msERS, good morning. As YOU sit there in your misery, anger, or any other emotion, my suggestion is to stop asking yourself WHY me and its various variations on your current medical condition. I would very politely suggest to YOU that the more constructive question is HOW.
HOW, do I live with this?
HOW, do I control this?
HOW, do I cure this? NOBODY CAN STOP LOOKING. That only causes real emotional pain and drains your wallet.
HOW, do I continue living a productive long and happy life?
HOW?, You can make your own questions but YOU do see my point don't YOU.
WHY is very easy and I will give YOU the answer. I have found easiest to cope with. BECAUSE just plain simple BECAUSE. This is a human condition, YOU, my friend are human, so your answer is BECAUSE, This never takes away from YOU LEARNING about your ms, but it eases maybe a little emotional pain and anguish and frustration looking for an answer as to WHY me.
This condition takes away your energy, your will your strength. Do YOU think the best use of what little energy YOU have is to waste it on negativity and essentially pointless questioning? After 20 years my thought is NO. A much better use of my energy would be to exercise, to learn everything I can, about diet, exercise techniques, disability aids, meditation and things like that. YOU understand, things that will help me, make my mslife easier.
As YOU are trying to come to terms with your new found companion, let me make one or two suggestions to YOU. ms is the illness it is part of my life. Dreadfully inconvenient but there none the less. I am very much aware of it, especially at 3 am when it is doing everything that it can to make me take more Oxycontin, but it does not rule me. Therefore it is small letters ms, YOU are important to me. Hence capital YOU. Very silly I understand, but a coping mechanism. What is important to me gets capitals, YOU my joint DOG, the LOVE OF MY LIFE. ms, well yeah whatever. A very simple coping mechanism. It works for me, maybe it can help YOU as well.
Do YOU see what I am saying, do YOU hear my voice can YOU UNDERSTAND? LEARN THINGS, really odd things. Give your brain work to do. Make new pathways, as ms eats YOU. Rebuild with new pathways. YOU can no longer run, then walk in a heel to toe style, anything to keep your brain working. Learn about Neuroplasticity. What YOU say, google it, LEARN. Can YOU speak French or Spanish? Might be good fun to try for a week or two. YOU are just tired all the time, I understand. Why do YOU not start teaching your child some things, learn together, be a little creative with your life. Make it a life well lived, write your own glorious memorial.
In the end, we ALL lose, everybody. YOU like me will not get a statue in the park, but YOU will make memories for your family. Make those the best memories for them that YOU possibly can.
Just because YOU are disabled does not ever mean that YOU are useless, or any other negative word that YOU can think of. Look in that mirror and just say " I CAN,I WILL, I DO, and then I DID. YES, YOU DID,, took a while had to change it a few times but YES YOU DID. Remember to be like bamboo, bend when YOU need to but bounce back and stand TALL.
Another silly thing I once tried was brushing my teeth with the other hand. Frustrating and very messy but it gave my brain something new to learn. Very cheap as well, I was going to do it anyway. Always keep looking for that different way to do things,
Royce
NOT any type of doctor or therapist. Just me giving YOU a suggestion or two
How to Build a Self-management Toolbox to Live Better with MS
