Vax

[Sandydemop]

Hi everyone, I’m in the emergency room waiting to be admitted I had a very bad reaction to the booster they had to rule out a stroke. My right side is limp. I can’t stand or move my leg or hand. Thanks in advance for all your support

[Turtlepie]

My prayers are with you. I hope you get to be back to yourself soon

[Sandydemop in reply to Turtlepie]

Thanks very much prayers are always welcome

[Royjr]

🙏🏽🙏🏽🙏🏽Get well soon. Stay positive..

[Sandydemop in reply to Royjr]

Thanks Roy

[twooldcrows]

my heart is there with you along with many prayers for them to fix this ....love and compassion along with all the prayers...get home to watch the ball fall ....love and happiness filled with all kinds of love ....take care...

[Sandydemop in reply to twooldcrows]

Love received

[Sandydemop in reply to twooldcrows]

Thanks twooldcrows much better today. Almost back to normal

[Kenu]

Prayers are with you 🙏 Get better quickly 🤞🏼👍🏼😉🐾🐾

[Sandydemop in reply to Kenu]

TYVM

[starlight5]

Oh no, I am so sorry, please keep us informed how you are doing 🙏🙏🙏

[Sandydemop in reply to starlight5]

I’m home thank Gd. I have to say they took great care of me. Unfortunately I am still having issues standing up out of the chair at home. Not going to call 911 again. Maybe I will get stronger with rest

[jimeka]

Oh Sandy, I am so sorry. My prayers are with you, I hope the reaction fades away soon and you get back to your normal. Did you have the Moderna ? Hugs Jimeka 🤗

[Sandydemop in reply to jimeka]

thank you for your thoughts and prayers. I had Pfizer. Back to normal today. Sending you an intercontinental Hug.

[jimeka in reply to Sandydemop]

Hug received and one returned. Pleased you are back to your normal 🤗

[Sandydemop in reply to jimeka]

You are the best

[Corran731]

I spent the night in the er too after my booster. I had the same reaction and wasn’t sure if it was a stroke or heart attack but it was just a super strong immune response with a 104° fever. Hang in there!

[sashaming1 in reply to Corran731]

My MS doesn't handle fevers very well.

[Corran731 in reply to sashaming1]

Mine either

[Sandydemop in reply to Corran731]

Thanks Corran for the validation but I’m sorry you had to experience it. Are you doing better now?

[Corran731 in reply to Sandydemop]

Yes. It took a several weeks but I think I’m pretty much back to my pre-booster self. My neurologist ordered an MRI a few weeks ago just to make sure it didn’t trigger a relapse because I was struggling with some brain-fog but thankfully there were no active lesions. Hopefully it won’t set you back too long!

[Sandydemop in reply to Corran731]

ok so last time pfizer #2 i had a bad reaction and it was gone the next day. this time its been over 48 hours and i am having difficulty standing up. after a few hours of trying my husband was able to pull me up did you say WEEKS? as it is its hard to prop myself up in bed

[Corran731 in reply to Sandydemop]

I was able to get in and out of bed on my own and walk (begrudgingly with my walker) after a few days. But unfortunately the heavy fatigue and spasticity lasted a few weeks. It was definitely more of a struggle than after the 2nd dose which I was mostly back to normal after a couple of days. I had also switched my DMT between the 2nd and 3rd shots so I don’t know if that was a factor.

[Sandydemop in reply to Corran731]

Hi Corran731 I am much better today. thanks. I know what you mean about the love hate relationship with the walker. I think I'm back to my baseline. I hope there will not be a need for another booster.

[Sandydemop in reply to Corran731]

do you now consider yourself allergic to the vaccine? that's what i'm thinking.

[Corran731 in reply to Sandydemop]

I don’t know. I’m definitely reticent in taking it again. My neurologist tried to downplay my reaction to the vaccine but I’m definitely going to get a second opinion before I would ever get a 4th. I’m also wondering if waiting longer than 6 months before another one would also help. I’ve just got a lot of questions.

