Post 651 Keep it together 11 Jun 2020 - My MSAA Community

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Post 651 Keep it together 11 Jun 2020

RoyceNewton profile image
8 Replies

Good morning my dear ms family. Yes, I am ignoring my doctor again. Still taking my medicine, but on the computer. Yes, I know better but why not, I only live once at a time. Are “YOU” all well, I most certainly hope “YOU” are and looking after yourself.

I know that “YOU” may not have noticed but the country is going crazy. Well, maybe media hype, but it does look like it. I remember long ago, during the Rodney King riots my Mother calling me from Australia asking if I was safe from the rioting in Atlanta. My return comment was what rioting. Turns out there was a protest on one block miles away but the news made it look like the city was burning down.

A little like our condition if “YOU” think about it. We have ms there are all these horror stories, lots and lots to fear. Twenty plus years into the game and I feel that I have very few issues. She who must be obeyed went backwards. She could not walk, could not see out of one eye at first. Now we are looking for a new car because we have put so many miles on it. It is nothing for her to drive to the end of the state for lunch. Bad habits. The world did not end, all the horror stories did not come to pass. It may certainly happen for some, but for the majority of us it, does not happen. When I first started Disease-Modifying Therapy (DMT) long ago, I was warned of all these side effects. The reality is, take ibuprofen before, make sure “YOU” eat and inject into the fattest part of your body and rotate injection sites. Back then I had a bum (buttocks) and a Mother and a girlfriend so no problem. My fears were unfounded, no reason to have them at all. The horror stories were just that, horror stories.

There is an article I keep seeing about things I can not do because I have ms, Pretty sure that is the name. Should be something more like, “Things people told me I can not do because I have ms, NOTHING”. If “YOU” or I want to do something but we have ms, make an effort. Accept the consequences and do it. “NEVER” limit yourself. Reach for the sky, when “YOU” get there, there is a universe to reach for. Do not be limited. Actually read a book called “Reach for the sky” by Douglas Bader. Read his story then apply that attitude to your life. Apply stories of strength and perseverance to yourself. Do not like what I suggest then look around. We are an ugly species at times, but sometimes we do throw a bright light on our life. Strength and resilience are out there. Go find them, fill your ms vault with stories of all that we can be, not of failure and weakness. Develop for yourself the mindset, that yes, my world has crumbled but I can make an effort and build something better and perhaps a little stronger.

Royce ( your ms writer)

My world may be crumbling around me, but from the rubble, I can build something new, and if I can do it once I can do it again. I CAN cope with ms.

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RoyceNewton
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8 Replies
hairbrain4 profile image
hairbrain4

You are so right! Attitude is the key to how your day goes.

2littletime profile image
2littletime

Right on, Royce!

Midgey_Midge06 profile image
Midgey_Midge06

I moved back to the land of no Starbucks right before the world went hay wire so I got lucky.

It would seem i got lucky with my MS as well. I don't go by what all i am told i can or can not do. I go by what my body says. It tells me I need more sleep than I did before. (Then he tells me - you CAN'T sleep cuz MS is mean that way😈😈)

It did tell me the horror stories were true about the DMT's tho. But i suppose every body and how it reacts will be different.

I am taking a page from your advice and being happy with what every day brings me. We really do only live once and y not enjoy the heck out of it while we r here!!

Love 💘 your posts!

carolek572 profile image
carolek572CommunityAmbassador

Royce, It's all a matter of attitude, your attitude. If you convince yourself to do it, then you can do it, and forget listening to the naysayers because they all have 'can't do' attitudes. Live you life the way you see fit, and you'll be so much happier for it. Keep Smiling :-D

MarkUpnorth profile image
MarkUpnorth

You got it. Attitude AND Determination, and you can do anything. Well almost.

Don't try flying without a plane or at least a jet pack. But, it took a while, but I lost my cane I needed 5+ years to keep from hurting myself walking. I'm not going to try walking any parapets atop skyscrapers anymore, juggle a half dozen things at the same time, or even attempt anytime without knowing where the closest bathroom is, but.... we can still accomplish amazing things. So don't let anyone tell you otherwise. I'm up before the sun rises every day, and never stop all day long anymore. Naps? Yeah, my daughter less than half my age takes them regularly when not working. I can't remember my last one.

mrsmike9 profile image
mrsmike9

Get off your computer!!! It's only for a bit!! Your eyes are precious!!

BigMar7 profile image
BigMar7

Royce, you are always so encouraging! Please take care of yourself. I love your posts! ❤️😎

Sandydemop profile image
Sandydemop

Dear Royce, thank you for your supportive message. 10 years ago I was diagnosed with Benign MS. Didn’t know to be grateful. Now That I have trouble walking I am really grateful to be walking (with a walker) every day. “YOU” inspire me.

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