My Neuro said,: That Everytime I see him I... - My MSAA Community

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My Neuro said,

That Everytime I see him I'm a mystery. 😐 His words not mine. Then wanted to admit me. πŸ˜”πŸ€€ Wait, what? No! πŸ˜’

We compromised! I have to have MRI Fri and had more blood work done. See him again on Monday.

If I get worse, I will go to the ER and tell them to send me by helicopter🚁 😁

Thank you all for all your love and support!!!

I'm gonna need it! He messed with some of my meds also.πŸ˜” For a week!🀣

Much Love!! How is Everyone!!! πŸ’•πŸŒ  And Shark Week is Coming up!!!🦈🦈

Jes🌠🦈

Pic is one of NASA's of the Sun w/ flare! Pretty sure the big one is George! πŸ€£πŸ™ˆ

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Hey greaterexp πŸ€—πŸ’•πŸŒ  TY!

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Thanks for the updates! I've been wondering! By the way...did you name your flare "George?"

Get better quickly!

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Nope I named that really, really big lesion George!πŸ€£πŸ€£πŸ€—πŸ’•πŸŒ 

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I hope everything goes smoothly for you from here on out.

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Hi Jes sorry you are having problems. Stay out of the water!! those sharks don't want you WE DO!!

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So happy that your neurologist is aware of your problem(s) and is on call should things go sideways. Now I know why you love ❀️ him!

I am still sending you vHugs and vSmiles... :-D

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Not so sure he loves me, but! πŸ™ˆ I have animals to take care of! 😻🐢 And it'll be alright!πŸ€—πŸ’•πŸŒ πŸ¦ˆ

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Who knows, but I love you, Jesmcd2 Now, get better, and I am sending you lots of vHugs, and vSmiles your way! And it will be alright! :-D

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HOPING 4 THE BEST1111111111

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TY!! How did your infusion go? πŸ€—πŸ’•πŸŒ πŸ¦ˆ

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The 1st 1/2 went fine. I don't have the 2nd half til July 9. I was waiting to post about it after my 2nd half and my blood work I have to do a week after the 2nd half.

The blood work is to check my B cells and to see what's going with them since that is what O is supposed to deplete.

I have noticed some improvements but I'll wait to do an entire post later.

Thanks for asking.

Have a safe 4th

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Keep us updated, will be thinking about you!!

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Thank you! How are you doing????πŸ€—πŸ’•πŸŒ 

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Corner finally turned!!! I’m human again πŸŽ‰πŸŽ‰ Ty so much for asking 😘 I hope that you can join me on the feeling better side soon.

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Glad your Neuro was willing to compromise with you. Keep us updated when you can Jesmcd2

Jessie

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I will! β˜ΊοΈπŸ€—πŸ’• And if he didn't give me a choice, I would have maybe stayed.πŸ˜”πŸ¦ˆ

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Hope everything calms down soon!

Shark Week! YooHoo!🦈🦈🦈🦈🦈🦈🦈🦈🦈❀️

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Me to! πŸ€—πŸ’•πŸ¦ˆπŸ¦ˆπŸ¦ˆπŸŒ 

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Do you think it’s the Ocrevus? You’ve been rough since you had it, enjoy shark week. 🦈

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Not sure yet? And he is aware of that too! πŸ™ Just cause I'm stubborn, it's come to a head now? πŸ€—πŸ’•πŸ¦ˆπŸ«

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Good luck with everything! Sounds like you’re in good hands.

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TY! πŸ€—πŸ’•πŸŒ 

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I like the helicopter idea, believe me they are fun

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They are a lot of fun. My last ride I was still in uniform and carrying an m16.

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my last ride was in uniform but no weapon, crew training

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You had me at hello :-D

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I have never been in one. And they ship everyone out in one. So how come I can't??πŸ˜’πŸ˜‚ Except, I would be scared outta my mind!🀀🚁🀀 I'm scared of Farris wheels!πŸ™ˆπŸ€£πŸ€—πŸ’•πŸ¦ˆ

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at least you admit it, I have never been on one

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They scare the crap outta me Royce!!!πŸ™πŸ˜­πŸ˜­πŸ€—πŸ’•πŸŒ 

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ok I now know to avoid ferris wheels, never really applied to me

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Hope everything is better for you soon!

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Hope you're feeling better soon. Glad the neurologist was willing to compromise. Hospitals are incredibly boring when you're the patient.

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I don't know. It would be a getaway from my kid... Give me a book!!!

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πŸ€£πŸ˜‚ that's what I used to think! mrsmike9buffering but I wasn't going to stay over the 4th July wkend! No one wants to be there so I hear ya Peruzzot πŸ€—πŸ’•πŸ¦ˆ

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Maybe order up a room with a view of fireworks. We had one a couple years ago when my hubby was in hospital

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Prayed for you now...hope all goes well for you always, Jesmcd2!

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Stay out of the water. I am looking forward to Shark Week. My oldest has autism and is developmentally delayed so he loves sharks. That is the only time I get him to sit my be on the couch to watch tv other wise he stays in his room. I hate that this is happening to you. Keep us updated. Sending Prayers and support your way.

