Thinking of you Friends!

[nicoly3467]

How are you all doing lately? That’s a big question I know, but love to hear from you if you wish to share.

Nikki

[RoseySawyer]

Today has been great!!! I got alot of things done and now waiting for my eyes to catch up with my body to shut down for tonight. 😊 How are you? ❤🌷

[nicoly3467 in reply to RoseySawyer]

Great to hear! Have a good sleep.

I’m doing ok just adjusting to my new medicine Tecfidera (oral pill) I started in Dec. I reached the maintenance dose four days ago, but my body is going through an adjustment. I have more nerve pain and fatigue right now, but I think it’ll take some time to adjust. I’ve had more stamina since I started though so happy about that!

[rjoneslaw]

I’m doing well I’m past my relapse. I am working on getting back on track to gain more strength on my right side.

I have put in a call to correct the assignment of the wrong dr at the pain clinic

I am also coming off my tiramisu high slowly normally I would eat 3 plates a day with 2 slices on it now I’m down to only 2 plates. My addiction won’t end til the store stops selling it. My addiction starts after thanksgiving and end at the end of January

[nicoly3467 in reply to rjoneslaw]

I’m happy to hear you have recovered from a relapse. Relapses are very hard. I get frequent ones and hope not frequent anymore with my new medicine I started in Dec.

Best wishes with cutting down the Tiramisu desserts. Keep up the good work-every little bit of improvement really helps!

[greaterexp]

How kind of you to ask! I’m doing well and hope you are, too.

[nicoly3467 in reply to greaterexp]

I’m happy to hear you are doing well.

I’m doing ok just adjusting to new medicine (Tecfidera) I started last month in Dec. Now I started maintenance dose 4 days ago, and have had more nerve pain and fatigue but hoping this will subside soon when my body adjusts.

Do you mind me asking if you take an MS Tx?

Nikki

[greaterexp in reply to nicoly3467]

Copaxone 40mg three times a week. No side effects as yet!

I’m glad you able to switch and hope that your adjustment eases up.

[nicoly3467 in reply to greaterexp]

Happy to hear this medicine works for you so well. Copaxone was my first medicine after Dx over 5 years ago and at that time the daily injection was only avail. Must be real nice now that it’s only 3x/week!

Doing it daily-I ran out of spots on my body to inject...Lol.

[Mjcarbo in reply to greaterexp]

Are you able to use the generic version of Copaxone? Glatiramer?

Q

[greaterexp in reply to Mjcarbo]

I didn't try it. Because of insurance and the copay assistance through the pharmaceutical company, I've stayed with the brand name. The generic may be fine, but I would have a copay.

[kdali]

Lots of MS symptoms coming and going, but last week was also busy for me on top of another cold. Today, I’m just enjoying my family and looking at how lovely the snow is 😍Glad to hear about your medication adventure, and I hope the nerve pain calms down for you soon.

[Iona60]

I'm still fighting the lingering cough from the viral respiratory infection that I've had for two weeks. Hope the new meds after a game changer for you.

[Jesmcd2 CommunityAmbassador]

Aww thanks for thinking of everyone nicoly3467 ☺️ How are you? 🤗💕

J🌌

[Jazzihorsecat]

💐💗❤Yeah, thanks for your concern, I am fighting my pains in my l. Arm & L.hip right now, I ran out of my CBD dark choc-bars, which were helping, but I'll get some more 2morrow, either the gummies or the oil, & Trying not to be over nerve tacked @my C.G./ hub, I think we're getting sick of eachother being 2gether 24/7 & 365 whew!! ((Wipes forhead))! So, need a break away from eachother...oy! But still fighting daily MS, & cleansing candida overgrowth slowly! Was PPMS, reversed down to RRMS, so gotta watch out for any signs of Relapse... & doing the Candida Cure diet, Oh, I am out of veggies🍠🍆🍅🍄, shucks, gotta go to $tore 2morrow!👍💐😄😀But glad ur adjusting to techfidera, it's a good anti-fungal I've heard👂🌼🌞🌷🌸💐Love Ya sis!❤💗---Jazzy🌹💜

[SjWilcox]

I hope Tecfedara works for you! It made me itch from the inside. I didn’t even finish the first bottle.

[BigMar7]

So kind of you to ask how everybody on the site is doing!i am doing ok, my left jaw is hurting. Over Christmas I was not able to take my pain meds exactly at the times I usually take them and it has made a difference! But is hasn’t stopped me from eating. I will see my neurologist next month 😀❤️