I make mistakes, some bigger than others but nevertheless I make mistakes. I guess I will always make them one way or the other. There will be things that I do not understand and words that totally confuse me. Not being a Einstein style genius, that is an excellent generalist able to have vast knowledge in lots of things, I just get to have a general knowledge on a few things, just like most everybody else. I make mistakes just like “YOU” do. Making mistakes is okay , even to be expected with our condition. So it is really not a big deal, do not be hurt and angry with yourself, frustrated and annoyed maybe. Not because “YOU” can not do something that “YOU” once could. Step back look at yourself and perhaps think, “hmm I guess I need to find a new way to do that” Rome was not built in a day, there were several Apollo missions before we got to the moon. My friend if those really smart people could make mistakes so can “YOU”
Wether this is new to “YOU” or old hat. It constantly changes, that is the nature of our illness. What worked yesterday may not work today, but will be fine tomorrow or never work again. Often challenging to accept, but a challenge nonetheless. If it was not a challenge what could we learn from it? Learning from this life is the purpose of it isn’t it? Learn what we can cope with, a lot. Learn how to constantly adapt. Be like silly putty travelling along a pipe. Changing direction whenever we come to an obstacle to hard to go over or squeeze past. Constantly adapting and changing. Make change your life. The old goal of something steady and never changing is not for us. Learn this, accept this and be at ease with it. A fluid life with a simply long term goal of to live this life well (whatever that is) may be for you. Your longterm goal may be to travel down the aisle at your childs wedding, or something like that.
Do not expect to understand, or have others understand. Be comfortable with yourself and just enjoy the experience as best “YOU” can. Try not to put negative values on disappointments, look at them as learning experiences. Everything can and should be a learning experience. Do “you” remember the bamboo? Bending ,bending in the storm but never breaking. The storm passes and the bamboo stands again. Sometimes not as straight as before, but never broken and shattered. Be like this, flexible and always willing to change, to adapt.
Yes, “YOU” can be a warrior, or perhaps a juggler. Juggling each ms event as “YOU” can always maintaining your long term goals and learning what “YOU” can and cannot do. Remember your ms is different to other peoples. What may be great for them may just be okay for “YOU” There are no cures, no easy answers just a very long path for all of us to travel along. Be kind to yourself and travel easily.
Royce
A life with ms is possible