I have answers now to my back problems - My MSAA Community

My MSAA Community

8,967 members20,687 posts

I have answers now to my back problems

Amore55 profile image
42 Replies

I have the results of the CT scan. I’m afraid it is not good news. It’s not kidney stones. I have severe degenerative scoliosis. My spine has a severe curvature in it, which is causing me all of the pain, discomfort and suffering. The really GOOD news is that I can still get to the gym and I have permission to lift weights and hike and do other activities that I want to do. It was looking a bit iffy when my doctor thought it was my SI joint. My mom always said that she was a tough old bird and I am trying to keep her attitude! I’m a tough old bird too, just not nearly as old as she was when she said it. I’m truly suffering all the time, let’s add this to my MS pain and make life really fun, shall we? Plus it is affecting my legs so much, as the hips are compensating for the change in my back. The interesting thing is that you can’t see it just by looking at me. Love to all of you, Kelly

Written by
Amore55 profile image
Amore55
To view profiles and participate in discussions please or .
42 Replies
Kenu profile image
Kenu

Prayers are with you 👍🏼🙏🙏🙏

NanaCC profile image
NanaCC

wow that’s a lot. I just finished PT for my broken ankle one thing I learned is to keep the rest of me strong to help the ankle. Maybe PT could help you. Good luck stay tough

Sandydemop profile image
Sandydemop

Dear Kelly, so glad you have the relief to know what it is. stay strong and keep sharing it. Here for you. sending love and prayers. PS happy anniversary!

Amore55 profile image
Amore55 in reply to Sandydemop

Thanks Sandy. I keep all of the people here in mind when I’m hurting so much. I remind myself that everyone has pain of some kind in their life. For some people it’s emotional, others it is physical. It’s very helpful to me.

Sandydemop profile image
Sandydemop in reply to Amore55

for some of us it's both but at least love heals the emotional pain.

Amore55 profile image
Amore55 in reply to Sandydemop

Yes, that’s right. If only physical pain was healed by love that way also!

Sandydemop profile image
Sandydemop in reply to Amore55

YES!

mrsmike9 profile image
mrsmike9

Are they giving you a brace or anything??

Amore55 profile image
Amore55 in reply to mrsmike9

Not yet, but it will come to that eventually.

mrsmike9 profile image
mrsmike9 in reply to Amore55

My youngest had severe scoliosis. When we first adopted him he had to wear a full body brace to hold off the S shape from getting worse until he got older. It worked, until it progressed too much. He had his entire spine fused and his height went up by 4"! But his entire spine was involved, not just a section.

I sure wish you well and hope you get relief soon.

Turtlepie profile image
Turtlepie

Glad that you have an answer for what is going on sorry that you are in so much pain. Sending prayers

Amore55 profile image
Amore55 in reply to Turtlepie

Thank you. We need more Oliver pics!

Turtlepie profile image
Turtlepie in reply to Amore55

I am sorry I haven't post much lately but I am watching Oliver more now since the other grandma has left her husband and is working part time now

Shopping with grandma
Amore55 profile image
Amore55 in reply to Turtlepie

Thank you for the Oliver pictures! I’m enjoying them. I love to see anyone’s grandkids!

Turtlepie profile image
Turtlepie in reply to Amore55

You're welcome

twooldcrows profile image
twooldcrows

so glad you were able to get some answers to the pain ...lift those weights and go on hikes and get rid of the stones and i bet you will feel great ...keep on keeping on just like your mom told you how she was ....love and happiness...

Amore55 profile image
Amore55 in reply to twooldcrows

Thank you. You always cheer me up, it’s great to have your kind words! 🥰

jimeka profile image
jimeka

At least lifting weights will help you with your balance and may help with the curvature of your spine. 👍💜

Amore55 profile image
Amore55 in reply to jimeka

Yes, it will strengthen my core, but only surgery can possibly straighten my spine. If I have to do that at some point, I will.

