Post 611 Words of wisdom 04 Mar 220 - My MSAA Community

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Post 611 Words of wisdom 04 Mar 220

RoyceNewton profile image
14 Replies

A wise young lady reminded me of something today, Words that “YOU” may want to think about and perhaps use in your life. I mentioned yesterday our societies connected, disconnectedness. We can all post something online at the drop of a hat. State our likes dislikes without a care in the world, but when was the last time that “YOU” really connected with another human being face to face. Asked them how they were, even perish the thought asked a second question and cared about the answer?

I have been guilty of being selfish, caring only about myself. I still am at times I am told. BUT I like to think that I do show some caring outside my immediate circle. In all honesty it makes me feel good. Whenever my struggles get hard to cope with and fear creeps into my thoughts, I ask myself how would XYZ feel if I was not there. Maybe they would not care, maybe it would hurt them a lot. Merely the fact that I did not turn to them. Touch base, let them know my difficulties. This illness effects us all differently, no two people are exactly alike so I am told. I will disagree a little. I bet that there was and still is somebody out there is scared like I was. Like sometimes I still am. Can I cope and survive another round of trigeminal neuralgia. Am I up to the challenge or will I break rule one? I can not say, I think I can but I am not sure.

We are a family, act like it, do not be alone with your questions, your fears. Yes, it is important to be selfish about your needs. “YOU” are not a floor mat for others to wipe their feet on. “YOU” are important and valuable. On the other hand, share that experience and wisdom with others. Talking with your children is a good start. Share what “YOU” have learned. Show that the courage is within us. Sometimes it takes a little wiggle to let it out. “YOU” can be that inspiration for somebody else because “YOU” choose to share something one day. Keep doing it and “YOU” might make it a habit and start to realize that it feels good, and feeling good is the way we like to be.

Royce (the ms writer)

be a better person than others think you can be.

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RoyceNewton profile image
RoyceNewton
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14 Replies
Morllyn profile image
Morllyn

You are so right about our being disconnected.🤭😬

RoyceNewton profile image
RoyceNewton in reply to Morllyn

We most certainly are, so I shall ask how are you today, really how are you?

Morllyn profile image
Morllyn in reply to RoyceNewton

I am hurting a bit today but it with get better. How about you Royce?

Thank you for asking!

RoyceNewton profile image
RoyceNewton in reply to Morllyn

My day is good thanks, nothing at all new or unusual. What kind of pain, where.

Morllyn profile image
Morllyn in reply to RoyceNewton

One of my first symptoms was that the outer edge of my left side, from my head to my toes, felt like it was buzzing (like when it goes to sleep) and ached like the flu. That has been there for over 40 years now. Sometimes it hurts like heck! My left side is weaker than the other.

RoyceNewton profile image
RoyceNewton in reply to Morllyn

does not sound like fun at all, did it ever get worked out what it was beyond ms?

Morllyn profile image
Morllyn in reply to RoyceNewton

The last specialist that I saw said that she didn’t think that it was MS but she couldn’t swear to it, the two before her said that it wasn’t MS. My primary doctor and I just say it’s MS until someone comes up with an alternative diagnosis. I have been tested for other things but nothing shows up.

I hope that you have a good night. ❤️

in reply to Morllyn

Oh no. I personally want a diagnosis. So I can try to heal or maintain

Morllyn profile image
Morllyn in reply to

I agree!

RoyceNewton profile image
RoyceNewton in reply to Morllyn

have they done an MRI?

Morllyn profile image
Morllyn in reply to RoyceNewton

Many MRI’s, and after 40 years there are only 3 or 4 lesions. One Neurologist, many years ago, said it was a brain tumor! Doctors today say that if it had been a brain tumor I would be dead by now. The spinal taps, 3 over the years, do not show what they would expect if I have MS. They ruled out Lupus and Lyme disease.

twooldcrows profile image
twooldcrows in reply to Morllyn

can't believe a doctor would ever say that to you ...wow..that is terrible ...i had the doctors check me for a tumor also for i had so much pain on one side of my head at times...they didn't see anything so here i am and still nothing is going on but this thing MS....i myself would try another doctor to try and get some results to the problem ...i myself wouldn't let them just shove it under the rug ..so sorry for all that you are going thru with no explanation for it ...have a great and wonderful day anyway ...good luck ...love and much happiness ...

RoyceNewton profile image
RoyceNewton in reply to Morllyn

seems like the standard too hard runaround. Hope you are doing well aither way

twooldcrows profile image
twooldcrows

you are able to always put to words on paper with such good help and suggestions for others to help them thru this MS ...sure would of helped me again thank you for thinking of all of the others fighting it ...love and much happiness...

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