That is a serious question "WHAT" do "YOU" know. Where are "YOU" doing your research so that "YOU" know more? Knowledge is power, and I am pretty sure that whatever Doctor "YOU" may visit will be glad when "YOU" walk in with an idea of what they are saying, and an opinion. At least I know mine is. Admittedly it does get a dirty look when I sometimes say "NO, I do not believe that is the best option". I control my health, they are there to provide advice, and when I make mistakes, which we all know I do" to correct my errors. Relapsing-Remitting ms (RRms) is too significant an illness to be handled entirely in a 10-minute appointment.
I like Dr AAaron Boster on YouTube. He has an amusing style and gets his point across. I also like the International group\foundation\society, not positive what it is called. I look to look at how other nations handle us, People with ms (PWms) Sometimes "YOU" can get a hint from somewhere else, on how to do something. Perhaps they have a really neat gadget that "YOU" have always needed, but never knew "YOU" did. Actually, old age people websites are great for this. They are full of labour saving devices.
It comes down to "YOU" as a newly diagnosed (NEWBIE) with this lifelong incurable illness, how to move out of the box "YOU" are in. Move in ways that "YOU" had never imagined, to allow yourself to have the best life possible, and to show those around "YOU" that "YOU" are still a capable and vibrant human being. To show that your illness hampers "YOU", but, there is always a way to meet your goal even if it does change, and that "YOU" CAN and Will find it.
"YOU" will never look at things negatively, at least not for long anyway. "YOU" will perfect the shoulder shrug, become adept at saying" ah well, shit happens." This is RRms, things have to be done twice, and a third time because "YOU" forgot how to do it. It is okay, do not expect perfection from yourself every time, every day. Learn to adapt and roll with the punches. We all have a very long time with this condition. It will not be cured, in my opinion. So we all have to learn to live within our limits. And when "YOU" exceed those limits, which I often do. Learn to accept the consequences of our silliness.
ms is an entirely liveable, doable condition. There are ups and downs, a lot of downs honestly, but very much livable. Maybe it is not so much a monster to be feared but a mystery to be solved. I watched Maze runner last night so, "YOU" my ms sibling which way do we go, there is a way to live with this and to keep travelling. So what do "YOU" know?
Royce (the ms writer)
find it for you
What's MS Like For You?
