They say that no two Relapsing Remitting ms (RRms) people are exactly alike. I can vouch for that as mine is nothing like she who must be obeyed illness and hers nothing like mine. We are very close, but sometimes the understanding is just not there. We have found one solution to this is to ask questions, lots of them. Back in my school days they never explained to me the wide range of variables in this or any other illness. I asked questions, some several times as the first or second answer may not have made sense to me. Back in the day disease-modifying therapy (DMT) was just starting so the knowledge base was not quite there yet. So perish the thought I needed to go to the library (remember those) and do my research online, but I never stopped asking questions. One doctor may say one thing, but a second opinion is always useful. There is a reason why it is called a medical practice, and I firmly believe that every answer I need can not be given by just one source, so I ask questions no matter how silly they may be. Just like at the gym, I do not know every single exercise, so I ask questions.
Never stop asking questions, do not be afraid of the answers. Every scary answer that somebody tells "YOU" may not be applicable. "YOU" may take the perfect medicine for your particular illness. Do the right thing exercise and eating wise and "YOU" may find your RRms inconvenient but not debilitating.
In the last twenty years, the medical profession has found all sorts of treatments that can make your ms journey easier. Twenty years ago I was told that I would be in a wheelchair within twelve months, Today I went to the gym and moved several thousand pounds of weight, altogether of course not in one go. So "YOU" do see, anybody can tell "YOU" everything, but "YOU " decide where this ms life will lead "YOU". Be it to the dark, cold corner where "YOU" spend the day crying or to a much brighter garden where "YOU" stand looking at the world, and joining in when "YOU" want to.
We all have an incurable chronic condition. How we survive with it is our choice. "YOU" can not choose to be rid of it and cured. "YOU" have to live with it, but how well "YOU" live with it is your choice. Choose well ask lots of questions and live YOUR BEST ms life.
Royce
your best is your best, not anybody elses, so live your best
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RoyceNewton
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We have to be our own doctors. At the last visit, my neuro asked me what I think what kind of MS I have. (He initially diagnosed me with RRMS but I am pretty sure I have progressive.) At least they diagnosed you right away. I had to see dozens of doctors who were saying there was nothing wrong with me for years.
All you can do is do your best. I think I'm doing quite well, having come back from the "walking dead" not on drugs, did them all, even doc's told me to stop them because they saw I had become intolerant of them, and living with the flue like symptoms all but a half day every 3 days was not a life, even by the standards of a "drug pusher" (my neurologist). My other neurologist tole me about Dr. Wahls, which opened pandora's box to nutrition. It has made all the difference in the world for me. No I'm anything but cured, but I have a live again. I'm on not one script. (Oh, no, is this site affiliated with any.....? I may be barred from it?) I paid my dues to drugs. I have a full drawer of my old script bottles, injection stuff.... I really, really, enjoy life, even with a GPS bladder, memory like a gold fish, sorry goldfish, mine's getting better than yours again, finally, I've done them all (not really, just enough to be awarded the ???, having had so many including the obscure xxxx) ....
Try it, you'll like it? (Nutrition using real food). Just saw this morning on the news that people who eat highly processed food live many years less than those who don't. (MS not any part of that study). We only get one life, make the best of it!!! P.S., I never cry over any of it, as I was LUCKY enough to have a room mate much worse than I at the moment of my diagnosis. His chest was literally split open after quadruple by pass surgery, developed a massive infection, and they kept his chest open and only covered with clean sheets so they could attack the infection directly... as he laid in the bed beside me in that "sterile room" I was in while they tried to kill off my immune system. (We both survived! and walked out about the same time!) BUT, it put my diagnosis
into perspective from the start! You asked, I gave you, my "success story". It's the best I can offer. Not bad though....
pretty good if you ask me, I had a friend with a similar chest issue. He turned his car into a squashed coke can with him in it. Caught Golden Staph and has the scars to show for it. Glad to hear you are doing well, yes you are correct about nutrition.
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