I had an interview today with “help” coming in my apartment to do some chores...
It breaks my heart, to not be able to do some things safely.
I wanna concentrate on my therapy and NOT risk a fall...
Tis a hard pill 💊 to swallow for me right now...
But also feeling blessed too—-to get my disability and to be able to pay for this.
Thanks again ALL 🙏
Good on you for getting it done!
Yes, she’d a few tears yesterday with the therapist and a few with the home-care-aide...
But like Royce said earlier.....
Sad and crying 😢 is okay...but plan for the future, do what I can do now and press on!
(Sorry, Royce...my interpretation)
Thanks again All
I also choked on that particular pill not long ago myself. The change over to assisted living at home. The best part being is still being able to be at home. Still having some independence helped me to choke that monstrous pill down myself. However today is another big one for me. My drivers license expired today and theres no urgency to fix that because its been over a year since I've been able to. So you have my sympathy on surrender of independent living. Hopefull yours and mine are only temporary, im still fighting to get some I've lost back.
🙏
You need to renew drivers license or get a ID card that’s up to date. They don’t except expired drivers license for anything, 401’s, investments, getting in the court house, etc. My buddy just went thru that, thought it had his picture but nope 👎🏽, the bank wouldn’t even except it😡 crazy 😝 c Ken 🐾 🐾
Awe, damn Allen....
I don’t have a “flight certification”...
But have held a CDL for 18 years...
Might not be able to do my regular license...
My prayers 🙏 are with you!
Well my pilots license NEVER expires. Only forfiture or if it is taken due to some kind of wrong doing. I cant get a valid medical certificate and im a decade out of currency. I did let my flifht instructors expire those do have to be renewed. Im a pilot until the day I pass away! Im just inactive so.... thank you for your prayers.
Ah, dear Allen..
My 18 years of a CDL, are I am sure gone
I am just trying to hold on to my regular license,
Doctor told me no! I will fight it—I won’t put others in danger
Thats why i dont drive either, im afraid i will have another seizure or wven just a bad exasperation epyld be enough to cause a reckless and dangerous situation. It really is hard not being able to get out when i feel up to it. Has driven me even farther into reclusive territory... the irony of driven farther into.... yes intentionally worded! 😂🤣😂
U know you can get a caregiver who can come in and do those things and it would be paid for by an agency that provides the services
I am on Medicaid...
I f not, it is $30/hour
When I was on straight medicaid and now that I'm on medicare- medicaid the insurance gave me a care coordinator because I have MS and other illness.
The coordinator helps you navigate through the insurance red tape and help you get services.
My coordinator helped me get a caregiver and other services I needed.
Once you get the caregiver you can have them do certain duties ie cleaning, shopping , and etc
You need to call your insurance and request the coordinator or the service of a caregiver
I would love to have someone come in and totally dust and clean all my furniture. My hubby helps vacuum and laundry and dishes and yard but will not dust. But one time I paid someone and she didn’t do a good job at all, not worth $50. Now I have pneumonia
The ultimate question...
Vacuum first? Or dust first??
I know what you mean. If you have good vacuum dust first then vacuum and last oil everything👍 Also have to keep furnace filter changed with a decent one. 😉🤗 Ken 🐾 🐾 🇺🇸
Or...don't move anything so you can't see how much has accumulated!
It’s ok to have help when needed. I agree, hard to accept though.
Change is always hard. Try to focus on what might be good out of it. no falls?
Yep!^
I’m going through the same thing in my house in the U.K. babe. They haven’t come to see me yet but the referral has gone through and it’s just waiting. I’m assuming it’s because of the pandemic xxx
Janet B ❤️
Good morning janetb1968,
They didn’t have a problem with it yesterday, nor did I. There were no handshakes, elbow bump instead.
It’s afternoon here in the U.K. honey, it’s 12.36 pm now xxxxx ❤️
I felt so guilty when I accepted my husband's offer of some cleaning help. It felt like he thought I was doing a bad job, but he only wanted to make life easier on me so I'd have energy to do other things like spend better time with him. I felt as though I needed to clean before the cleaning lady showed up! That guilt and the sadness I felt at needing a little help are fading with time. I've been able to can some applesauce and loads of tomatoes because I don't have to choose between cleaning and doing that. I've also had more time for creative things like quilting, which are very rewarding. I understand what you're feeling, but hope you'll find a blessing in there somewhere.
I am thankful for my cognition at least, so i know what has to be done and able to problem solve about how to get it done if I can’t do it.
I got a roomba type vacuum (eufy is the brand i got) and it’s wonderful! I have dogs and i run it every day. Of course i do have all wood type (laminate) floors.
I have seen those on tv...
Probably worth the investment.
Absolutely worthit for me!
Might I suggest getting one that also mops. Mine only vacuums which is great but I know they have them that also mop and I hate mopping!
Constant adjustments will forever be altering your independence but they will not alter who you are, just how you handle things. This a tough, large, pill to swallow; but looking out for yourself is the priority. Avoiding falling and fear of falling is something I know well. From too many bad falls I have excepted the fact that it is better to ask/take the help/assistance, than to risk making my world more difficult out of stubborn pride; very hard pill to swallow. But you take care of you, protect you; strive to be as strong and normal as you can. Let someone else push the vacuum, it a pain in the butt anyway. Everyone deserves a break from housework.
It's okay to ask for help with your chores that you can no longer do safely, Hidden Put your efforts into activities that you enjoy instead ~ I mean, I wouldn't miss not having to vacuum. 
I know it's hard, but thank God you had the strength and resources to do what's best for you. Good luck and stay blessed.
you are doing great with this .i find one of the hardest things with ms,is how it chips away at our freedoms,alittle bit at a time and when you least expect it,whammo! there goes another.but the things we gain is creativity how to get things done in a different way,touch for me was asking for help,it gave me a perspective i really do need people,i was always independent ,god has YOUR plan and mine
Oh exactly!
Thank you so much!
I so wanna learn my “niche”
I see everything you all do..
Knitting, quilts, bathroom redos...
Gotta be better than bad dad jokes...
please keep telling jokes,they make me smile
Yes, it sucks. When we were well we would have loved for someone to come in and clean for us. Now we just wish we had the energy to do everything for ourselves.
Ocrevus again
Just checking in
Sharing different types of art ...
