Good morning my beloved ms family. I am talking to “YOU” in case “YOU” wondered. All is well I hope, a good nights sleep, not to many tears or bad thoughts. I will say this, in my opinion, tears are a prerequisite of this condition. Doctors should give us all a short form that says, “YOU now have ms. You are allowed to cry it is okay” I think that should be mandatory information. It does not mean that “YOU” are weak or any such rubbish that people say. It means that “YOU” are normal. “YOU” are reacting just like EVERYBODY else. Even now after 20+ years, I can still shed a tear over perf dived miss opportunities in life. I think, what if? Maybe “YOU” do as well, maybe “YOU” will. I understand, “YOU” are still normal no matter what anybody thinks or says. This is your life, your ms journey. Travel your road your way. Ignore my writings if “YOU” feel I am pressuring “YOU” to much. I say these things for that scared and confused person in the family that just wants some guidance and maybe a few answers.
First and easiest answer. “YOU ARE GOING TO BE OKAY”. “YOU” may not end up in a wheelchair or any of the other horrors that “YOU” are told. I was told that I would be dead in a year. 20+ years later I am still waiting for that year to end. Obviously, he was WRONG. A lot of what “YOU” may read or be told may be well-intentioned, but for “YOU” it maybe WRONG. Start slowly, pull yourself back together, wipe away your tears for a moment. Do not expect Neuros (neurologists) to provide a lot of emotional support. They are not trained for it. In my opinion(not a trained medical professional) going and getting antidepressants, drugs and booze is not your best idea either. Like most Australians, I like a good drop or three, but I have found this is not the answer either. Make like Buddha and go sit under a tree and just let go and think. If “YOU” are good meditate. I am not, so I just lt my mind wander. Steering away from the negatives and the gloom, just enjoying the warmth and the breeze. Sometimes the rain. Just being me, whatever that may be.
“YOU” and I do NOT need to solve every problem or plan our whole lives in 5 minutes. Relax, sit back take it easy. it will come when the time is right. “YOU” will make mistakes, poor decisions but never stop your Disease-Modifying Therapy (DMT) that one is a NO-NO. It will not cure “YOU”, nothing that exists today will. It is designed to slow down the progression of the disease. Nothing else and no more. So if your magnetic resonance Image (MRI) shows activity or lesions this is very normal do not stop and be disheartened. I suggest the strongest DMT out there for relapsing-remitting ms(RRms) . I believe it is called Ocrevus but check with your personal Neurologist (Neuro) I might be wrong. I do that, so I am told.
We come back around to what happens first. Stand up straight, pull your shoulders back. look in the mirror, and CRY. that hand on your shoulder holding “YOU” is saying it will be oka, honestly, it will be okay. I do not mind who or what hand “YOU” may think is on your shoulder, it is going to be alright.
Royce ( your ms writer and brother)
YOU can do this ms life, you will be okay