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That's wonderful that your son loves sharks! Tell him I said me too! ☺️ What's his favorite? Mine is the great white!

Thank you for everything! πŸ€—πŸ’•πŸ¦ˆ

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the great white but I think that's because of Jaws. When he was younger the teachers told me he would never count, write, or read so I would watch Jaws with him and we would count every time we saw the shark. That's how I taught him to read and write too is by using the things he loved.

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Hey that's awesome!! Anything to connect!!β˜ΊοΈπŸ€—πŸ’•πŸ¦ˆ

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I hear your annoyance and frustration, but it sounds like your neuro takes great interest in you and your well-being.

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He does! And it's a good thing! I know this! ☺️ But geeze, 1, I need notice! If you want me in the hospital! Why does he think I can just drop everything? I don't understand this concept! They did this to me when I had to have emergency back surgery. Told me to get right to the hospital. πŸ˜’ Said, um no.. I have to call you back in an hour. πŸ˜”πŸ˜‚ I had my babies to take care of. πŸ€—πŸ’•πŸ¦ˆ

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It sounds to me as if he needed to communicate the urgency of his directive; it also sounds to me as if he will understand that you have to make arrangements for your dear companion animals (as would I) before getting to the hospital admitting desk. In that, you and I are very alike. When I fell last September, after crawling back to the house, I called a friend to come secure the dogs before I called 911 for an ambulance. Molly and Maggie have to come first, and I would not have recovered so well if they had wandered out onto the road and been struck by cars. They are with me and I with them...and that's all there is to that! In my opinion, anyone who doesn't understand that is not fully human. If you were worried and tense about your furbabies, treatments in the hospital might not work as well as otherwise, and your recovery would be diminished.

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So right about that!! Will be a bit more prepared Mon. Sorta.πŸ˜‚πŸ€—πŸ’•πŸ¦ˆ

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Well you know how significant you are to this community, so we will all be there with you in virtual reality!

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uurrgghhh! just 1 foot in front of the other.sorry you are where you are just for now.remember ms warrior, not ms worrier.

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Not so much worried, as just as fix it! β˜ΊοΈπŸ˜‚πŸ€—πŸ’•πŸ¦ˆ

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Fatigue and cog decline do come with the m.s., but, you mentioned the meds. Meds can really have a negative affect on your m.s. Everyone is affected a bit differently, just as m.s. affects everyone differently. I know of lots of examples of medication negative effects. And, even just starting and stopping them can create problems too. So sorry. Hope the docs get it straightened out sooner than later. At this point I'd be trying to get everything charted out so maybe a new doctor you may see in the hospital can see the whole picture without having to rely on your other doctors for the info. Start by listing all your meds, as well as the history and time line of other meds you were on. Read all that fine print on your meds, past and present. Then try and look for the obvious hidden in the fine print. You might get lucky, but, what you are not likely to find is what your specific cocktail of meds can do.... Just what you don't want to have to even attempt feeling like you do... Okay, I have 2 really smart kids medically. Neither is a doctor, but either can hold one really in depth conversations with their doctors about their meds, such that their doctors usually walk away having to do more research, then following up with another appointment to even comment. Both have been on lots of meds for many years, and still are. And yes, they happen to attract all the unusual side effects of their meds. But, it took a whole lot of work on their part, along with their doctors, to come up with solutions that worked for them. It took many years, but they got it all worked out. And in their case, it took a group effort. Each with their many doctors. But remember, someone's got to be the coach of your team. Sometimes, it has to be you. And sometimes,...you have to just get lucky and stumble upon a doctor who saw this once before, and knows to do xyz.

Hang in there!

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Here is a HUG!

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πŸ€—πŸ’•πŸ¦ˆ TY πŸ€—

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Good luck with finding a balance. prayers for you!

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TY!πŸ€—πŸ’•πŸŒ 

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I'm sorry you are dealing with so much. You are in my prayers. Stay strong and positive vibes sending your way.

God's blessings❀becky

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You stay strong and positive also! πŸ€—πŸ’•πŸŒ 

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Prayers for healing. Have a lot of people caring for you

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TY!πŸ€—πŸ’•πŸŒ 

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Oh, my goodness, Jes! Please keep us in the loop!

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Will do!! πŸ€—πŸ’•πŸ¦ˆ

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I get blood samples taken for Lemtrada (monthly) & previously samples because of Tysabri (former med) because of the potential side-effects of the med. I don't know what regular bloodwork needs to be done for MS. May want to find out "Why." Maybe for Vitamin D, or other, levels.

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They took Alot of blood before I left! So will find out Mon? πŸ€—πŸ’•πŸŒ 

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I hope everything works out for you.

Warm Wishes,

Leslie

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TY! πŸ€—πŸ’•πŸŒ 

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You're Welcome!

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Sending positive thoughts for feeling better very soon.

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πŸ€—πŸ’•πŸŒ 

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