Shortish Post 4 OCT 2024: Dearest... - My MSAA Community

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Shortish Post 4 OCT 2024

RoyceNewton profile image
7 Replies

Dearest Relapsing Remitting ms (RRms) Sisters and Brothers. G'day. Contentment resilience and even happiness to YOU on this fine day. This is NOT meant to be easy. Ever. If it was we would just laugh at it and get on with our lives. It is NOT. Even after 20+ years I have moments of difficulty. I do not understand why my mouth how it just shots out in pain willy nilly. Why my bladder decides that it will not wait 3 seconds for the toilet, why I can not sleep or that I wake in pain. This is my life with RRms and likely yours as well.

I just look, shrug my shoulder and say something silly to myself. This life is not always easy. I doubt myself sometimes, scream out in frustration but accept it. This is my life and it can not be changed, all I can do is my best. Be glad that some of my decisions were good ones, not all, but some. Be glad that I did get on Disease Modifying Therapy (DMT) from day one even though it hurt and left me with very battered buttocks. The only place I had fat. Yes I chopped and changed a little, but, I NEVER stopped doing that injection.

No, this is not an easy journey we are on, BUT it is a very doable journey. It demands a lot, but YOU are strong enough to face it. You CAN live this life. YOU CAN YOU CAN YOU CAN.

Have a great day and smile,

Roycee😀

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RoyceNewton profile image
RoyceNewton
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7 Replies
10things profile image
10things

Great day to all of us. Positivity is a mindset😊

grammyshay profile image
grammyshay

Hugs to you. And yes, WHY couldn't it wait just 3 more seconds???

JSSimp profile image
JSSimp

Great post Royce🙏🏾

Brindisi1 profile image
Brindisi1

Peace courage & perserverence have a blessed day.

Changingdirections profile image
Changingdirections

This is definitely my life too. Very frustrating but it is what it is now. I’ve learned to cope. I got a late diagnosis so I grew into the symptoms like they were just normal for me Never really questioned why I walked a little funny until people began pointing it out to me. Could have just lived with most of it until the pain hit me like a bolt of lightning. I keep going on almost like normal I refuse to quit. I continue to take the DMT and praying this will be all MS has for me but somewhat prepared to accept more if needed…maybe . Plus I have a great support system which makes acceptance a little easier. And yes the 3 more seconds to the toilet is the worst. Good luck and best wishes to you on this unexpected life journey.

LHermitte profile image
LHermitte in reply toChangingdirections

"Never really questioned why I walked a little funny until people began pointing it out to me." Oh, so very relatable! Thank you!

Tazmanian profile image
Tazmanian

Smile and carry on

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