Firstly let's get this straight - My MSAA Community

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Firstly let's get this straight

RoyceNewton profile image
6 Replies

Bare or bear.

With a big smile on my face and a hearty chuckle. I believe I was wrong further analysis after you mentioned it lead to more research. Always good fun and something we should do a lot of being people with multiple sclerosis(ms). Never believe your first source. Use a second or third, get comfortable with your answer. I have had a terrible dislike of needles. I did my research and found the best way to treat my Relapsing Remitting ms (RRms) back in the day was via injections. I added my numbers, made a pretty colourful chart and made a decision. I believed what I was told, but researched it and understood it until I was comfortable with my decision.

Once started I did not stop until something better came along, Tecfidera a tablet. That was many years ago and I only miss a tablet when I travel to Australia and get mixed up by timezones.

If I am wrong I will research and fix it. Nobody gives "YOU" the perfect answer for ms or your ms in particular. A doctors office is a practice, not a perfect exact answer facility, no matter how many letters he has after his name. Many times along this journey "YOU, my friend are going to have to make decisions on treatment approaches. What "YOU" are and are not willing to do or take.? Be educated be firm, stand your ground. Fight a battle if "YOU" need to. Do not just let ms in all its forms steamroller over "YOU", reverse back then flatten "YOU" some more.

As I have said many times and will again this is a "DOABLE" illness it only requires "YOU" to make a firm decision to start doing it.

Royce

she who must be obeyed would love to see me admitting I was wrong. In writing no less, something I very rarely do

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RoyceNewton
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6 Replies
falalalala profile image
falalalala

This is the approach my hub and I take regarding MS.So far, so good.:)

carolek572 profile image
carolek572CommunityAmbassador

I thank you ~ whether you're right, wrong, left, up, down, or sideways, my friend. Your posts always make me stop, ponder, reflect, question. For that, I thank you. :-D

-j-- profile image
-j--

Well said RoyceNewton.

RoyceNewton profile image
RoyceNewton in reply to-j--

just Royce is fine

4fishylady profile image
4fishylady

I agree! We have to be our own "best advocate" regardless of what we are told. We need to know our own bodies, symptoms, and keep abreast of all info coming at us. I have had MS diagnosis for much less time than you, but so far Tecfidera seems, for me, to be on target for my issues. I am currently on Pred. for a relapse, but only the 2nd or 3rd in 4 years of taking Tecfidera. I'm pleased with just 2 pills a day for DMT. Hoping to come clear of the "fog" very soon, and be able to drive again. My Neuro had said that if it lessens your number of relapses, then aren't you ahead of the game?

Also, I read the recently put up articles on magnesium deficiencies in our diets, an am adding more of that to my supplements. I have read many times that it helps the body to repair all kinds damages to our systems. But, take special care of the times you take it, since it can interact with some of our meds, like thyroid meds and gabapentin. It may need to be taken 4 hours apart from them to be effective and not disrupt those meds. Blessings to all!

RoyceNewton profile image
RoyceNewton

make an excuse to get blood tested for your Magnesium levels, so you can make sure it is doing something and the Magnesium you are taking is actually Magnesium at the dosage stated. I like puritans pride as a source for supplements.

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