Unnumbered post, Their are other answe... - My MSAA Community

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Unnumbered post, Their are other answers 16 Feb 2020

RoyceNewton profile image
5 Replies

It might not be ms. There can be other answers. Do not jump at ms. Make sure "YOU" are tested thoroughly. I like quickly but thoroughly is very important. Ask for ms criteria today and what it was twenty years ago. Do "YOU" meet the criteria to become a member of this family or is something else playing games with your body.

Try not to be an expensive guinea pig, ask what your Doctor, what they are looking forr. State that "YOU" are thinking ms, but do not profess to be an expert. Unless "YOU" are a Neurologist, "YOU" probably are not an expert.

Royce (the ms writer)

Be patient this sometimes takes a long time. Take notes and keep records .Good luck no matter what your ailment is

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RoyceNewton profile image
RoyceNewton
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5 Replies
Morllyn profile image
Morllyn

When I was 26 a neurologist said he thought I had MS but had no proof. When I was in my early 30’s many neurologists said it was MS and in my early 40’s one said it was a glioma (brain tumor). After over 40 years 1 MS specialist says it isn’t MS (no thoughts or help in finding out what it is) and another MS specialist says that she doesn’t think it is MS (again, no help in finding out what it is if not MS). Since my case hasn’t gotten worse for many years, and no I have never taken any Disease modifying drugs, My PCP calls what I have “MS Glioma”. Hey, I can still walk, work in my yard some and I don’t fall over. I hate not knowing what I have but I have a pretty decent life.

RoyceNewton profile image
RoyceNewton in reply toMorllyn

sometimes I guess doctors can be difficut

Morllyn profile image
Morllyn in reply toRoyceNewton

I don’t blame them, they are human and can’t know everything. Most of the doctors that I have been to were very good doctors but my symptoms don’t really fit other diseases/conditions, and I have had so many types of tests over the years (with negative results) that they are just stumped. I have even been to psychologists and they each said that they thought I was psychologically stable and that it wasn’t psychosomatic.

As long as this thing is stable I will be okay.

RoyceNewton profile image
RoyceNewton in reply toMorllyn

Good luck either way and I wish you the best

Morllyn profile image
Morllyn in reply toRoyceNewton

Thank you.

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