Congratulations! Sometimes it's enough to think back and say "Yes, but I did this" and pat ourselves on the back. As hard as it is, try not to think about the things you can no longer do, but focus on what you CAN do now.
this ‘new normal’ is so unpredictable, so it’s difficult to get used to. I just take it day by day. Having a supportive spouse and family is very emotionally helpful to me
I’d been looked at cross eyed for almost 30 years.
Neuro still says I’ve had ms since 2017 even though I say-it’s been a lot longer than that-not to her bc no one called it 🤷♀️ even though she admits black holes (which means it’s been a while) Gaslighting doesn’t stop even after diagnosis.
Some days I feel it was better not knowing in some ways
I would have stood my ground on No more & got rid of the guilt. The beauty now is my family no longer questions when I say no. They used to be the worst! Too bad it came to dx for me to be heard.
Try not to dwell too much bc you didn’t know better @ the time.
Something to remember every day…if you wouldn’t say it to a friend, you shouldn’t say it to yourself. That is helping me to be kinder to myself, though it’s a struggle some days. You have a great attitude!
give yourself grace and patience- it’s some if the harder things to do when you are used to doing it all, going for it, and being driven.
It’s hard to feel what does tomorrow look like? To go to bed and not sure what you will feel like the next day.
I could certainly take better care of myself as I’m sure we all have good days and bad days in the club no one wanted to join.
HOWEVER there are bright spots. To value what you can do, to know somethings are temporary and it will change - for good/bad.
To know there is support in strangers who become unseen friends. That you are not alone even when you feel alike and the world doesn’t get it. But there ARE those of us who do! We know as we live our version every day and we take each day as it comes.
My biggest struggle for myself, possibly you can relate, is that I’m most certainly not 💯 the person I nice was and the life I envisioned changed.
YET, I’m the person I am today and that’s ok. The body I live in today still works and I’m above ground. I have emotional highs and lows and I relish in the highs more than the lows and value the support I have around me and the people here in this forum. You get to watch/read and participate as you wish and it’s ok to come and go. Your own life will take a different version of center stage and it will be a roller coaster 🎢 unlike anything else but your teenage years. It’s leaning the levels if acceptance and feeling proud in what you can do.
Meds are a blessing and a curse for some of us. I’m the most “me” I’ve been in years but I know it’s all drug supported - drugs to to have energy, drugs to sleep and drugs to push the monster away. However I’m still the person my family loves and I still enjoy the things that gave me pleasure before but maybe I can’t do them all day or even past 15 minutes but I can do them and I’m not giving up yet. Even if there been days where a good cry and a comfy blanket is exactly what I needed.
Welcome to the club and to this wonderful group of people.
**evidentially I had more going on in my head then I thought when responding to you….😬**
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