How do you really feel?

[Jesmcd2]

I want to hear! How are you? How is your MS? Is it doing ok for you? Well as good as it can be? 😔 🙃🤗💕🌠

[falalalala]

I'm doing well, thanks-getting things done and it's about time!

As for MS, it lets me know it's there and I work around it the best I can.

I hope all is well with you.

[Jesmcd2 CommunityAmbassador in reply to falalalala]

I hear ya! 🤗💕🌠

[starlight5 in reply to falalalala]

Good post,

You're right, people don't want to hear we are getting worse. I'm sure it makes them sad and they can't really understand, even when we try to explain. That's why this site is so helpful, to share our symptoms/feelings with those who truly get it.

I am always aware of my ms, am now spms and there is no getting better. Just trying to slow it down and maintain where I'm at.

[carolek572 CommunityAmbassador]

I have my good and not so good days, Jesmcd2 I manage with the help of my friends!

[rjoneslaw]

i'm doing well.

yesterday was a good day for me i have to admit. it seemed like every monday when I got up to get ready to go to pt i was falling or in my case dropping down to the floor struggling to get up and on top of that i would become dizzy and have to pee every five min before i could make it out the door

[kdali]

I’m fine 🙃🤣 What about you?

[greaterexp in reply to kdali]

😂

[kdali in reply to greaterexp]

🥰🤣🙃

[Jesmcd2 CommunityAmbassador in reply to kdali]

😔😜

[hairbrain4]

The past two months I have felt miserable with my thyroid tanking and Ocrevus running out. But I'm on the upside again. My thyroid level is coming back up and I get my Ocrevus infusion tomorrow. I'm praying I get back "normal" within a week or so. And if it doesn't I will just adjust like I have so many times before. But I am staying positive so I don't have to worry about making any more adjustments!

[Jer29-11]

I’ve been so fatigued! I’ve been taking afternoon naps almost daily. Had an appointment with my Neuro yesterday and he said he’s incredibly pleased with where I’m at right now, so...🤷‍♀️. I still just feel a bit off. Like someone else said I can just feel the MS. With that being said, I’m functioning at a very high level (family, work, diet, exercise) and I’m very happy about that!!! How are you?

[erash]

“ It’s finally getting better” 🤣

If I keep saying that, will it come true?

[kdali in reply to erash]

Ty! I laughed at it too and then wondered if it was just my terrible sense of humor 🙃

[JSSimp]

It’s days I have some energy and days I lack. Altogether I’m thanking God through it all because it could be worse. I’m still able to walk without assistance and do certain things and complete them. Praying for all of us

[Goldilockssearching]

My neuro NP & I concluded that as long as there are more good or ok days than bad that we’ll say things are all right 😉

[Jesmcd2 CommunityAmbassador in reply to Goldilockssearching]

Well I guess that's a good thing right?🤣 🤗💕🌠

[Cutefreckles72]

Everyday is a good day especially when you are able to see another day. Ten years ago, I was diagnosed with colon cancer. Two months ago, My Dr. told me I was CANCER FREE. So MS is just another issue I am dealing with, but I am doing Great. MS will not get me down. I keep moving. Can't stop.

[Jesmcd2 CommunityAmbassador in reply to Cutefreckles72]

Congrats on being cancer free Cutefreckles72 🎉🎉 great attitude! 🤗💕🌠

[Cutefreckles72 in reply to Jesmcd2]

Thank you so much. Keep moving.

[Tazmanian]

I'm feeling ok but now that it's getting hot I'm starting to feel it

[Jesmcd2 CommunityAmbassador in reply to Tazmanian]

Cooling vests! Tazmanian !!! 🤗💕🌠

[Tazmanian in reply to Jesmcd2]

I have a cooling vest ,a cool tie ,a cool hat and ankle sleeves

[mm1527mm]

Felt a lot less fatigue this week compared to the last few weeks. Keeping busy with work and the children which helps keep my mind off the ms. Glad for another day. Hope you are doing well.

[Comoesta]

Interesting responses and many of which I might have made over the last 4 or 5 years. But, this year, NOT so much. It appears not much can be done after there are major demyelinations events affecting balance, ability to walk, ability to use an increasingly disappointing brain, and, most importantly, the increasing loss of energy. = terrible fatigue.

My life is now so different in a physically degraded way it is difficult to assess rationally. When I feel more energetic and capable of actually thinking rationally, I plan to write a short synopsis of this past year and what I look forward to....as soon as I figure out what that is in a promoting life way.

Thank you all for writing such thoughtful notes. I love reading what you have to say and what you think about relating it to your lives .

Nemaste, Bodega.

[6092177588]

I love your message. Have many concerns. Medical field, new symptoms, having to do all the work. Today I just cry and not sure why. Worried about today and tomorrow. Thanks for your help.

[6092177588]

Not sure if you got my email. Frustrating about medical, crying and worried about today and tomorrow. Thanks for your support

[6092177588]

I have tried but not sure if you have received. Crying, frustrating with medical, new symptoms, and future.

[Jesmcd2 CommunityAmbassador in reply to 6092177588]

Just sent you a message 6092177588 I hope you are alright! 🤗. Crying is always ok! 🤗💕🌠