What do I do NOW: What do I do next... - My MSAA Community

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What do I do NOW

RoyceNewton profile image
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What do I do next? Little history lesson here for “YOU” as a newly Diagnosed (newbie) person with Relapsing Remitting ms (RRms) Get on Disease Modifying Therapy (DMT) yesterday if not sooner. Feel free to ignore me and take the natural route and be cured like those tens of thousands who have been cured over the centuries. No disease activity on Magnetic Resonance Imaging (MRI) no disease anywhere. Bet “YOU” a dollar that “YOU” can not find one, but feel free to search, we all do, I am sure that I did once. I believe it is called denial and is a normal human trait, and being human, guess what I am sure I did it as well.

Okay so what do “YOU” do next. Disease Modifying Therapy (DMT) is what “YOU” DO. Then I highly recommend a real good cry and screaming at an inanimate object. Brick walls and igneous rocks are really good for this. Igneous is marble I believe, somebody correct me if I am wrong. This is a frustrating disease, which sometimes involves needles. I really really really dislike needles, but when they were my only option I did them every other day for years. Doing them was the only option. They are not a cure but they are proven to slow down disease progression. If in twenty years I still have RRms but walk up to pick my own coffin I am good. Actually if I roll up on a scooter and still pick it I might be good with that. I lived a very good life learned many new and different things, had incredible experiences and lived as best as I could with the circumstances that I had been dealt with.

What more can “YOU” ask for or want? I have RRms, I felt pain lost bodily function but U and I must still kept moving forward. I take my medicine without expecting miracles. I allow myself to be open to new opportunities and I lived. I did not like being a pin cushion but that is what there was so I did it. I will walk to my gravesite. I will stand beside it and say that I did everything I could to make my life one of strength resilience and perseverance against all my odds. RRms is an obstacle a rock in my life path, no more no less. I can I will do all that I can to keep moving forward.

Royce

an attitude for you to develop

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RoyceNewton
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carolek572 profile image
carolek572CommunityAmbassador

You have inspired me to post a quilt project that In have recently completed ~ the top only. I could have given up because I struggled with it. Instead I continued to work on it, with the encouragement of my daughter, and now it is done ~ the quilt top, that is. I have learned so much and I am happy that I didn't give up on it. :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

well done post a picture when you are done so we can all see

carolek572 profile image
carolek572CommunityAmbassador in reply to RoyceNewton

I did. My post is called ~ A Quilting 'ms'. Enjoy :-D

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