrd]

As this virus mutates, different symptoms emerge so continuing to be careful is so important. I know where I let my guard down in Iceland and learned the hard way. I'm hoping everyone takes this seriously, doing what they can to protect themselves.

[falalalala]

No, it didn't affect me that way.

[Workerbea in reply to falalalala]

I'm so glad you didn't have these symptoms! It's something you wouldn't wish on anyone! Please continue to be careful!

[falalalala in reply to Workerbea]

Thanks, me too and you as well.

[JSSimp]

You’re Welcome. Thank You🙏🏾

[1yoyo]

It would help if you carried your anti-anxiety pills with you so you could take them immediately. When one gets an anxiety attack they almost get other symptoms, especially when one holds their breath. Try to force yourself to breathe in and out (like Lamaze)Sorry for your terrible episode.

[Workerbea in reply to 1yoyo]

Thank you! Keeping an anxiety bag of tricks is very helpful. Yes, the breathing is also important. Thank you for your suggestions!

[mm1527mm]

So sorry to hear. I had more of congestion. My brother and a friend still have terrible insomnia

[Sandydemop]

I posted a new article about neuro covid. Maybe you will relate. I have seen lots of people i know have neurological symptoms: brain fog, fatigue, loss of smell and i all could think of was "welcome to my world." i had no proof that covid had neurological effects until now.

[Workerbea in reply to Sandydemop]

Thank you! Can you tell me how I can see it to read?

[Sandydemop in reply to Workerbea]

yes, page 29 I copied most of it above but here is the actual article. nysscsw.org/assets/Clinicia...

[Sandydemop in reply to Workerbea]

error! i copied most of it to a new post called neuro covid

[BlanketTime1]

i just wanted to say i hope you're mending quickly.🤗

[Workerbea in reply to BlanketTime1]

Thank you! I'm doing much better. It takes time to recover.

[Donna5658]

Hello there. Sounds like you went through a terrible ordeal. Do you think the Paxlovid had anything to do with your reaction?

[Workerbea in reply to Donna5658]

Thank you for asking. I also have wondered this, but I don't know. I can't find any places where they are doing Covid research for Covid Psychosis. Even Tufts in Boston didn't have their long Covid center open any longer since my neurologist is at Tufts and recommended it to me. I was very disappointed and have felt like I've been in the dark. Once I printed several articles out for my primary care, she confirmed that I did indeed have this. Diagnosing myself is not something I like doing, but I'll try if I need to. We must all continue to stay safe. I'm still wearing my mask...

[Donna5658]

Me too on masks! Your experience sounds terribly scary. I’m glad you have recovered.

[IFwczs]

I am not a doctor but I doubt your symptoms had anything to do with MS. I had COVID in February 2020. It was just a weird extended cold.

[kdali]

No, I didn't experience that but also had not heard of it before. I hope it goes away 😱