Coping with yoir​ RRms depends upon your... - My MSAA Community

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Coping with yoir​ RRms depends upon your attitude.

RoyceNewton profile image
6 Replies

Read it again, Now just stop and think for a second, and ask yourself am I really really doing anything or even everything I can to make my very long life with a chronic incurable potentially disabling disease, bearable, liveable, successful? Or am I listening to the naysayers and the doomsday people and sitting in a dark corner feeling sorry for myself and crying?

Be honest with yourself, we do not have to hear about your fears. We "ALL" have them to some extent. I cried for a long while until my rock helped me pull myself together. Trust me it was not pretty at first. "BUT" my attitude started to change my internal fire stated to smoulder a little hotter and soon enough flames started burning. It did not happen in one day, one week or even I think one "YEAR"

It took time. I was 29, and I will likely, baring any stupid accidents, live into my 70's So I like "YOU" have time. Do some things quickly, your protective underwear, Your Disease Modifying Therapy (DMT) others "YOU" can be aware of and slowly formulate your individual plan. This is not a quick fix, two aspirins and a lie-down problem. This is kind of sort of rather big. "YOU" are going to have to teach yourself to be resilient How to bend with unexpected events, of which there are many, learn new skills and develop that "CAN do WILL do, DID IT" attitude and belief in yourself. Accept that not everything will work the first or even the ninth time. Forgive yourself your stumbles and missteps, this in 2018 is a "DOABLE" condition. Relapsing-Remitting ms(RRms) can "NOT" be beaten, but it can be managed and is a very livable condition.

It just requires "YOU" and nobody else to make a decision that no matter what obstacles it throws at "YOU". that "YOU" can and will find a way to persevere, and "LIVE YOUR BEST LONG MS LIFE. WELL"

The first idea, Use and Wear Protective underwear. The mental damage soiling yourself in public is not worth the risk. Like American Express, I never leave home without mine and have a spare one in my bag. At home who cares I know where the bathroom is.

So chin up, ease up on the crying and start making a plan of action. There are many ups and downs with RRms, but some planning and thinking about what "YOU" are doing should stop "YOU" from falling over a cliff of no return.

Royce

Start looking after yourself, this is a lifelong incurable illness, but it is VERY doable once "YOU" decide to do it.

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6 Replies
Juliew19673 profile image
Juliew19673

Great advice Royce, thank you!!

RoyceNewton profile image
RoyceNewton in reply toJuliew19673

no problem thankyou for saying so

Royce, coping with life in general and all forms of MS depends upon your attitude. Is life choice to go through life smiling instead of frowning. It is a life choice to look through a lens that makes you think that your glass is always half-full instead of being half empty. So I both agree and disagree with your assessment because I believe your attitude affects everything you do in your life. Including your MS, all stages, and your life in general. Thinking that your attitude affects only relapsing and remitting MS really limits and down plays the importance and the scope that your attitude has on your entire life. Fancy.

RoyceNewton profile image
RoyceNewton in reply to

obviously, I need to make myself clearer, thank you

kdali profile image
kdali in reply to

I agree with attitude is everything, and that it’s a choice. It’s the people and things you attract or deflect from your life and it can dictate the level or speed of recovery from ill times. It’s the background noise in our heads and we are the only ones who get to choose what song is playing.

RoyceNewton profile image
RoyceNewton in reply tokdali

very well said

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