It is a better day today. I am not sure it why, just is. Perhaps the gym today and tomorrow. Could it be that the sun is shining and everything is working properly? At least as well as it does, nothing worse at least. "YOU" and I are disabled to some extent so anything our normal is a good thing, very good. We do not need to be battling ms every day. Our aim is to work ourselves into a state of extreme boredom. This boredom is good. I like it.
How did I get here "YOU" may ask. Easy, it really is easy. I started taking Disease-Modifying Therapy (DMT) as soon as possible. Admittedly it took a few months. The x had to divorce me and send me back to Australia. After that, Grandmother and Mother gave me no choice, start on the available treatment immediately. I saw older people in wheelchairs who never had any treatment and decided as much as I HATE needles and the treatment was going to have side effects that I was never going to stop. I am uch more comfortable with wheelchairs and scooters now but see no reason why I should ever be in them permanently, and neither should "YOU". There is proven treatment available now. Suck it up, hate it, be upset about it, but start taking it, yesterday.
I understand that there is a few available today, go for the strongest. Ocrevus and another that starts with M. They are both infusions, waiting and seeing allows more damage to occur so the sooner that "OU" start the better. Of course do not believe me. "YOU" do not know me and I do not charge enough, I have to change that. Go to YouTube a Dr Alaron Boster MD of the Ohio ms Clinic. He is much better qualified than me, so "YOU" can listen to him.
I, on the other hand offer "YOU" some advice from experience, combined Forty years plus. Yes, she who must be obeyed also has Relapsing Remitting ms (RRms). Wear protective underwear, I like Depends, she gets some Girly brand that I never remember the name of. Amazon is a good source, no embarrassment and delivered to the house. Make friends with your local pharmacist/chemist, and they are a great source of advice. Do NOT believe everything that "YOU" read or hear. ms in all its forms is different today than it was twenty years ago. There are treatments. NO, not a cure but treatments. I had available one treatment, she who must be obeyed had three. Today "YOU" are spoiled for choice. Use it.
Well, "YOU" really have only two. The two most potent available. Yes, infusion, so no self-injecting or every other day stress. It is now time to start phase two of a long life with ms. Exercise, keep moving. If "YOU" do not use it "YOU" will lose it. I can think of a part of me that I do not use, and it is gone. I sometimes miss driving, as well. Get your mind out of the gutter there is not enough room for all of us in here,. This is a long illness. We will not die from it, so perhaps a hobby. Something to make your days pass. There is a lady here that does nice artwork, what an idea, create beauty. With all the ugliness around today, that is a good idea.
Diet, there are many types. Look the word up and give yourself a guide. No not the Japanese government or the bikini body kind. Something that will help "YOU" stay healthy and that "YOU" can afford. Swank ms diet, heart foundation, vegetarian come to mind. Decide what is best for "YOU". Accept that "YOU" will change. Accept change in most everything, even DMT. I have done three, never stopped, but I did change. Exercise at the gym I have changed many times. What may be great today may not work next week. I am flexible, "YOU" should be as well like this. This is not a stable illness, ms is ever-changing, continually demanding that "YOU" adapt. Our foundations are never stable, and we are standing on ever moving sand.
Learn to be flexible with your dreams, your future. Read how others coped. Not just ms, but with life. Their philosophies, their techniques, for getting through the day. Make yourself mentally strong, not just physically. Give yourself every tool that "YOU" possibly can to live this ms life as well as "YOU" possibly can. There is absolutely no need to surrender and give up. "YOU" my ms sibling are better than that, stronger than that. We all have moments of weakness, shed our tears, but we lift our heads, pull our shoulders back and keep on moving. Ever onward, always forward.
Royce( the ms writer)
one step at a time, one step