Xvettech profile image
Xvettech

so happy you finally have answers! Glad you can still do everything you want! Keep pushing! Sorry you have to add this to the ms. I think the ms is more than enough, but apparently life disagrees 😂

Amore55 profile image
Amore55 in reply to Xvettech

I guess we deal with the cards we get! I’m glad it’s this and not something worse. Take care and I appreciate your comments!

Xvettech profile image
Xvettech in reply to Amore55

you take care too!

mrsmike profile image
mrsmike

You finally have an answer to all your pain. Stay strong. Thinking and praying for you.

Amore55 profile image
Amore55 in reply to mrsmike

Thank you. So nice to get so much love and support.

Elizt3 profile image
Elizt3

I’m sorry for all of your pain. Did you take any meds for your MS pain? How will the scoliosis be treated?

Amore55 profile image
Amore55 in reply to Elizt3

I have been taking hydromorphone for my back pain. Before that I had not been taking anything for my MS pain. It’s really strong stuff. I think eventually I will get a brace and surgery possibly. Thanks for your concern, I am so grateful.

Graip76 profile image
Graip76

You have such a wonderful attitude. I’m so sorry you have to go through this. Hopefully pt will help you. I just completed my 145th time at pt. It’s slow but when I look back it is amazing what has been accomplished. You ARE inmy prayers 🙏

Amore55 profile image
Amore55 in reply to Graip76

Thank you! I always want to try to stay positive, but sometimes it’s difficult to do.

sashaming1 profile image
sashaming1

I suspect and hope that there are things you can do to help reduce the effects and progression of degenerative scoliosis. Some info I got from online: Nonsurgical treatments for degenerative scoliosis include:

avoidance of activities that worsen symptoms

physical therapy, Pilates or yoga to strengthen muscles

moist heat or cold

acupuncture

spine manipulations

oral medication

injected medications

spineuniverse.com/condition...

Amore55 profile image
Amore55 in reply to sashaming1

Yes, I found those too. I have done yoga for about two years now. I’m grateful that it keeps me limber. The moist heat at pt helps so much!

hopeandgrace profile image
hopeandgrace

🙏🏼🙏🏼❤️

Amore55 profile image
Amore55 in reply to hopeandgrace

Many thanks 🙏

Brindisi1 profile image
Brindisi1

Dear Kelly.

I just saw a webinar with Dr. Loren Fishman on osteoporosis. He has 12 exercises thar stimulate the bones to renew themselves

.in course of talk he also has exercises for scoliosis. That help strengthen spine. I have some scoliosis & looked briefly. But super busy this week.

I will try to get webcast to send to you. Need to do on computer not phone. He may have some you tube on scoliosis, haven't looked up yet.

Best to you.

Amore55 profile image
Amore55 in reply to Brindisi1

Oh, thank you so much! Very helpful.

kdali profile image
kdali

I think your attitude will take you very far still 🙏

Amore55 profile image
Amore55 in reply to kdali

Thank you, sweetie. I try.

falalalala profile image
falalalala

🙏🏼

lbenmaor profile image
lbenmaor

Stay Strong! My prayers are going out to you.

Leslie

Mollyabigail profile image
Mollyabigail

I am sorry about your scoliosis. I have it too. We tough old birds have to stick together. Prayers for you, Kelly!

Tazmanian profile image
Tazmanian

Good luck

hairbrain4 profile image
hairbrain4

Sorry to hear that. Is there anything they can do to straighten it up to relieve the pain?🙏🙏🙏

309Ygi profile image
309Ygi

so happy you can still go to the gym and your out door fun . Keep on keeping on

You may also like...

Back pain, still no answer

between ms and back pain extensively. My neurologist said she doubts that it is because of the ms....

I have Good news! And a pic of one of my favorite beaches for your eyeballs to enjoy!

feeling and his response is” I’m HAPPy” ! He’s happy with my progress and where I’m at with my...

As if I don't have enough stress in my life...

I had been looking for a new neuro closer to where I live because, well, I think my current one is...

Got back my newest MRI results

I have lesions. They said it could be from my migraines or who knows. They said they don't know a...

Finally have answers