[Sandydemop in reply to Corran731]

Hey Corran, my booster was 7 months out. 😳My neurologist said it’s better than getting COVID but idk. I’m going to call her next week to discuss what happened and her recommendations. After the bad reaction to the second dose she said I should have gone to the hospital so I’ll keep you posted.

I don’t like that your doc minimized it.

[BettysMom]

Oh my gosh! That's terrible and so scary. I hope that they are able to make a diagnosis quickly and get you the treatment you need, if any. And I hope you are treated with kindness and respect. I'll be thinking of you until we hear from you again. Please keep us posted.

[Sandydemop in reply to BettysMom]

Thanks BettysMom im home tonight but I’m still weak can’t get out of the chair. Hoping to get stronger soon with rest. They treated me like royalty and I liked it

[erash]

Sending you 🙏🤗

[Sandydemop in reply to erash]

Thanks Erin. Hugs and prayers received

[JSSimp]

My prayers are with you.

[Sandydemop in reply to JSSimp]

Thanks JSSimp

[Jer29-11]

Oh goodness! I’m so sorry this happened to you! Praying for you 🙏🏻❤️

[Sandydemop in reply to Jer29-11]

Thanks Jer

[BlanketTime1]

sending you 🤗. i'm so sorry this happened to you. please keep us updated.

[Sandydemop in reply to BlanketTime1]

Thanks very much. I made it home safely

[ahrogers]

🙏🙏🙏🙏

[Sandydemop in reply to ahrogers]

Thanks so much for your support and kindness

[leking1]

I am so sorry that you are having to deal with this, Sandy. My love and my prayers are with you.

[Sandydemop in reply to leking1]

Thanks very much love received

[hopeandgrace]

So sorry to hear. Praying for you 🙏🏼

[Sandydemop in reply to hopeandgrace]

Thanks very much

[mrsmike9]

Oh my goodness! Praying for sure! Let us know how you are doing!

[Sandydemop in reply to mrsmike9]

I appreciate you and the prayers

[bxrmom]

Oh no! I'm so sorry that this is happening to you. Sending prayers and virtual hugs your way. Please keep us updated when you can.

[Sandydemop in reply to bxrmom]

Thanks bxrmom much appreciated

[JTZES]

Sorry to hear that. Why do the doctors think the Vaccine has something to do with your MS. Just curious on what they are saying.

[Sandydemop in reply to JTZES]

Yes they ruled out stroke and MS flare by ct scan and MRIs. No drooping face etc those were the only other things to rule out. EMTs said they have seen this a lot before with chronic conditions. Doc said it’s very rare but has seen it related to the vax

[MsBoo]

🙏🙏 Prayers for you dear.. was it the same as you had before or did you get a different one this time? I know the CDC said something about getting a different one for the booster, but I got the same one.. hope you are better soon..

[Sandydemop in reply to MsBoo]

Thanks MsBoo yes I had Pfizer 3x a little better tonight but not back to my baseline. I need more rest

[MsBoo in reply to Sandydemop]

yes.. rest.. I take two 600mg Tylenol after the shots.. seems to help me.. but that's me.. you know how that goes.. have a good rest.. your body needs it.. rest is better than the icky poo some get... take care.. best wishes to you dear

🤣🤣❤️❤️❤️

[Sandydemop in reply to MsBoo]

i probably should have taken tylenol after, but i felt fine. much better today, thanks very much.

[Goldilockssearching]

🧡

[Sandydemop in reply to Goldilockssearching]

Hi Goldilockssearching thanks❤️💕♥️💙

[kdali]

Oh no, I’m so sorry 🙏 I’ve read a few places where partial paralysis starts around 12hrs after the shot and lasts up to 24hrs (all MS people). Very scary to think you’re having a stroke 😞

[Sandydemop in reply to kdali]

That’s what happened ❣️

[kdali in reply to Sandydemop]

I’m glad to see that you have not had a stroke or new lesions 🙏 Ty for sharing, I feel like too often these reactions in MS patients get minimized at the least.

