I'm starting to get really angry at MS. I was diagnosed 11 years ago. In the last 3 years i have started a slow decline in walking, and dexterity most noticeably. Cognitive, bladder (invisible symptoms) for the first 8 years. I was sad and afraid Now it seems MS is taking up a lot of space in my life. I am grateful that I can work from home during covid and may continue to do so once this quarantine is over, out of convenience.
However I now have to rearrange my schedule due to MS. For example I have to have longer breaks in between clients. A shower uses up half my spoons for the day. (if you're not familiar with spoon theory look it up) Ordering groceries regularly now because the grocery store uses up the other half of my spoons. OT and PT are great but again, life gets built around medical issues. So i feel like my life is going by just getting by. My body acts like i'm much older than i feel mentally. If you have identification with this or thoughts about it in general, please share and let me know i'm not alone.
I think anger is better than sad because it is at least energizing. still have some fear about the future but trying to stay in the day, in the moment. thanks for reading this long post.