Another Round: I just learned since my... - My MSAA Community

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Another Round

mbrooks20 profile image
17 Replies

I just learned since my symptoms have not improved I will be doing another 5 days of IV Steroids. Yay, I thought when I got the news. The nurse said she will be out Friday or Monday to start it so I can have a few days off. My legs feel like jello or cooked spaghetti noodles, my left eye is still bad and hurts which causes migraines on that side of my head. My dog is still laying on my head every chance she gets not sure if she knows my head hurts or if she is still secretly trying to kill me. I have changed my diet so it is healthier and MS friendly or so it says in the book Healing Multiple Sclerosis. The only difference is that my speech seems to be affected this time. I am having trouble talking not too much but some and everyone around me noticed it and told me. Just thought I'd share. This time the doctor is giving me a taper off.

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mbrooks20
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17 Replies

I hope this next round helps.

mbrooks20 profile image
mbrooks20 in reply to

thank you

greaterexp profile image
greaterexp

I'm sorry about needing the extra round, but hope you finally get some needed relief from these symptoms.

mbrooks20 profile image
mbrooks20 in reply to greaterexp

thank you me too

rjoneslaw profile image
rjoneslaw

hope u get better

mbrooks20 profile image
mbrooks20 in reply to rjoneslaw

thank you

jsb0410 profile image
jsb0410

I hope that you feel better soon! Best wishes to you

mbrooks20 profile image
mbrooks20 in reply to jsb0410

thank you

Timeflies5 profile image
Timeflies5

So sorry mbrooks20...hopefully the next round will help...just hang in there and get rest...nice you have a furbabie for companionship. Blessings 🐾

mbrooks20 profile image
mbrooks20 in reply to Timeflies5

thank you

Beckylp54 profile image
Beckylp54

I pray the IV steriods start to help. When I had my severe exacerbation I had 6 days of high dose IV steriods gradually tappering them done to last dose. What a trip. It took a long time for my symptoms to settle down. Years and three DMTs later.

My prayers are for your symptoms to settle down and you improve in strength health talking and peaceful mind.

Blessings❤becky

Stay strong 💪

mbrooks20 profile image
mbrooks20 in reply to Beckylp54

thank you

4fishylady profile image
4fishylady

So sorry you are having these problems. The steroids are really rough on your body, but so is this exacerbation. Steroids leave me very weak for a long time, like a month. So be prepared to rest and wait for your full recovery. I'm praying for a full, swift, recovery.

mbrooks20 profile image
mbrooks20 in reply to 4fishylady

thank you

IFwczs profile image
IFwczs

I have changed my diet according to that book as well. Two days ago, I finally saw a doctor who diagnosed me with candida overgrowth and put me on antifungals. The diet alone doesn't do it. (I have been on that diet for two months, and I have lost 7 pounds, my husband has lost 10 pounds, I have more energy, bit it is not the cure.) I was starving candida, but am starving and killing it now. Plus remember - steroids cause candida. My steroids caused me not to be able to walk without assistance (and to be bed-ridden while I was on them).

mrsmike9 profile image
mrsmike9

It's hard to hit the "Like" button for your post but I did to show I care. How do you put up with that terrible taste in your mouth from the steroids? I sucked on peppermints for months afterwards because that's the only taste that would overcome that nasty one.

mbrooks20 profile image
mbrooks20 in reply to mrsmike9

cinnamon candies, peppermints, and I just recently heard Dr. Pepper helps but I haven't tried it yet

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