MS symptoms and tx idea? : Hi I’m a 30 yr... - My MSAA Community

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MS symptoms and tx idea?

Carlrossi94 profile image
8 Replies

Hi I’m a 30 yr old male. I was recently diagnosed with MS 10/23 shorty after getting covid I began to develop numbness and tingling in arms and legs with double vision. I was diagnosed shortly after and began Ocrevus as my tx. I have continued burning in my legs mostly like fires burning on my thighs but in times in my back between shoulders and waste. I use to take gabipentin 900mg with Tizanidine. Around May of 2025 I switch over to lyrica and take around 150 mg a couple times a day usually twice. Does any have any similar issues with constant burning in legs and back? Any idea that work any meds I didn’t mention? Open to hearing if anyone has found something that helps with symptom management. Ive been trying to get my stretching and exercise involved. Thanks for reading.

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Carlrossi94
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8 Replies
lbenmaor profile image
lbenmaor

I am so sorry you are in so much pain. I use Hemp creme on sore parts of my body and see a Chiropractor. Leslie

bulldogman profile image
bulldogman

I have similar symptoms that you described.I don’t take Lyrica I take Gabapentin 1200mg three times a day and Nucynta ER 250mg twice a day This helps some but doesn’t take all the pain away I’ve tried most everything on the market to help but nothing takes it all away. I wish you luck in your journey

CatsandCars profile image
CatsandCars in reply tobulldogman

I hope you can find more relief.

Misty2024 profile image
Misty2024

Oh my gosh! I have been on gabapentin and tizanadine for years but just last week my doctor prescribed Lyrica for the first time! I am hoping it will make my legs feel better. Sometimes my legs burn SO bad I just cry. Yet it seems like nobody cares…”just live with it.” Thanks for listening!

CatsandCars profile image
CatsandCars in reply toMisty2024

I am so sorry. That sounds like a nightmare. Could you ask to be referred to a pain clinic (or go to one on your own if you can), just to see if they might have some other ideas? And maybe look for a doctor who's more caring, if you have that option? He/she doesn't sound like they deserve your trust!

Blanketttime1 profile image
Blanketttime1 in reply toMisty2024

doctors suck. in a recent appointment, a non neuro asked why the rollator and i said spinal lesions. he said, "at least you have your mobility, you're lucky." is that right? is a millennial using a rollator lucky?😠 i'd love for someone to spend one hour in your body and then dare to tell you to "just live with it."

CatsandCars profile image
CatsandCars

Hi, I'm not sure which came first, your diagnosis or Covid. I can tell you that after having Covid, I've been having a pseudo relapse in which my symptoms have been dramatically worse. My doctor says it can take a long time to completely clear Covid, but that I'll start feeling better when that happens. Hope that you feel a lot better once it's all the way out of your body! I had Covid about two months ago, but tell my MS that!

Blanketttime1 profile image
Blanketttime1

i tried lyrica and it gave me an insane brain...but gabapentin works wonders. i take it 3x/day, but here's the thing. they started me on 100mg 2x/day and we kept going up and up and up until they got it right. are you taking the max dosage of lyrica?

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