Something I noticed today: Something very... - My MSAA Community

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Something I noticed today

RoyceNewton profile image
12 Replies

Something very interesting I saw today on my phone. The gist of it was that Parkinson's Disease starts in the gut. Makes you wonder if that might be where ms starts. Interesting thought, is it not? I guess it leads back to what the ancient Greeks said. You are what you eat, or something like that. Thinking about that, and your exercise habits, might it be a good idea to pay some serious attention to. A healthy diet and a workout regime. Yes get a dictionary out and look up the meaning of diet and do not be so negative. I am referring to it as a way of life as opposed to weight loss. I have followed the Swank and Vegetarian and I am now told my habits today are more, but not exactly like Keto. I never would have known that but a nice waitress told me one morning at breakfast.

I think that it might be a good idea for “YOU”, now that “YOU” have got a handle on your ms that “YOU” look into other things that can be done to keep “YOU” healthy longer. “YOU” do remember that the goal is to live well and healthy into your Eighties and to have a smile on your face most of your days.

Look at your mental health and strength. Are “YOU” equipped and able to handle the obstacles that all forms of ms will throw in your path. There are a very few of us who will never have obstacles, for the majority of us, myself included, there will be obstacles, some huge ones. Prepare yourself, with prayer if “YOU” must, perhaps meditation or visualisation. I used to imagine my self as a rock cliff and the waves of pain bashing against me. Sometimes sitting on a beach as the waves hit the shore. Find your own tools and let them help “YOU” through. I think having many resources is smart, not every tool helps every time, and like the gold coins (good memories) that “YOU” have in your treasure vault the more the better off “YOU” will be when “YOU” need to draw on your strength.

This is a lonely illness. Be comfortable with yourself. It is very hard to describe to somebody the feelings of ms at 3am in the dark of night. Yes, it is a lonely disease, people just do not seem to understand, which is why “YOU” have to find and draw upon the strength that burns within “YOU”. Not me, not family, but within “YOU” always within “YOU” This is a very doable condition that only requires one thing and that is that “YOU” make a decision and that “YOU” DO your ms in whatever way it asks of “YOU. Having said that if for whatever reason more help is needed I strongly suggest that “YOU” do seek professional help. Never ever be afraid of asking for help. I understand that we are all meant to be strong and courageous, but if “YOU” are not strong enough, say that “YOU” can not so something and that “YOU” need help from somebody or something.

Incurable chronic illness coping skills are not normally taught in schools. At least not in mine years ago. So asking for help should not be regarded as any form of weakness or failure. It should be and “YOU” should regard it as the smart thing to do. Try your best, but if “YOU” can not do it ask for help.

This is a very confusing and frustrating path that we take. “YOU” lose nothing by asking for a lists assistance every now and again.

Fifty or Sixty years is a long time, learn what can be learnt and adapt to what “YOU” must. This is chronic, incurable, progressive. but very far from impossible.

Royce

ms a very long journey to be travelled do it with a smile on your face and a knowledge that “YOU CAN”

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RoyceNewton profile image
RoyceNewton
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12 Replies
Ali_B62 profile image
Ali_B62

I can and I will. Just have to convince the facial muscles without getting a rictus now - that would scare the dogs, 😂

RoyceNewton profile image
RoyceNewton in reply to Ali_B62

never scare the dogs

carolek572 profile image
carolek572CommunityAmbassador

Good advice, once again, Royce! Thank you for posting. :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

thank you

carolek572 profile image
carolek572CommunityAmbassador in reply to RoyceNewton

Go with your gut on this one :-D

IFwczs profile image
IFwczs

Royce, we should not underestimate our gut. This is the whole idea behind the theory that candida causes MS symptoms, or that every MS patient has candida overgrowth. Bought a book called"Gut"

amazon.com/Gut-Inside-Story...

and will keep everyone posted.

Just curious - what diet are you following now?

RoyceNewton profile image
RoyceNewton in reply to IFwczs

read it great book very interesting. Mum follows the gut book eating style so as I in her house and she does the cooking, gut diet style

IFwczs profile image
IFwczs in reply to RoyceNewton

I am on the candida diet. I don't think I can eliminate any more food... Seeing a doctor for candida overgrowth on Wednesday.

RoyceNewton profile image
RoyceNewton in reply to IFwczs

I will see mine when I get home in October. Funny that is what Mum says, if she eliminate any more food she will be surviving on air. I think just cut back on what you can, none of it will cure us and we do die eventually.

RoyceNewton profile image
RoyceNewton in reply to IFwczs

Mum says to eat some acidophilus yogurt for a week or two, plain no sweetener to help[ the gut biome

IFwczs profile image
IFwczs

I eliminated sugar, dairy (all including sheep and goat dairy), gluten, potatoes, corn and mushrooms, fruit except berries. This is the candida diet. So yogurt is not in the cards. Also the regular anti-inflammatory diet excludes dairy.

RoyceNewton profile image
RoyceNewton in reply to IFwczs

interesting, pity I like to eat a bunch of those things you eliminated

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