Tysabri

[Disneycde]

I have heard Tysabri doesn’t last the full month and you start to feel bad toward the end, before your next infusion. What symptoms has anybody had as they wait for the next infusion?? Is it a return of symptoms that were gone right after the infusion? Thx all😊

[Royjr]

My Neurologist has always told me that Tysabri and other DMT’s are preventable medications. They’re really to keep you from having activity in your system and to keep you from having relapses and not to “help you feel better”. I know with me that by the third week after my Tysabri infusion I can tell it’s getting close to time for my next Infusion. I can feel the difference with my body and after the infusion I can feel the difference right away. I told my Neurologist about this and he said it might be the placebo effect. This is just my experience and I’ve talked to others who have said similar things. I’ve gone to treatment struggling to walk and leaving afterwards doing much better.

[Kenu]

I was on Tysabri for seven years and my only side effect was fatigue for couple days. Had them done on Friday and by Monday back to so called normal 😜. I seem to notice a day or two before that I was do ? All in all it worked great 👍Ken 🐾🐾

[Disneycde in reply to Kenu]

Thx for info👍. Why did u stop Tysabri ?? Did u ever have any issues with your veins due to the infusions??

[Kenu in reply to Disneycde]

No I have stage four throat cancer ♋️ and my white blood cells were off and had to stop over three years ago 🤬. My condition has improved so last appointment with neurologist ordered a brain MRI and cervical MRI for this Thursday and we will go from there? Good luck I did great on Tysabri 👍🙏😊 Ken 🐾🐾

[Disneycde in reply to Kenu]

Best to u as well👍