Post 638 I thought this was obvious ... - My MSAA Community

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Post 638 I thought this was obvious 27 Apr 2020

RoyceNewton profile image
26 Replies

Good morning family. I would hope that everybody is well and looking forward to another exciting week. Driving around yesterday, she who must be obeyed not me driving, I drive to the mailbox and back when I am really lazy and do not feel like walking to the corner. I have not driven a car more than a few hundred meters\feet in a very long time. Anyway as we were driving along I thought about how empty the roads are. It made me a little sad, ms emotions are a terrible thing. Normally I would care less, but today I dwelled on all the pain and discomfort that is happening. Maybe I am growing up or being a little less selfish, who can tell, ms emotions.

i have noticed that our family is getting bigger. It is nice to have new faces, but I wish “YOU” did not have to be here. This illness, Relapsing-Remitting ms (RRms) can be difficult goes on for the rest of your very long life. There is no cure. The medicine that “YOU” take modifies the progression of your disease. For some, it very close to stops it after many years. Others, “YOU” might need to change to get a slowing effect. Disease-Modifying Therapy(DMT) slows the number of attacks that “YOU” may have In a year, “YOU” may have seven attacks instead of ten. Does this make sense to “YOU”, am I using the correct words for it to make sense to “YOU”. However many attacks (exacerbations) that “YOU” experience “YOU” would have had more if “YOU” were not taking DMT. “YOU” have fewer attacks than if “YOU” were not on the DMT, BUT “YOU” still may have attacks. Even when “YOU” take your DMT without exception and religiously. We all should have worked out that needles are not my friend, but I still got injected every other day. I had a technique. Inject, after food, no alcohol and relax after the injection. Like “YOU” I still had the occasional headache so I took antihistamine. I lightly massaged the are and if need be I put a cold pack on the site.

I was careful, methodical and fanatic about my injections. The only time that I may have been a little slack was when I was travelling around the world to visit a young lady. I would not inject in airports or on aeroplanes. That would just cause too much hassle, with security and cabin crew. I am sure from my last MRI (Magnetic Resonance Image) that I am not cured, BUT there are fewer lesions in my brain than if I had not taken DMT.

In my twenty-plus years I have taken three different DNTs. She who must be obeyed has done two. Not every medicine is compatible with everybody. Change happens and it is not to be feared. Stopping is the fear that “YOU” should have. Taking a rest lets the disease do as it will with nothing to stop or delay it. This is a degenerative illness, why give it free reign to attack “YOU” with no defences?

Take your DMT forever. Die at 90 with ms, and after having had a great life. Sometimes a little scary but still a great life.

Royce (your ms writer)

smile, have a long and great life and take your DMT

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RoyceNewton profile image
RoyceNewton
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26 Replies
carolek572 profile image
carolek572CommunityAmbassador

Good post, Royce. I, too, am saddened at what I see as my normal is being hoisted on everyone. I miss seeing everyday life and hope that it will return soon because this new ‘normal’ is NOT a healthy way for society to live by! Until then, Keep Smiling :-D

twooldcrows profile image
twooldcrows

thank you again...

kdali profile image
kdali

I’m wondering about this forever. I have 25 years left before I’m told I’m too old to take DMT’s. I don’t think I’ll be ready to hear that by then.

Kenu profile image
Kenu in reply tokdali

I am there, my last two appointments has been about going off Aubiago ? It’s totally up to me he will continue if that’s what I want. His opinion is to quit. So last week I decided to ween myself off. I have been taking it every other day for ten days and going to finish this week that way. Next week every third day for week. See where I am at and stop 🛑. Scary but I can go right back on if I notice any problems. Have 90 day supply on hand 👍🙏😉 Ken 🐾🐾

RoyceNewton profile image
RoyceNewton in reply toKenu

Makes sense to me, if you have the age and the years on DMT then your cvhoice. You should know the risk.

Kenu profile image
Kenu in reply toRoyceNewton

Thanks 😊

kdali profile image
kdali in reply toKenu

Will you still have routine scans and visits now?

Kenu profile image
Kenu in reply tokdali

Yes, like I say any signs of problems I have ninety days on Han to start right back up 👍🙏😉

Doubled51 profile image
Doubled51 in reply tokdali

kdali Im 68 years old and my dr hasn’t mentioned stopping DMT in fact he just changed it in September. Plus if my next MRI shows anymore new lesions he plans to change it again.

Donnie

kdali profile image
kdali in reply toDoubled51

Yes, I want in your club!!! 👏👏👏

I don’t want to need a drug change though. I’m going to need a magic genie or something to work on this for me 😂😂😂😬

Doubled51 profile image
Doubled51 in reply tokdali

kdali . I hope by that by then there’s a cure and you don’t need either.😅😂🙏🏻🙏🏻.

Donnie

kdali profile image
kdali in reply toDoubled51

I do too, but I can’t begin to imagine what that would be like!

Violonchelo profile image
Violonchelo

Good morning and thanks for the clever ideas that you have.

👍👍👍👍👍

Violonchelo profile image
Violonchelo

Good morning, although now is morning I need music that also relax me. Music if is possible, to have the legs better.

Music!!!!!👍👍

RoyceNewton profile image
RoyceNewton in reply toViolonchelo

I agree music

pamgarner profile image
pamgarner

that's my plan:)I ask my father who will be 90 this year"do you think I will live to see 90?"he replied I don't know, I haven't made it yet !:D

2littletime profile image
2littletime

Thank you, Royce for another great post. I continue on the same DMT for 20 years. I smile as often as possible & will live my great life as long as the Good Lord allows. 😌

Kathey profile image
Kathey

I'm thinking "YOU" were not an English Major.

RoyceNewton profile image
RoyceNewton in reply toKathey

Not in the least Sister, I was a pilot in the olden days, were you?

RoyceNewton profile image
RoyceNewton in reply toKathey

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RoyceNewton profile image
RoyceNewton in reply toKathey

Not in the least Sister, I was a pilot in the olden days, were you?

Violonchelo profile image
Violonchelo

I would like to know how the stress with MS can disappear when you can’t afford situación with tension.

Is not easy to explain to other person how the leg feel really bad in the relationships with other persons.

Because if you can, people with MS need calm not stress.

RoyceNewton profile image
RoyceNewton in reply toViolonchelo

I am not sure that I understand what you are saying. I think maybe you want to be like water ( flexible, not like rosk, hard and immovable. If life says one morning your leg does not work accept it and adapt to it. Be flexible willing to change and adapt.

Violonchelo profile image
Violonchelo in reply toRoyceNewton

Yes, thanks. Once somebody told me to have attention to 4 columns: friends , family, work or couple . Each columna often or intensity can give me stress .

Violonchelo profile image
Violonchelo

Thanks for the 3 birds of Bob Marley. 👍

RoyceNewton profile image
RoyceNewton

I would like tyo see that if possible, send it to the whole family

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