[Sandydemop in reply to kdali]

thanks kdali i agree. why would we make this stuff up?

[lbenmaor]

Sandy,Of my Lord, I am so sorry this happened. I am praying

your feel beter soon.

Leslie

[Sandydemop in reply to lbenmaor]

Hi Leslie thanks for your kind thoughts it was extremely frightening but you do what you need to do

[Sandydemop in reply to Sandydemop]

im still not quite right even for me😔

[hairbrain4]

Sorry, you had to go through that. I pray that you are much better by now & that it was just temporary. 🙏🙏🙏❤️

[Sandydemop in reply to hairbrain4]

thanks hairbrain4 unfortunately i am still going through it. too weak to stand up bymyself!

[Sandydemop in reply to hairbrain4]

it was temporary, thank goodness

[eharoot]

thanks for sharing your experience. my thoughts and prayers are with you

[Sandydemop in reply to eharoot]

thanks very much.for your good thoughts and good wishes this group has been so extremely supportive

[Tazmanian]

I'm so sorry Sandy

[Sandydemop in reply to Tazmanian]

thanks Taz appreciate you.

[Raingrrl]

I’m sorry you had to go through this and hope you are doing better.

[Sandydemop in reply to Raingrrl]

Thanks Raingrrl i suppose i just need more rest not quite back to baseline.

[Sandydemop in reply to Raingrrl]

much better today, thanks!

[greaterexp]

I pray you are moving about better and have more strength now. I’m sorry to hear about this. Please keep us all posted.

[Sandydemop in reply to greaterexp]

Hi Erin, I think the worst is over. Today i mostly feel back to baseline.

[greaterexp in reply to Sandydemop]

That’s thrilling news!

[Sandydemop in reply to greaterexp]

You are awesome. Thanks for sharing your good wishes. I’m still tipping over a little but tomorrow should be fine

[greaterexp in reply to Sandydemop]

At least you’re on your way.

[Sandydemop in reply to greaterexp]

thanks so much. today i am definitely back to baseline. I am hoping to never have another booster. I suppose i am allergic to it and each time is worse than the time before.

[wolfmom21fl]

did you have any trouble breathing at all? I ask because this sounds a lot like an allergic reaction of some sort. And you looking down this thread i see you said you had a BAD reaction to the second shot but this time it was so much worse.. With allergens you become more sensitized every time you are exposed to that allergen. Like wasp or bee stings for example. you generally would not react much the first time you are stung but each time after that would be worse than the time before. Each time after would be worse and worse and you would get to a point quickly that you would reach an anaphylactic reaction eventually. That happened to me after only 3 wasp stings and i have to carry an epi pen now.. but this is how reactions of this type happen.. it is possible you had a minor reaction to the first shot.. the second was much worse and now the third landed you in the ER.. something you might ask your Doctor about

[Sandydemop in reply to wolfmom21fl]

Thanks wolfmom21fl no trouble breathing. I have so many food allergies but no medication allergies

[Sandydemop in reply to Sandydemop]

Until now

[Neworleanslady]

I read that you are back to baseline. Thank God for that. What a scare

[Sandydemop in reply to Neworleanslady]

thanks Neworleanslady

[Jer29-11]

Wanted to check in and see how you’re doing. I think I saw you’re all recovered now. Wow, so scary! Praying you continue to improve❤️

[Sandydemop in reply to Jer29-11]

thanks Jer29-11 thanks for your good thoughts, I am back to my normal/usual.

[Jer29-11 in reply to Sandydemop]

Great to hear!

[lbenmaor]

Sandy, Are you feeling any better?

Leslie

[Sandydemop]

Hi Leslie, thanks for asking. If you asked me yesterday i would have said yes, back to baseline, or even this morning. this afternoon a different answer. I fell in the street trying to step up to the curb, thankfully a stranger helped me up. Also i just noticed i can't kick my affected leg back as far as the other side. maybe 45 degrees instead of 90 on the other side. Yikes! The MRI said i am not having a flare-up but WTF is going on?