Bloods pre-Tysabri : Had bloods today for... - My MSAA Community

My MSAA Community

9,211 members20,960 posts

Bloods pre-Tysabri

janetb1968 profile image
15 Replies

Had bloods today for checking I'm not JC positive the blood goes to Denmark apparently and provisionally will start the infusion 8th March (my late mums birthday) xxxxx Got neuro physio tomorrow at the hospital I work at xxxx

Written by
janetb1968 profile image
janetb1968
To view profiles and participate in discussions please or .
Read more about...
15 Replies
greaterexp profile image
greaterexp

I'll be praying all goes well with the blood work results and for the infusion. Please let us know what you learn from the blood work and how your infusion goes.

Kenu profile image
Kenu

Good luck, I pray you will do fine 👍🙏🐾 Ken

janetb1968 profile image
janetb1968 in reply to Kenu

Thanks Kenu xxx

jimeka profile image
jimeka

janetb1968 pleased that things are moving along for you. I hope that the drug infusion works and slows down the progression. Let us know how you get on with the neuro physio . Blessings Jimeka 🦋

janetb1968 profile image
janetb1968 in reply to jimeka

Thanks jimeka xxxx hope ur feeling better after ur tumble bless u hun xxxx

Bobby59 profile image
Bobby59

Good morning, I have been on tysabri for over 3 years now and my last MRI showed no new lesions. I get tested every 4 months for the JC virus and so far so good. My best wishes to you.

Morllyn profile image
Morllyn

Hope the blood work comes back showing no JC janetb1968 . 💉👍

Daring_Greatly profile image
Daring_Greatly

I had mine done today as well 😉 Have you decided what you’ll do re: Tysabri if your results are + ? I’m not sure yet, will prob depend on where I fall on the scale.

janetb1968 profile image
janetb1968 in reply to Daring_Greatly

I haven't got a clue at the moment hun will have to see how things go im a bit apprehensive just want it to be OK xxxx

bxrmom profile image
bxrmom

janetb1968 Good luck, hope all goes well. Please keep us updated when you can!

Jessie

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Hope all goes well. Excited for you! Please keep us posted. 💕🌈🦋🙏

Kitsey profile image
Kitsey

Best of luck to you! Hope all goes smoothly.

Fancy1959 profile image
Fancy1959

Congratulations Janetb1968. Finding out your JC virus negative will sure take a lot of stress off of your mind. Tysabri can be a very effective therapy. First time I was on it it did wonders but being JC virus positive I didn't want to stay on it very long. Good luck and keep us informed of how everything goes! Fancy1959

janetb1968 profile image
janetb1968 in reply to Fancy1959

Thanks Fancy1959 for ur thoughts on Tysabri I've been told lots of times it's very effective. It's the waiting that's worrying me I just want to get started! Anyway I've never been too Denmark but my blood is lol 😁😁😁😁😁

Raingrrl profile image
Raingrrl

Hi janetb1968 ! I was on Tysabri for 5 years and JCV+ the whole time. Not ideal certainly but it kept me stable without side effects and I was reluctant to go off of it. Now I've been switched to Ocrevus because my neuro's other choice for me was Gilyena and is something I can't take.

Not what you're looking for?

You may also like...

Crazy week for me and the hubby...

This week started off fairly well, only for it to start going downhill from Wednesday. I woke up...

Brain Fog and Words

Do any of you have a very hard time with finding the exact word you want to use? You know, like the...

Heat and MS

I would like to know how Heat affects the MSers on this site. It can make me slow and sluggish but...

Restless Legs Syndrome

I have severe Restless Leg Syndrome and I don't know what to do anymore. I tell my MS doctor and...

Kesimpta Question

I alternate which leg I do my Kesimpta injection on, and this month (month 6) was my left leg's...