Sometimes it's not MS!

[SometimesCrazy]

I have been feeling that something is happening other than MS. I've driven my sister and husband crazy too😆. My husband says I believe you what can I do. My sister finally told me to give it a rest. My sister can't tell me that after all the weird borderline stuff I've had to listen to from her. I'm the grounded sister for Pete's sake (lol) I have bone spurs/stenosis and a bulging disc. These conditions mimic Ms. My neurologist is sending me to a spine surgeon so that we can chat. So I'm not as crazy as everyone thinks...this time. Xxoo

[SometimesCrazy]

I definitely have MS but these symptoms weren't mellowing and I finally had to grab my brain out of the cog fog and figure it out. My neurologist had my brain and neck scans but he was just looking for MS legions.

[Jesmcd2 CommunityAmbassador in reply to SometimesCrazy]

Sometimes we just have to fight and make them listen! So you did the right thing SometimesCrazy ! Have you used the My MSAA Manager? I think that it would help keep track of what's going on with you. And just your MS symptoms ☺️ I'm glad they are listening now! 🤗💕

J🌠👻

[carolek572 CommunityAmbassador]

Hey SometimesCrazy,

We are our own best advocate! Your neuro will always turn to his 'toolbelt' to diagnose and treat what ever ails you, but sometimes, it is not 'ms' related. So he/she will refer you to another specialist, but in order to do that, he/she will need to know something specific about the problem. My point is, keep a journal or notes of this problem and bring it to you next appointment/consult. Where it is, what it feels like, what were you doing before, what helps/what doesn't help. Any info that you can provide might be the thing that will get you going to the right dr, proper care for that problem, and relief that you seek.

Keep Smiling,

Carole

[greaterexp]

We have so many strange symptoms that it's hard to differentiate at times. I hope you get clear answers and a plan to fix things.

[Jazzihorsecat]

Yep, sometimescrazy, u have received great advice here, especially from our beloved Carole, 💗👍😍 we are our own advocates sometimes...Blessings & Prayers for ya!🌷---🌹💜Jazzy

[Jj12010]

No sometimes it isn’t MS. I’ve had surgery and C5 and C6 fusion I do seem to feel better am I normal not even close. my neurologist wasn’t very happy said that was very unnecessary for me to have done .Said the inflammation is part of the ms I went and did it anyway. You know my neck doesn’t hurt anymore. I believe if you feel something is wrong then take care of it I know a lot of people are caring but it is your body

[SometimesCrazy in reply to Jj12010]

Oh I replied to myself! LOL I hope that's MS. Look at my last post please.

[SometimesCrazy]

What type of inflammation were you having? OMG if I could have 50% less pain!!! I live in an area that has a severe lack of any type of doctors and try a specialist. I absolutely had to get super aggressive. Now the doctor(sss) are saying that's were I was going next...BS they were writing me off.