Tysabri: I was curious if anyone who is on... - My MSAA Community

My MSAA Community

9,405 members21,193 posts

Tysabri

Happytra profile image
13 Replies

I was curious if anyone who is on tysabri MS infusion always gets worse a week before the infusion

Written by
Happytra profile image
Happytra
To view profiles and participate in discussions please or .
Read more about...
13 Replies
Kenu profile image
Kenu

When I was on Tysabri for seven years I had my infusion on Friday afternoon as I would be tired for couple days was my side effect. About 3-4 days before infusion I could tell it was close as I would get tired 😓 but no other side effects. Did really well while on Tysabri, but had to change due to cancer ♋️. Good Luck 👍 Ken 🐾🐾😉

Texandyroe profile image
Texandyroe

I won’t say I get worse, but I do get fatigued much quicker 3 or 4 days before my next infusion.

68degrees profile image
68degrees in reply toTexandyroe

Seems to happen to me to.

Amore55 profile image
Amore55

I was on Tysabri for 6+ years and always felt my battery running down about 4 days before my infusion, but it worked so well it was worth it! Good luck. Love, Kelly

68degrees profile image
68degrees in reply toAmore55

Ditto

DawnGochenour profile image
DawnGochenour

I've been on Tysabri since 2016 and I haven't missed an infusion, so I have enough medication in my system that I do not notice any real difference between infusions. Unless I wear myself out over doing it, or it's heat related. You know something where I have overexerted myself or didn't get enough rest. But it's not medication related. My MRI'S are looking good... so I will stay on it because it's definitely working for me !😊

Angelchef80 profile image
Angelchef80

It seems like 4-7 days before my infusion I get fatigued faster. I agree with Amore55, it seems like my battery is running on low needing to be recharged

68degrees profile image
68degrees in reply toAngelchef80

I can relate

Juleigh21 profile image
Juleigh21

I did 44 doses of tysabri. The last week was usually rough b/c my MS symptoms would start reappearing.

Lhallgrigsby profile image
Lhallgrigsby

I have been on tysabri for 10 years and yes I can feel the drain the last wee7 before infusion. am

themswire profile image
themswire

I was on Tysabri for 7 years. I can't remember noticing my MS getting worse before each infusion. If it did it certainly wasn't anything major.

sashaming1 profile image
sashaming1

I was on Tysabri for 9 years and never had that, or any, issue.

Good morning.

I was on tysabri for 7 yrs( had to come off d/t testing positive for JC virus.)

I never noticed anything different.

Good luck

Lisa

God bless❤

Not what you're looking for?

You may also like...

Tysabri

I have heard Tysabri doesn’t last the full month and you start to feel bad toward the end, before...
Disneycde profile image

Tysabri

I'm going to be getting to take tysabri next month and I wanted anybody's feedback on that infusion...
Leahdevora profile image

Tysabri

Ok went to my Tysabri infusion, my next dose is at the end of the month....its been about 2 weeks....
Bkboo profile image

Tysabri or Ocrevus?

My neurologist is back on the pushing me to change from Tysabri to Ocrevus...I still have...
vickisue55 profile image

Bloods pre-Tysabri

Had bloods today for checking I'm not JC positive the blood goes to Denmark apparently and...
janetb1968 profile image

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.