Post 582 Medicines ​ 3 Jan 2020 - My MSAA Community

My MSAA Community

8,916 members20,601 posts

Post 582 Medicines ​ 3 Jan 2020

RoyceNewton profile image
14 Replies

What are your expectations when "YOU" take a medicine? Any medicine not merely Disease-Modifying Therapy (DMT). Ask yourself again, this time really think about your answer. I take my medicines and with the exception of aspirins, my expectatio nare very low. I do not count on medicine doing very much, when it does, I am very happy, but when it does not I just shrug my shoulders. I believe I might be a little sceptical of the entire pharmaceutical industry. There is money to be made, lots of it, and we are a greedy species.

I will NEVER say to you do not take a medicine, especially DMT, what I will say is have realistic expectations. Know the facts about what "YOU" are taking. Think three times about what it can and can not do. I read of family members stopping DMT because of the needles. There are alternatives to needles, Tecfidera a twice-daily tablet, Ocrevus an infusion every six months. There are other alternatives, look for them. I did learn when I was taking Interferon Beta 1b that it was best to inject into a fatty part of my body. For years my Mother gave me a needle in the butt. I even had to ask my Uncle once to inject me. Not easy for him, I am sure, but I did not miss my shoot. Honestly, I much rather would have had my Aunty do it, that woman is gorgeous. My theory always was, I hate these needles but I will do them until an alternative comes along. I saw what happened to people who did not have these choices or stopped taking their DMT. I most certainly did not want to go there and after 20+ years I am yet to.

Make your treatment a multi-pronged effort. DM T alone will not make the next twenty, thirty, forty years a total cakewalk. Get some good nutrition into your lifestyle, some exercise some good healthy reading. War stories, fantasy and love stories are cool to read, but maybe something that stretches your mind every now and again is a good idea. Same goes for television and movies. Watch what will build "YOU" up, a little less of what tears "YOU" down. When "YOU" want to be torn down,think "I have a chronic progressive, incurable illness, I am going to live a long time with it". That should do it no need for depressing news.

About now, I will say something that may get me into trouble. "YOU" were warned. I am not any type of medical professional. What I say is for "YOU" to think about, NOT take as a treatment strategy. If "YOU" ignore me I will never k know, so what "YOU" do is up to YOU. DMT, there is research and "YOU" can ask lots of people about its effectiveness. "YOU" can take brain and spinal Magnetic Resonance Images (MRI) and count the lesions. Some other types of drugs there is less concrete proof, beyond lots of money being spent. I might suggest that instead of anti-depressants that "YOU" might engage with the world. Of course "YOU" are depressed "YOU" have a brain illness. I will say no more. I will just let "YOU" think about it. Human contact MAY be what "YOU" need. Do not mourn your physical losses, it happens. It is the disease. Remember your past fondly do not be bitter about what is no longer. Time passes, things change, merely a little differently for us.

Ryce (the ms writer)

Your life if "YOU" work at it can be good.

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
Read more about...

The ability to reply to this post has been turned off.

14 Replies
Kenu profile image
Kenu

Great post Royce 👍😊🙏 Ken 🐾🐾

RoyceNewton profile image
RoyceNewton in reply to Kenu

Thanks mate

RoyceNewton profile image
RoyceNewton

who are you, your facts are not correct

Midgey_Midge06 profile image
Midgey_Midge06

Do u have MS? Have u read the rules of this site?

Midgey_Midge06 profile image
Midgey_Midge06

Its a forum for people with MS. Its not a divorce court! And he is a valued member of this group!! This is not the place to take out ur aggressions

Midgey_Midge06 profile image
Midgey_Midge06

He has never made derogatory comments about anyone.

RoyceNewton profile image
RoyceNewton in reply to Midgey_Midge06

thanks, I did not think I had make any derogatory comments about my X. Now I know who you are, hello Cecelia Patricia Redmond. Happy Birthday by the way for 5 Dec. This is a site for people with ms. Administrators please block this woman from our site. She does not have ms, and I think is doing nothing but cause problems. Things that we do not need, thanks for helping me out Midge.

I

Midgey_Midge06 profile image
Midgey_Midge06 in reply to RoyceNewton

I got ur back Royce. I enjoy ur posts and u have never made derogatory comments about anyone. 😘😘😘

Midgey_Midge06 profile image
Midgey_Midge06

Do u yourself have MS?

RoyceNewton profile image
RoyceNewton in reply to Midgey_Midge06

no, to the best of my knowledge she did not have it.

kycmary profile image
kycmary in reply to RoyceNewton

I just read all these posts here Some one has her information WRONG!!! I have never seen anything that you posted that was derogatory to any body I have been on this site now about 3 & 1/2 years. I am getting angry I don't like any one picking on my brothers or sisters so put a clamp on it Cecelia Patricia Redmond!!!

RoyceNewton profile image
RoyceNewton in reply to kycmary

she is my x from 20 odd years ago. I have notified msAA and the people in our group, with luck she will be gone soon and we can get back to our illness

kycmary profile image
kycmary

Royce I love to read your writings they always give a different aspect of things & a different way to look at what ever is going on. For this I thank you.

RoyceNewton profile image
RoyceNewton in reply to kycmary

thank you very much

The ability to reply to this post has been turned off.

You may also like...

MRI yesterday 25 Jan 2020

gentle. Admittedly I did tell her that I am a total crybaby when it comes to needles, so she was...

Unnumbered post I have mentioned this before 12 Jan 2020

If after time \\"YOU\\" can not handle it then change but never stop taking DMT. I have taken...

unnumbered post Cured? 18 Jan 2020

attacking anybody, just saying think twice before you post something that might really upset an...

Post 525 Somebody is going to get upset 27 Sep 2019 2

to your doctor to ask for a new pill for some ache and pain, think, research first what else...

Unnumbered post Are you hurting 5 Jan 2020

There is no pill that \\"YOU\\" can take, there is no way that \\"YOU\\" can describe it to...