Post 584 Do you see 7 Jan 2020 - My MSAA Community

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Post 584 Do you see 7 Jan 2020

RoyceNewton profile image
8 Replies

"YOU" are not alone. "YOU" may not know us, "YOU" may never meet us, but we have your back as much as we can. We can not take away the pain, but this family can at least shed a tear with "YOU". We can make suggestions, offer advice. ms wants to make "YOU" think that "YOU" are alone. That nobody understands, what "YOU" have to go through. I say NO, NO NOT YOU. "YOU" are part of our family. Somebody attacked one of us over the weekend and what did "YOU" do? "YOU" read the comments and thought for yourself. This is not the person I know. He may have been like this long ago, but he has ms. He is not like that now. "YOU" saw that he had moved on with his life and stood with the person now. ms changes all of us, the mistakes we made in the past were mistakes, let them stay there. Learn from them. Use that textured cloth to open a jar. Have somebody else cut the vegetables for dinner. Better yet buy precut vegetables. They are far safer, my hands attest to that.

"YOU have changed, we all have changed Relapsing-Remitting ms (RRms) will never let us stand still to stagnate into a truly boring life. It may slow down, but the mental, psychological grip that it has on us will always be there. Family like us helps. "YOU" are not alone. "YOU" do not have to be in that cold dark corner by yourself. I will squash that spider with "YOU, kick away that snake. Take your hand and walk back out into the dim daylight, leave that dark dungeon. We do not get bright sunshine, we are still sick after all, but "YOU" need never feel that there is not a sister or brother out there who has your back. That will take your hand and stand beside "YOU" and keep the demons away.

You see, don't "YOU" "YOU" are not totally alone. Talk to us, tell us your fears, pains, agonies, maybe somebody can help. "YOU" do not have to tell the group, pm somebody that "YOU" are close to. I most certainly do, and it made me feel much better. I am sure that when Trigeminal Neuralgia shows its ugly face again, I will reach out for support. I will not struggle to do it alone. I will reach out to my vfamily and ask for help. I am not weak, I just know that a life with ms requires a family approach and WE ARE our own best ms family. I know where I will turn when I am attacked again by ms and "YOU" can as well.

Royce (the ms writer)

I will not be scared I will turn to you as you might turn to us

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RoyceNewton profile image
RoyceNewton
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8 Replies
Kenu profile image
Kenu

You are so right on about a wonderful site to be able to share our emotions and find love and understanding and that we are not alone. So many people don’t understand what we are going thru and think we look fine and should feel great, but as we all know that is not the true story. Besides the outside handicapped everyone can see we have the inner emotional pain inside. Thanks Royce you bring out our thoughts about who we are. 👍🙏☺️. Ken 🐾🐾

RoyceNewton profile image
RoyceNewton in reply to Kenu

remember rule #1 always, and live well

RoyceNewton profile image
RoyceNewton in reply to RoyceNewton

that is why I post, for my v family and that scared young ladyor bloke out there all alone

Juliew19673 profile image
Juliew19673

As is always said: "Perfect Advice" thanks Royce!

RoyceNewton profile image
RoyceNewton in reply to Juliew19673

that is why I post, for my v family and that scared young ladyor bloke out there all alone

carolek572 profile image
carolek572CommunityAmbassador

Thanks for being there, Royce, through tears and vSmiles :-D

twooldcrows profile image
twooldcrows

wow you can right all the right words to make anyone feel at home here ..i try i hope they can understand me but you know so much to say to make them feel so much better and to know we all are here for them....have a wonderful day and many more in this wonderful life...love and much happiness...

RoyceNewton profile image
RoyceNewton in reply to twooldcrows

20+ years of experience that is all I am far from different to us all

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