ms + cold + Ocrevus = not a good combina... - My MSAA Community

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ms + cold + Ocrevus = not a good combination

anaishunter profile image
10 Replies

just ranting.

I had my Ocrevus shot the 1st week of November. Then travelled abroad on week 3 of November and came back with a nasty cold that flattened me for the whole Thanksgiving week.

- not really smart of me to travel post-infusion,

- all ms symptoms showed up: fatigue (of course), lack of balance, difficulties walking straight (can't believe how hard it was to walk to the bathroom door in the middle of the night (now I'm laughing at it), numbness in left foot and hand, etc

- I'm better now but just craving my bed. The two kitties love it though.

And now that I gave it to my husband, I have to take care of a cranky man (I'm not fair, he's mostly good).

I'll have to be more careful next time and wear the mask even more than I did, wash my hands more often - the bad germs are out there!

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anaishunter profile image
anaishunter
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10 Replies
carolek572 profile image
carolek572CommunityAmbassador

Don’t beat yourself up, anaishunter , it was bound to happen! Just be more careful next time because germs are everywhere! 🙃

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tocarolek572

Bound to happen? 🤔 carolek572 😐 dont say that! 🤣🤗💕🌠

carolek572 profile image
carolek572CommunityAmbassador in reply toJesmcd2

Happens to the best of us, Jesmcd2 , especially when we are going back out in public. 🤗

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Ick! 🤗 Hope ya'll get better soon! Btw... dont pass it around here! 😂 l still have to get my flu shot 🙁 🤗💕🌠

anaishunter profile image
anaishunter

I went 5 years on Ocrevus w/o a single infection and traveling quite a bit. Maybe I got cocky :-) This year I had a UTI and now a cold. And yes, I passed it on to my husband who has diabetes.

Much better this week.

PWilli profile image
PWilli in reply toanaishunter

How did you pass the UTI to your husband? 🤣 Oh, I get it…you just shared your cold with him!

IcyRock profile image
IcyRock

I thought you meant cold weather. Chicago weather is kicking my butt!

ahrogers profile image
ahrogers

I also learned this lesson recently. I traveled the day after my Ocrevus infusion in July and picked up something in the airport. I got super sick a couple days after flying. Pretty sure it was Covid as it felt the same as the 2 other times I had it. I didn't test for it this time though. Will try to travel a bit before infusions from now on when my immunity is at its highest.

anaishunter profile image
anaishunter in reply toahrogers

ahrogers they say it takes about 2 weeks for Ocrevus to deplete the B-cells of your immune system.

But I do believe that the days after an infusion, as Ocrevus does its job, our body struggle and we do get tired, and potentially more exposed.

We simply can't ignore that we're more fragile than most people. I learned my lesson.

PWilli profile image
PWilli

Where in the world did I read UTI? Now I don’t see it…did you edit this just so everyone can see how poorly my 👁️👁️ and 🧠 aren’t working? 😂

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