1st infusion: Ok i get my 1st Ocrevus... - My MSAA Community

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1st infusion

Neworleanslady profile image
22 Replies

Ok i get my 1st Ocrevus infusion tomorrow at 7!! 🤞

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Neworleanslady profile image
Neworleanslady
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22 Replies
rjoneslaw profile image
rjoneslaw

congrads

jimeka profile image
jimeka

Love the funny. Hope all goes well 👍

bxrmom profile image
bxrmom

Congrats! Good luck!

Neworleanslady profile image
Neworleanslady

Thanks everyone !

starlight5 profile image
starlight5

Great news! Drink lots of water, will make starting that IV easier.

twooldcrows profile image
twooldcrows

don't worry it will be just fine ...i don't like needles but this is easier for only twice a year and they do it for ya ...take something to read or to listen to or just sleep that is what i did the last time they had to wake me ...it was just fine ...i have been getting them since 2007..good luck lay back and enjoy the quiet...

Tazmanian profile image
Tazmanian

Congratulations

Neworleanslady profile image
Neworleanslady

Thank you!

JSSimp profile image
JSSimp

All will go well🙏🏾

Elizt3 profile image
Elizt3

You got this!

pamgarner profile image
pamgarner

perfect,everything with ms. is a surprise😃

hairbrain4 profile image
hairbrain4

I hope all is going well. I love Ocrevus. Its the best DMT I have used since my diagnosis 16 years ago this month.

Neworleanslady profile image
Neworleanslady in reply tohairbrain4

Done!! I slept all 6 hours except for 2 bathroom trips! Id stayed up late so I’d be tired ( my mom drove me) and i had benedryl there so i had a restful time. I had a full bag of food and books and stuff that I didn’t use but I’m glad i had with me. Not so bad. But ive been sleeping since i got home. Seems like a day wasted in that i missed a wedding and got no house stuff done. My daughter plays in a soccer tournament tomorrow and Sunday so I guess I’ll see how i walk. It’s supposed to be hot so I’ll have to plan for that. Thank you so much for checking on and thinking of me!

hairbrain4 profile image
hairbrain4 in reply toNeworleanslady

Im glad it went well for you. I hope in the next few weeks you will see some benefits of sleeping all day! After your 2nd half dose is when you may start feeling better.(That is if you are getting your 1st dose in 2 sessions) At least that's when I noticed it was helping.

Neworleanslady profile image
Neworleanslady in reply tohairbrain4

Yes my next half dose is in 2 weeks, april 9th. That’s good information that you noticed some improvement after your SECOND dose because I’m not noticing too much yet after this first one. Except feeling more awake after all that sleeping!

hairbrain4 profile image
hairbrain4 in reply toNeworleanslady

The awake is the steroids they give you before the Ocrevus.

Neworleanslady profile image
Neworleanslady in reply tohairbrain4

Figures it’s not something improved

hairbrain4 profile image
hairbrain4 in reply toNeworleanslady

Give it time to work. It took a couple of weeks after my 2nd infusion be for i noticed any improvement. Things got better gradually from there. Remember everyone is different.

Neworleanslady profile image
Neworleanslady in reply tohairbrain4

Thank you. I was wondering. I realize everyone’s reaction is different. But it’s good to have at least an example of your experience

Neworleanslady profile image
Neworleanslady

You have all helped me very much with my mental stability about this disease and treatments. I appreciate all of you. I love this forum!

Good luck tomorrow with your second half of ocrevus! 😊

Neworleanslady profile image
Neworleanslady in reply tosMilEs_N_bLuE_sKiEs

Thank you so much for remembering!! I had 2nd half today! It went well. Slept thru it again. I’m expecting big things! But nothing yet. I still have MS.

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