As some of you may remember I saw a new neuro on Feb. 26. It was NOT a good experience. I went in having a very typical bad day, using a walker, hunched over, shuffling along. I failed badly the basic neuro tests, touching my finger to my nose, trying to stand on one leg, heel toe walking, etc. He ordered a full spine, neck and brain mri. Said he did not know if I even had ms due to the fact he cannot get my original diagnosis because that practice was sold to a scoundrel who absconded with all the investors money, went to Brazil, leaving patients with no records. Have tried judges orders, nothing, it is locked tight. This was 3-4 years ago. The authorities caught him and he rots in prison. This neuro had no bedside manner! He was an a**. He told me to push against his pressure on my legs and arms and I had enough and said, “sir, I simply cannot”. He wants to send me to KU in Kansas City for a new lumbar puncture! Absolutely not. I had such a definitive diagnosis, as well as the records of the second neuro I saw after my diagnosis. It shows clearly all the different ms meds I have had over the last 20 years. What a jerk.
Just venting. One thing I have learned is no one can be my advocate except me! Love and a safety to all, Kelly