G’day my ms family. Today on the surface of the sun it is hot. 110f plus, no breeze, no cloud, just hot. In the best of Ozzie (Australian slang) bloody hot. There are more colorful terms, but I will not go into them.
Okay, “YOU” are searching for an answer as to what is wrong with “YOU”. Your Doctor has said ms and “yOU” are not sure what that means to YOU. Not altogether an easy question to answer. ms involves the Central Nervous System (CNS), and seriously that is a very big system running throughout your whole body. ms can attack anywhere within that system. It seems to attack the same general area multiple times completely unrelated to each other. No medical professional has ever explained why this is so, it just is. A lot of ma just is. A shrug of the shoulders and a wry smile and it just is, ms. This has eased my questions a lot over 20+ years. do not have to know the exact answer. I have learned to accept that there are things I do not know and nobody can tell me. I find it much easier that way and “YOU” might as well. Over my years I have done many many tests. I still get my annual Magnetic Resonance Image (MRI) done to check on disease progress. I get my annual blood tests, I have found a genius needle man. So though it still scares me, I can cope. Going into the tube I have learned to take a sedative so I do not move. (valium 5mg) is my drug of choice. There are so many different things that I have learned to do and learned to accept. But first I took my initial tests and kept records. t may be many different things that mimic ms, it may not be ms. I would hope that “YOU” get a definitive answer, and a second confirming opinion. That “YOU” do not have to wait forever. I was lucky, my general practitioner has a sister with ms so she gave me the first test and sent me to a neurologist. I told him ms was suspected and he tested for that straight away, I had ms. I went to the second doctor and told him I had ms, he tested and it was confirmed, the third doctor did the same with the same result. The fourth and final doctor took my accumulated information and said yes and continued treatment. As “YOU” can tell I had many tests by many different doctors. They all got the same result, though admittedly I dd suggest a little what the result would be. I researched ms, researched my symptoms and kept my results whenever I could.
I never let myself be a naive guinea pig. I took control of my Diagnosis (Dx) as much as I could, I kept records. Your world is falling apart, but “YOU” should do this as well. Let others guide “YOU” and help “YOU” as much as “YOU” need, but remember it is your life. Be in control as much as “YOU” can. Know what is and is not happening to “YOU”. Understand the side effects. Be ready, be aware. Live your life and this illness with your eyes wide open, know what your fate is. Learn to accept this as painful as it might be. There is pain in life, there is pain in ms, there is pain in the human condition but there can be JOY. Incredible JOY. find yours and make your life even though challenging, one of JOY.
Royce (Your ms writer)
Do your tests, get your answers, find YOUR JOY it is out there, go find it
