Hi Friends-does anyone have digestive problems caused by MS? Sorry for detail, but I’ve had more constipation problems last 5 months or so. I have my first colonoscopy exam this Friday...yay! Joke. And a HIDA test (recheck) on my gallbladder end of month. I have to take Miralax and Metamucil everyday now, which works great, in addition to eating more fiber which I try to do and I drink lots of water. If I don’t take MiraLax and Metamucil daily, I’m in trouble and start feeling really bloated, whether I eat more fiber or not. The Gastroenterologist doesn’t know if my digestive issues are due to MS yet and don’t know if he’ll figure this out by checking my intestines on Friday-maybe.
Could I please have some prayers or positive thoughts for these exams so I find out what’s going on? Much appreciated.
Thanks, NIKKI
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nicoly3467
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GL! My issues are not MS and sounds like the opposite of yours, where fiber ruins my life. I use to have clothing in 3 sizes to accommodate the unpredictable bloating and pain. 🤦♀️😖🥴
Magnesium works wonders for constipation, but if you’ve never tried it, it can easily cause diarrhea. Oxide and citrate are used to treat constipation for people who do not have motility issues as the cause. I hope yours checks out ok!
I think it’s just IBS, and it began around age 12 😔 I started buying myself OTC meds in high school for it and I didn’t know it wasn’t normal 🤣🤷♀️🤦♀️
Sorry to hear that, ty! I have it pretty well figured out now and do not take anything for it unless I eat something I know I shouldn’t. Xmas I will be making Sweet and sour purple cabbage and eating some bread, and hopefully I can be cool and eat a normal portion and not be up in pain at 3am 😬 Fake sugars are evil too, so I hope I don’t get a lot of keto versions of sweets as Xmas gifts 🤦♀️
Praying for you too. I have similar problems, and what I've found is that they can't usually tell if damage is from MS or something else. Some doctors will use the MS as an easy out.
About half of MS patients have digestive difficulties. The key I've found is to find a management system that works for you.
The prep is no fun, but do exactly as prescribed. The nice deep sleep you get during the process is something to look forward to. I've had it done many times. I have constipation issues too, but think many of my meds cause it. I use miralax, fiber, stool softener 2x's a day, and try to drink lots of water. My Urologist says to drink half your weight in pounds, in ounces of water each day. So my goal is 75 oz. each day, and I seldom hit that. Best wishes.
Hoping you get some answers and some help, Nikki! I do have digestive issues, and my Neurologist feels they are related to my MS..mine are the opposite of yours...to the point it can be socially awkward and embarrassing...my bowels and my bladder
I was told that yes MS can mess with how you digest. 😞 Constipation sucks. I tried metamucil but it gets to thick to drink. Yuck. I try to eat foods with fiber. At least I go to the bathroom every other day or every two days to poop now. I use to go like once a week, that was scary. I use to go everyday like two or three times a day before my diagnosis. I hope you get this issue fixed. 🙏♥️🌹
though many years and several GI tests no good answers. but miralax and apples are my faithful friends for past several years and seem to keep me working
My heart is with you. Your problems sound much like mine. I was born constipated. My earliest memories are of being forced to drink prune juice. I am also on the Miralax-fiber capsule regimen. The prep for the colonoscopy is the biggest challenge; the procedure is nothing. I hope your results are good. If everything is okay, having that test behind you (no pun intended) is a huge relief, even if it doesn’t answer the question of “why.”
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From MS Warrior Ellie 
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