Talk to your spouse, your significant other, your Neuro, the list goes on. Talk, talk and when "YOU" are bored talk again.
How exactly is anybody to know anything if "YOU" do not talk. My education was very good and she who must be obeyed has Relapsing Remitting ms (RRms), but she does not know what it is like when Trigeminal Neuralgia comes to pay a nightly visit. What it is like to watch paramedics tone of voice change as they push "YOU" into the ambulance. She has a very vague idea of what it feels like to walk out of a public bathroom in your underwear holding your soiled pants. She has had RRms 23 years so she has a little idea but certainly not all.
I have this in my favour, "YOU" my friend may not. How is your spouse to know if "YOU" do not speak up, as clearly and concisely as "YOU" can?
Wedding vows "of for better or worse" generally do not mean what they used to. "YOU" have to have communication, open honest communication. Tell him "YOU" need more foreplay, wham bam thank you ma'am, it does not work like it used to, quickies are fun, but... What is happening to your body is strange, "YOU" even at times do not understand it. Get your Neurologist to explain the area of all the nerves in the body and how small a lesion is and how much damage that lesion can do.
Communicate communicate communicate Explain that medicine does not cure anything, it merely patches damage in your body. Learn what to expect together and be realistic. Sadly if they can not cope, let them go. It is hard but that may be the best thing for "YOU" longterm. The general population has a divorce rate I think in the 50th percentile (about 50 percent) these days, ours with RRms is even higher, know this, expect this and work your hardest to avoid it if that is what "YOU" want. Just communicate.
Royce
Communicating with "YOU" fir "YOU"
