Unnumbered post I wish I could find w... - My MSAA Community

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Unnumbered post I wish I could find whats burning 6 Feb 2021

RoyceNewton profile image
13 Replies

Good morning, beloved ms family (I am referring to "YOU", everybody well today and coping with our sneaky tricksy foe, Relapsing-Remitting ms (RRms). I think things are back to something near normal. The last thing to do is to get all the Alexas working in the house. I do not like having to make my nightly excursion to the toilet(Bathroom) in the dark. I run into too many obstacles.

Something, somewhere in my office is burning, or maybe it is just my RRms. I wish it would stop, but I guess that is life with my RRms. Neuro (neurologist) visit went well a few days ago. Paid him lots of money to learn nothing new. The coffee on the way to his office was good, so that made it worthwhile She who must be obeyed has decided that we should attempt to get china virus (covid) shots. I am complaining loudly, but I suppose I have to get a needle, to keep the house and others safe. YES, I still hate needles but "YOU" do what "YOU" have to, sometimes. That is life.

Are "YOU" taking your Disease-Modifying Therapy(DMT)? Are "YOU" exercising, eating healthily? All these things are important and "YOU" should keep them up. The neighbour came by last night I ate only two Girl Scout cookies,, and my favourites ones as well. BUT, I only had too, sacrifice, sacrifice, I can do it, I can make an effort. I did needles for years, I did this to slow down the progression of my RRms, and "YOU" can as well, do what has to be done. Never give up, keep trying. Then try again.

Royce (your ms writer and Brother)

YOU are more than this illness, so much more. YOU can do this

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RoyceNewton profile image
RoyceNewton
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13 Replies
Sandydemop profile image
Sandydemop

Thanks Royce, you remind me of Winston Churchill who said "never never never give up."

RoyceNewton profile image
RoyceNewton in reply to Sandydemop

he most certainly did and neither should we

Newbie77 profile image
Newbie77

Thank you for your words, still coping with the news of possibly having ms.....still running tests...lots of decisions are coming my way and trying to be strong for my kids!

RoyceNewton profile image
RoyceNewton in reply to Newbie77

are you somewhere that you can get an MRI done and evoked potential?

Newbie77 profile image
Newbie77 in reply to RoyceNewton

yes I am getting an MRI but I have all the symptoms of ms and doctor pretty much said it was ms..just wanting to confirm with MRI.

RoyceNewton profile image
RoyceNewton in reply to Newbie77

if it is ms, relax it is a VERY survivable illness, it just takes a few changes

Newbie77 profile image
Newbie77 in reply to RoyceNewton

thank you for the words of wisdom, yes what worries me is not being able to enjoy my 6, 4 and 1 yr old childhood because of the illness.

hairbrain4 profile image
hairbrain4 in reply to Newbie77

Sorry to hear you may have MS. I tell everyone that feels sorry for me because I have MS is that I am thankful it's only MS, rather than something worse. MS is doable. I suggest you get on a Disease-Modifying Treatment as soon as possible if you are diagnosed with MS. There are several different good ones available now. Do some research, find out as much as you can about MS. It will help you to know what you can and shouldn't do that helps to keep flair-ups from happening.

Newbie77 profile image
Newbie77 in reply to hairbrain4

Thank you! yes you are right we just have to adapt.

twooldcrows profile image
twooldcrows

wow i am proud of you ..only two ...hahhhaha..have a wonderful day enjoying life...love and happiness....

rjoneslaw profile image
rjoneslaw

My neurologist and my care coordinator from my insurance told me I can get the vaccine I told no thank you people around me can get.

Newbie77 profile image
Newbie77 in reply to rjoneslaw

I got my first dose, if you don't mind me asking why not get it?

hairbrain4 profile image
hairbrain4

Thank's Royce. Being positive and not giving up or giving in is so important. And don't you love those Alexa's? We have several in our house too. My toes still search out furniture legs but not near as much when you can turn a light on first.😀

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