Unnumbered post a question of 2 choice... - My MSAA Community

My MSAA Community

8,963 members20,684 posts

Unnumbered post a question of 2 choices 13 March 2021

RoyceNewton profile image
11 Replies

Good morning my beloved ms family, A quick thought for "YOU" as I want to go back to bed.

"YOU" like me have Relapsing-Remitting ms (RRms) do "YOU" choose to surrender everything about "YOU" forever to some incurable, sneaky disease OR do "YOU" choose to do your best as much as "YOU" can and live happily? Just a question to ask yourself.

Royce (your ms writer and Brother)

just a question

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
11 Replies
Sandydemop profile image
Sandydemop

Yesterday was a hard day in my mind. My mind said "You are a sick girl. very very sick and you're going to get sicker." It was an emotionally horrendous day. Self destruct sounded reasonable. This morning, thankfully, my mind is on vacation. My spirit says: "Not today. Today you are going to stay connected to your Source."

RoyceNewton profile image
RoyceNewton in reply to Sandydemop

very good answer and a great way of looking at it, have a nice day

Sandydemop profile image
Sandydemop in reply to RoyceNewton

thanks. same for you.

DM0329 profile image
DM0329

Such "philosophical piques" today Royce! :) But, as I get "older," I feel the MonSter sooo much more daily (even after "medical retirement at age 45" but I worked 20 years after my dx at age 25.

Way back then (1994) Betaseron was dx via lottery in the US, and it was "diagnose and adios" back then as my neuro told me that young women tend to do very well with MS, etc. I was told "positive things" and that I didn't have to see him regularly, etc.

WTF? Fortunately, things have changed for the better! Start tx early (as Royce reminds us all) but 27 years since dx this May and 24 years after starting Avonex this September. 15 years since I completed my masters degree? The faster I ran, and the more I achieved, could I outpace this MonSter?

Sheesh. . . ONLY EIGHT YEARS since starting medical retirement presently? Damn it. . .why do I feel so different presently? MRI's stable 15+ years (Avonex has NOT failed me). BUT PROGRESSIVE DISEASES PROGRESS! And, Age? Menopause? Pandemic? ?

Sorry, I'm in a "philosophical quagmire" today!

😱

RoyceNewton profile image
RoyceNewton in reply to DM0329

No, I think I agree on all of it, we change as we get older, I guess that is what life is. Get older look back and forward and ask more unanswerable questions, I know I do.

Sandydemop profile image
Sandydemop in reply to DM0329

hi DM0329 I get that we age but do we have to agree to age badly. When someone thinks "it goes downhill from here" wherever 'here' is, yes but i really don't want to surrender like that. I'm not getting younger but i am doing everything i can to age slowly. The pandemic has not been my friend healthwise. I have definite deterioration but...I don't know. Just don't have to like it. thanks for letting me rant.

RoyceNewton profile image
RoyceNewton in reply to Sandydemop

always free to, never feel that "YOU" can not, rant or disagree with me.

Sandydemop profile image
Sandydemop in reply to RoyceNewton

thanks for permission my friend. Not having hasn't stopped me yet. I also grant you permission to rant, rave, have at it. We all want the same thing, right? A safe space to express ourselves.

11tails profile image
11tails

I chose to march on and never surrender. I might not be able to do what I once could but I will do what I can. March on my ms brother.

RoyceNewton profile image
RoyceNewton in reply to 11tails

always will my ms Sister I always will

twooldcrows profile image
twooldcrows

you are the marcher for all of us to go or if need to scream or what ever to keep going ...love the reads of yours...stay strong and keep giving us some of your wisdom as much as you can ...don't want to wear you down to try to keep up with all of us and the bs that MS gives all of us in so many ways but sure enjoy your wisdom and the great ways to look at it ....love and much happiness...

You may also like...

Unnumbered post Relax calm down 13 Mar 2021 2

will be okay. \\"YOU\\" will be okay. Royce (your ms writer and brother) believe in your own...

Unnumbered post Just a silly question 19 Ocvt 2020 2

other ethnicities differently. Royce (your ms writer and brother) Just curious

Unnumbered post Be well 24 Jan 2021

live with this disease. \\"YOU\\" can live many years. \\"YOU\\" can live many years and die at...

Unnumbered post Curiosity reigns supreme 16 Apr 2021

How many of \\"YOU\\" are gluten-sensitive? Just curious. Royce (your ms writer and Brother)...

Unnumbered post 2nd shot 1 Mar 2021

As \\"YOU\\" can get your injection, I did it significantly before and after the needle. Royce...