Possible Anaphylaxis with Glatimirer Acetate

[CatsandCars]

The MS Blog is kind of a technical blog written by a researcher. But the gist of this post is that in Europe they are putting a warning on generic copaxone that it can cause a life-threatening allergic reaction. Something to ask your neurologist about if you are using a generic version of Copaxone.

multiple-sclerosis-research...

I should add that the author suspects that while injection reactions to Copaxone are nothing new, there seems to be an increased risk with one or more of the generic versions sold in Europe. I think it would be worth asking your doctor if you should be concerned, or if you might need to take additional steps to protect yourself, like maybe an epi-pen?

[Cwright170994]

I know I had a bit of a post injection reaction one time when I was still on it 😳 my mum was horrified as I was stripping off my shirt and bra at our dining table that morning (we both did our morning meds at the same time, same place - she was doing her levothyroxine tablets, and we were both up for a shift we were both working.) I'd never had a reaction like that before, and so it I wasn't worried when I had the same reaction a few years later after I moved in with my now-husband 🤷‍♀️ no longer on copaxone now, because my neurologist had evidence that my ms is aggressive (ffs immune system) and I'm doing better on ocrevus 🤞

[CatsandCars in reply to Cwright170994]

That sounds unpleasant! This is more about having your throat swell shut, but as a former nurse, I'm sure you get it! 😊

[Cwright170994 in reply to CatsandCars]

I do get it. Nothing more scary than struggling to breathe 😢 have you come off copaxone now? Or do you have to take antihistamines before you do your injection? 😬

[CatsandCars in reply to Cwright170994]

I'm not posting from personal experience, thankfully, just reposting an MS blog entry. I'm in the process of switching from Ocrevus to Mavenclad, although it's been about a month since I've decided to go ahead with it, and I haven't heard anything. I'm assuming my insurance company is taking their time deciding if they want to pay for it!

[Cwright170994 in reply to CatsandCars]

Ah, thank heavens 🙌 That's a bit 💩 how you have to go and fight insurers for prescriptions 😒 they just can't accept the Doctors' call, being the tight arses they are 😒 unfortunately, I don't have any experience of using health insurance. I think I'm really lucky to have the NHS, reading other people's experiences 😔

[CatsandCars in reply to Cwright170994]

I think both systems have their advantages and disadvantages. I've actually learned a lot about the NHS from your posts, so thanks for that!

I truly hate insurance companies. But they appear to be a necessary evil in the US medical system. And things did improve with the Affordable Care Act, as far as getting more people covered, which is really great.

[Cwright170994 in reply to CatsandCars]

That's a brilliant Act to bring in! I'm happy more people can afford to be seen and/or treated 🙌

I think Sunak's (ex Prime Minister) plan to get everyone moved onto a health insurance system was what broke the camel's back for patience the country had of the Conservatives. 14 years of headache and misery 🤦‍♀️🙄 Labour's gotten in a few weeks ago, and they've already got big plans for the NHS 🙌

[CatsandCars in reply to Cwright170994]

I was happy to see that on the news! That's really great. I remember you saying (if I remember correctly) that the Tories ruined the NHS.

You might like the MS-selfie blog by Gavin Giovannoni at Bart's in London He's a really prominent neurologist, and he takes questions from people and asks his readers what they think and interacts with them. It's really extraordinary. He will be retiring, unfortunately, and passing the blog to someone else. But he talks a lot about MS, treatments, and what you can do to self manage your MS, and he talks about the NHS from a doctor's perspective. Kdali introduced me to it. Here's a link, if you're interested:

gavingiovannoni.substack.com/

[Cwright170994 in reply to CatsandCars]

Will have a look into it! 😁 thank you ❤

[CatsandCars in reply to Cwright170994]

You're welcome. You might have to send a quick email asking to subscribe, but it's free. I hope you get as much out of it as I have! 😁

[Cwright170994 in reply to CatsandCars]

Will do! Thanks again ❤

[falalalala]

My neuro took me off Copaxone-not generic, after 2 bad reactions.

Both times my legs went out and I was on the ground unable to breathe with a tightness in my chest.

I decided after that to not take MS drugs for it "modified" me a bit too much.

[CatsandCars]

Oh no, falalalala! That must have been a terrible experience, although the way you put it is quite funny, unsurprisingly.

[falalalala in reply to CatsandCars]

I had to throw out 10K worth of meds.

That felt pretty good, actually.

[CatsandCars in reply to falalalala]

I believe it! Nothing like throwing something that harmed you in the trash! And getting rid of ouchy needles feels pretty good, too. 😂

[falalalala in reply to CatsandCars]

I should have thrown them at a dartboard emblazoned with the staff of Asclepius.

[CatsandCars in reply to falalalala]

Spoken like a true hater of the medical profession! You're an artist, maybe you should make a dartboard like that. Who knows, maybe you could sell them on Etsy and make a small fortune! 🤣🤣🤣

PS A good portion of your customers would probably be chiropractors, given the bad feelings that seem to exist between them and MDs!

[falalalala in reply to CatsandCars]

I know, right!😂

My chiro actually referred me to a good MD.

He's a rebel.😅😅😅

[CatsandCars in reply to falalalala]

Glad to hear it! 👍

[Lilith08]

The US FDA has just announced they are adding a boxed warning about possible anaphylaxis. I just made a separate post about this. Here is the official update:

drugs.com/fda/safety-commun...

[CatsandCars in reply to Lilith08]

Thank you for the update!