Post 639 Life a theme 28 Apr 2020

[RoyceNewton]

G’day family. Today in my ongoing efforts to give “YOU” something to think about and me some purpose I think I might discuss a theme, a purpose a reason for taking Disease-Modifying Therapy (DMT) and a reason for getting out of bed each and every day, to make an effort.

For me, Relapsing-Remitting ms (RRms) has gone on forever. 2/5ths of my life. Twenty plus years. I have to find a reason for going on, especially with no hope of it ever stopping and just going away. Giving me back all that it has taken, which is a lot. A goal and a theme is what I gave myself and I recommend that “YOU” do as well.

My theme changes, but Three Little Birds by Bob Marley seems to be pretty consistent. Other music drifts in and out ranging from Iron Maiden to Pink Floyd to Aram Katchurturiaan. Whatever, to brighten my thoughts and bring a smile tp my face. 3 Little Birds does consistently seem to be on the playlist of my life.In the weeks of extreme Trigeminal Neuralgia pain, the line “everything is going to be alright” really helps get through to the next minute. There is always the next minute. At 3 am in excreting pain I only have to make it to the next minute, the morning is just too far away. “YOU’ have to make it to the next minute, 20 30 40 years away is too much, just a minute “YOU” can do, then repeat. Dawn will come, the pain anger and misery will pass with the suns rays shining on your face. It may happen again the next night, but “YOU” survived one night why not another.

I feel perhaps dwelling on endless difficulties is hard, too much. Break things down to the smallest, bitesized morsels. I can not do 50 chirrups in a go, but I can do one, then two. Living with a lifelong chronic incurable disease is not a sprint. It is a very long marathon. It requires a theme, a guiding purpose to get through the nights. Find one that suits “YOU” right now. Then change it as need be. Life with RRms changes, your goal and theme may change as well.

It so much about keeping yourself mentally strong. Do not be tired and downhearted about what “YOU” have lost. Think of what “YOU” have got. “YOU” have a caring family. Perhaps not everybody, but I care, so that is at lest one. “YOU” are not alone, there is one person out there who cares and wishes “YOU” the best. Perhaps there are more, who knows.

Stay strong. Keep a smile on your face and your theme playing in your head. We all will live with this. I do not know how we got it or why, but i do know that we can do it. We will not be beaten and broken by a mystery disease, from who knows where.

Royce (your ms writer)

it is going to be alright, smile

[2littletime]

Thank you Royce...Always an inspiration!😊👍

[EddaCalderon]

...”every little thing”...YOU are alright, Royce. Thank you🙏🏼

[Violonchelo]

Thanks. I don’t feel in a right moment or place. The live without music is absurd, But I nurse of mine advsised me listen music, and I listened. With MS is important. But why? What happen to MS brain that after all is better thanks of music? What did happen to our brain that before MS the music was a normal thing and after with MS the music is necessary?

[RoyceNewton in reply to Violonchelo]

I think maybe listening to music helps the brain make different neural pathways, but thatt is just my thoughts.

[Violonchelo]

Thanks a Lot. Is only my question. I think the MR knows more.

I would like to know more about RM of MS. How the brain of MS changes. It is for me a mistery that in the future the people with MS only need a pill that have to buy at farmacy, as to buy champoo, so easily. Je je I have my dreams.

I think that MS is degenerative, the live is aswell.

Is true that when stress the leg must rest. Thanks. I accept It and each day I control more It.

I have each time more careful with myself.

Thanks.

[Violonchelo]

Afortunately I have luck with MS because Never think about It. Only in relation the steess, unfortunatelly. I have been living alone with my house and work before MS as a teacher. And when I was 30 years old, a strange thing happen , but I didn’t pay attention.

I follow with the work and my houses living alone. And after when I am retired living as I want, in my houses since 2009 to 2019, alone with my silence and writting and music, suddenly in 2020 I came bAck my parents house when they have problems of hearth and we relation is no well, and make me stress sometimes, when my ilness is well and MR also well and Rebif Also well , although inyecttions.

So, sonebody told me to go out of house some time and so have a little of autonomy and freedom not only to clean and clean at home.

And Maybe if the pandemia disappear one day, I will go a house in the NAture to be alone in total silence. My dreams...

I love my parents , but sometimes we have this moments so stressed.

[RoyceNewton in reply to Violonchelo]

go sit in the bush alone reconnect with the Earth and ju7st think. Very good idea, think and calm dfown, let the stress go away.

[Violonchelo in reply to RoyceNewton]

A quite village also , or near the sea, the sound of waves , the sound of the silence.

The sound of the sky, the brain full of silence or this sounds during all the day till the night arrives. Looking a bird flying, or looking the silence of a paper and pencil . My dreams .......

[Violonchelo]

My mother 2O17 cancer of breast, But now well. My father in March operation of heart, change of valvula, 3 bypass .....

And so, is very sad to have stress between us.

Hope that Royce and family is in a good moment with all and MS.

Thanks a lot .

[RoyceNewton in reply to Violonchelo]

Everything is good my sister, thankyou. You stay well

[Hidden]

Good one! Thanks Royce. Smiling.