Unnumbered post YOU and I are supposed to get worse 19 Feb 2021

[RoyceNewton]

Good morning beloved ms family. I hope everybody is as well as can be expected and it continues for "YOU"

As we all know I am a HUGE believer in Disease-Modifying Therapy (DMT)), It is strong medicine, there might be side effects. Learn to cope and avoid them. This is a serious long term illness. There is NO KNOWN cause or cure. "YOU" are encouraged to look, and if "YOU" find one please let me know. In my 20+ years, I have never, not taken a DMT. I have switched 3 times, because I dislike intensely needles, and because Interferon Beta 1 B is different from 1A and 1A does not like me.

I take Tecfidera now and write this standing at my desk. As best as I can tell, I still have Relapsing-remitting ms(RRMS). I have injection site scars on my skinny buttocks and often feel the hard injection site scarring lumps. BUT I still walk to the mailbox and walk to the bathroom after all these years.

ms is PROGRESSIVE, it is CHRONIC, DMT or not "YOU" will get worse, that is the nature of this illness. With DMT "YOU" are supposed to get worse slower. DMT keeps "YOU standing and walking longer. Nobody can say exactly how long longer is, but not taking something leaves "YOU" completely open to the possible ravages of this disease.

"YOU" make the choice to walk or possibly not. The odds were against me getting ms, yet I got it. I am now willing to make another bet against not taking a DMT. I do not feel lucky enough to win. What about "YOU"? It is your choice in the long run.

Royce (your ms writer and Brother)

there are services out there to help you finance iasl, and we are here to help emtionslly, do what is best for you

[twooldcrows]

very well said and ha life gives out side affects also and we just keep on keeping on...love and happiness...

[goatgal]

I'm going to take issue with "supposed to get worse." This sort of gloomy determinism isn't in every future.

[RoyceNewton in reply to goatgal]

As this is known to be a progressive disease and "YOU" do not progressively get better I Stand by getting worse. I think it could be a matter of interpretation in this case.

[goatgal in reply to RoyceNewton]

We'll just have to agree to disagree.

[RoyceNewton in reply to goatgal]

not a problem and I hope you are not hurt or upset, I accept your different point of view

[goatgal in reply to RoyceNewton]

We're both okay. Peace.

[carolek572 CommunityAmbassador]

Live your life as best that you can, Royce and do keep a smile on your face. Sure, you can cry but don't let that be your MO!

[hairbrain4]

I tend to agree with twooldcrows in that not everyone does always get worse. I for one am an exception. I got on a DMT when first diagnosed. I have not had any new lesions on my brain or signal chord. I do have flare ups now & then but nothing new & tbey are gone in 24 hrs. Ocrevus has taken away almost all of my symptoms & I take only 1 other med for MS symptoms. In 16 years my MS has not gotten any worse. I credit that to DMTs, not doing things that will exacerbate MS., & my faith in Jesus.On the other hand most people will experience symptoms worsening as time goes by despite doing everything possible to stop/slow the progression as you stated. Maybe in the future you might state that most people will show progression.