Good morning my beloved ms family, A quick thought for "YOU" as I want to go back to bed.
"YOU" like me have Relapsing-Remitting ms (RRms) do "YOU" choose to surrender everything about "YOU" forever to some incurable, sneaky disease OR do "YOU" choose to do your best as much as "YOU" can and live happily? Just a question to ask yourself.
Royce (your ms writer and Brother)
just a question
Written by
RoyceNewton
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Yesterday was a hard day in my mind. My mind said "You are a sick girl. very very sick and you're going to get sicker." It was an emotionally horrendous day. Self destruct sounded reasonable. This morning, thankfully, my mind is on vacation. My spirit says: "Not today. Today you are going to stay connected to your Source."
Such "philosophical piques" today Royce! But, as I get "older," I feel the MonSter sooo much more daily (even after "medical retirement at age 45" but I worked 20 years after my dx at age 25.
Way back then (1994) Betaseron was dx via lottery in the US, and it was "diagnose and adios" back then as my neuro told me that young women tend to do very well with MS, etc. I was told "positive things" and that I didn't have to see him regularly, etc.
WTF? Fortunately, things have changed for the better! Start tx early (as Royce reminds us all) but 27 years since dx this May and 24 years after starting Avonex this September. 15 years since I completed my masters degree? The faster I ran, and the more I achieved, could I outpace this MonSter?
Sheesh. . . ONLY EIGHT YEARS since starting medical retirement presently? Damn it. . .why do I feel so different presently? MRI's stable 15+ years (Avonex has NOT failed me). BUT PROGRESSIVE DISEASES PROGRESS! And, Age? Menopause? Pandemic? ?
No, I think I agree on all of it, we change as we get older, I guess that is what life is. Get older look back and forward and ask more unanswerable questions, I know I do.
hi DM0329 I get that we age but do we have to agree to age badly. When someone thinks "it goes downhill from here" wherever 'here' is, yes but i really don't want to surrender like that. I'm not getting younger but i am doing everything i can to age slowly. The pandemic has not been my friend healthwise. I have definite deterioration but...I don't know. Just don't have to like it. thanks for letting me rant.
thanks for permission my friend. Not having hasn't stopped me yet. I also grant you permission to rant, rave, have at it. We all want the same thing, right? A safe space to express ourselves.
you are the marcher for all of us to go or if need to scream or what ever to keep going ...love the reads of yours...stay strong and keep giving us some of your wisdom as much as you can ...don't want to wear you down to try to keep up with all of us and the bs that MS gives all of us in so many ways but sure enjoy your wisdom and the great ways to look at it ....love and much happiness...
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