G’day (Good Day) my ms family. As always I wish that “YOU” slept well, no ms gremlins attacking “YOU”. They are really mischievous like that. Just when “YOU” need a good restful nights sleep. before ms comes a knocking on your body. Back when mine were very active they came a stabbing w2ith ice picks in my face. Not fun at all but they have calmed down now. Very much an ms thing. Pains and difficulties come and they go. I believe we all must get used to this. Live in the now not the past. What we once had maybe gone. We should make an effort to get it back if it is important, if not remember it fondly and let it go. if it is not.
When I first met she who must be obeyed she was sitting in a wheelchair. Today she is looking at a new car and drove me all around the Hawaiian islands on my 50th birthday cruise. I now sit in my 3 wheel scoter when we go to hockey games. Not because I can not walk, because it is more comfortable than the seats in the stadium. I found an advantage for myself and I took it. It does not stop me helping others when I can, but there are times when I need assistance so I take it. Not every day, at every moment, do I need help, and likely neither do “YOU”. It is that sometimes when the public toilet is three steps too far when the tomato soup can is at the other end of the grocery store. It is at those times I am glad I am prepared, for emergencies.
When I was first diagnosed (Dx’d) long ago I was very pedantic about my Disease-Modifying Therapy regime. Life centred around it. It gave me some stability if nothing else. Something to hold onto in those times of questioning turmoil and uncertainty. I found a rock to hold onto and so might “YOU”. I could see the numbers. I knew that DMT was stopping roughly a third of my exacerbations. That gave me a degree of hope. Not a big one, but every little bit helps. I took my needle every other day, exercised ate healthier and carried on. This strange illness was going to be with me every day for the rest of my life. Being 30 I figured that, it could be a very long time before my coffin is closed on this life. Perhaps I should make every effort to learn and live it as best I could. This is something that I HIGHLY RECOMMEND FOR YOU. Do not just bumble along from one ms incident to the next. LIVE. Yes, Relapsing-Remitting ms (RRms) places obstacles in your life path, unexpected ones, it does that. It is the nature of the illness. Be aware of that, prepare yourself when “YOU” can and when “YOU” can not roll with the punches. Fall to your knees then get up. Brush the dust off “YOU", then stand up, LEFT RIGHT LEFT. NEVER stop, “YOU” have many years left ahead of “YOU”
Never give up on yourself. Believe that “YOU” are as cunning and strong as I believe “YOU” can be. Every day “YOU” have RRms, every day “YOU” get up, start moving, start living. Continue writing your very own ms story. “YOU” are different to me, I am different to her, but every day we all travel further along our ms path.
Royce ( your ms writer)
one more step, one more day, over the next obstacle. We CAN live this ms life
