I was curious if anyone who is on tysabri MS infusion always gets worse a week before the infusion
Tysabri: I was curious if anyone who is on... - My MSAA Community
Tysabri
When I was on Tysabri for seven years I had my infusion on Friday afternoon as I would be tired for couple days was my side effect. About 3-4 days before infusion I could tell it was close as I would get tired 😓 but no other side effects. Did really well while on Tysabri, but had to change due to cancer ♋️. Good Luck 👍 Ken 🐾🐾😉
I won’t say I get worse, but I do get fatigued much quicker 3 or 4 days before my next infusion.
I was on Tysabri for 6+ years and always felt my battery running down about 4 days before my infusion, but it worked so well it was worth it! Good luck. Love, Kelly
I've been on Tysabri since 2016 and I haven't missed an infusion, so I have enough medication in my system that I do not notice any real difference between infusions. Unless I wear myself out over doing it, or it's heat related. You know something where I have overexerted myself or didn't get enough rest. But it's not medication related. My MRI'S are looking good... so I will stay on it because it's definitely working for me !😊
It seems like 4-7 days before my infusion I get fatigued faster. I agree with Amore55, it seems like my battery is running on low needing to be recharged
I did 44 doses of tysabri. The last week was usually rough b/c my MS symptoms would start reappearing.
I have been on tysabri for 10 years and yes I can feel the drain the last wee7 before infusion. am
I was on Tysabri for 7 years. I can't remember noticing my MS getting worse before each infusion. If it did it certainly wasn't anything major.
I was on Tysabri for 9 years and never had that, or any, issue.
Good morning.
I was on tysabri for 7 yrs( had to come off d/t testing positive for JC virus.)
I never noticed anything different.
Good luck
Lisa
God bless❤