having ocrevus infusion tues 16th at 7am

[pamgarner]

This is my 2nd full one, on the 1st and third I had a reaction of a instant scatchy throat,so they stop my meds and gave me more zyrtec and steriods(i am allergic to benedryl) it went away quickly and they started meds again.this time the phamracy that is supplying my meds called me and told me to start taking zyrtec,3 days out,she said this might head off side effects,but the meds are always there if I need them.keep your fingers crossed ,who wants to be there longer than you have to???

[rjoneslaw]

I hope it works

[pamgarner in reply to rjoneslaw]

me too

[Juleigh21]

Good luck! Please let us know how you do.

[pamgarner in reply to Juleigh21]

sure will thanks ,such a great group of folks

[greaterexp]

It sounds like you have good folks looking out for you!

[pamgarner in reply to greaterexp]

it is room of about 15 chairs in a circle,It is good to see you are not alone,but they are getting different treatments,cancer,organ transplant,aids and lots more,i do leave out of there feeling lucky I "just" have ms,there are some other ms patients .the staff do make you feel like you are the only and most important person there,I sure appreciate them

[carolek572 CommunityAmbassador]

So nice and comforting to know when you are the recipient of good health care. Let us know how your infusion went, and it sounds like you are in good hands.

[pamgarner in reply to carolek572]

hope everyone working there that day woke up on the right side of bed

[carolek572 CommunityAmbassador in reply to pamgarner]

Just bring your smile

[jimeka]

Blessings that all goes well. 🤗

[pamgarner in reply to jimeka]

thank you

[falalalala]

I hope everything goes well for you!

[pamgarner in reply to falalalala]

kitty better be smiling when I am finished!

[bxrmom]

Good luck on your infusion, hoping that taking the meds early will help with having no reaction. Keep us updated on how it goes.

Jessie

[pamgarner in reply to bxrmom]

I will do keep your fingers crossed

[IFwczs]

Good luck, and keep us posted. My 2nd full dose will be just two weeks after yours.

[pamgarner in reply to IFwczs]

i will,it is an adventure

[IFwczs in reply to pamgarner]

It will be a true adventure for me too since I don't want steroids this time. (My neuro may still kill this idea as I see him in 2 weeks, and he is deadly afraid of his patients' side effects.)

[pamgarner in reply to IFwczs]

the steroids dose on this treatment are enough to give me a shot of energy,I really love the way they make me feel for a few days,that goes to show you how individual we are with meds

[IFwczs in reply to pamgarner]

You are absolutely correct. Steroids give me a boost of energy too. But in the long term, they did me a lot of harm when they caused candida overgrowth - I am on antifungals and candida diet trying to get rid of it now.

[pamgarner in reply to IFwczs]

how did you connect them to steroids?

[IFwczs in reply to pamgarner]

More on the subject of steroids. I have had this eye condition for the past 40 years. When I had a flare up 20 years ago, I saw a new eye doctor. I knew nothing about steroids. I spoke with that doctor's patient in the waiting room. The guy was 50 and in a wheelchair. That doctor had put him on steroid pills to treat his eye. He said he was perfectly healthy when he started seeing the eye doctor. By the time I met him, he had diabetes, osteoporosis and half a dozen conditions I no longer remember. So when that doctor saw me, he wanted to put me on steroid pills too. I said to him that I would rather lose my eye than everything else and walked out.

Steroids are very dangerous in the long term (certainly not twice a year), and it is a well-known fact that they cause candida overgrowth.

[IFwczs]

I will write more later, but this is what I wrote to falalalala yesterday:

"I had steroid eye drops two years ago, and ever since I have not been able to walk without assistance. I have a rollator at home but literally have to wall-walk at work. I have found a new Integrative Medicine doctor - he has been a doctor as long as I have been alive and is friends with my neuro. He was the first doctor to say it was not my MS, since I have no new lesions, that it was candida overgrowth, and put me on antifungals. Just like in that book "Healing Multiple Sclerosis" by Ann Boroch."

[pamgarner in reply to IFwczs]

thanks for info,I just started reading "healing ms",so far so good