Just to be a complete nag today. - My MSAA Community

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Just to be a complete nag today.

RoyceNewton profile image
10 Replies

Most times I need to be told something many many times before I listen & more before I pay attention so I will say to you gain.

ms is here it in your life now. Life has changed, you can not fight it, after awhile u are going to have to accept it & move FORWARD. There will be bumps hiccups and u-turns, cry often but never give up. Others have done this therefore so can YOU. Nobody has skills that YOUudo nor have, nobody is better than YOU. Ask questions, LISTEN to the answers & let yourself be a better YOU.

Exercise, read or listen to a book, journal, get to know yourself. YOU & your ms change. Accept this, your world has not ended, merely taken a TURN. Embrace the turn do not fight it because my dear one u will LOSE and LOSE PAINFULLY.

Regardless do not despair, we are doing this, we found away so WILL YOU, BECAUSE YOU ARE YOU andYOU can be the best YOU that U HAVE EVER BEEN. Allow yourself to succeed, give yourself the tools and make the CHOICE, I CAN I WILL I DO I DID.

First step Disease Modifying Therapy.

Second step, journal

Third step is up to you, what are YOU going to do with your life?

Everyday in someway I WILL be BETTER and BETTER.


10 Replies
Kenu profile image

Great read RoyceNewton 👍🙏🐾 Ken

RoyceNewton profile image
RoyceNewton in reply to Kenu

Thank you

CalfeeChick profile image

AWE darn it. I had a whole response typed up and somehow deleted it. To make a long story short, I have also shared all of those feelings. Even before I had a diagnosis, I prayed with my pastor, who is also a good friend and director of our Christian Bicycling Group. We prayed as I sobbed, and he helped me to just "Give it to God" which I did and have moved forward with my life as best as I can. No, I can't ride my bike, but I can dust "her" off and pump up the tires. I once again can drive and go as a support driver on some of my favorite rides. I can do lots of things, I discovered I love thrift store shopping and have made many bargains, also have made a library of my favorite authors so when the time comes that I can't get around as well, I've a 300 book library of my authors and a bunch of puzzles. I have a little garden started. I can still cook well. I like to cook in the morning when my energy and focus are better. Yes, life has changed for sure, but we adjust and just keep doing the best we can. If life throws lemons at us, make lemonade!

RoyceNewton profile image
RoyceNewton in reply to CalfeeChick

Just a matter of getting to know our new selves, carrying on and doing well, it's just different to what we expected.

CalfeeChick profile image
CalfeeChickCommunityAmbassador in reply to RoyceNewton

Oh, I sure agree.. Went from healthy, super active to feeling like a couch potato.. Just adjusting, adapting to our new world. Thank you MSAA & Health Unlocked. This forum has been outstanding help to me and so many others!

jackiesj profile image
jackiesj in reply to CalfeeChick

Yip and on some crummy days its OK to feel crummy, to live it to be just don't stay right?Today i thought i was getting exercise, sweat was pouring....the airconditioning gave out...it was almost 80 inside the house.....duhhhhhh...sheesh Jackie..

Iona60 profile image
Iona60 in reply to jackiesj

Wow, you sweat? I don't anymore. MS? Meds?

RoyceNewton profile image
RoyceNewton in reply to CalfeeChick

hmm not sure I mind being a couch sloth sometimes

Texandyroe profile image

Well said! And so true. Just yesterday, I got my eighty- somethingth infusion of Tysabri at the MS infusion center. There were 8 of us in the room - all getting some form of treatment for MS. There was a newly diagnosed patient, getting her 2nd infusion. While most of us were either napping, reading, or quietly chatting with the person in the chair next to us, this young lady was constantly whining about this and that. Finally, she asked, in a very exasperated tone of voice, I just want to know how much more of this I have to get before I am normal again?! I'd had enough of her whining, and leaned forward so I could see her at the end of the row of chairs and said, my dear, this IS your new normal and the sooner you accept that, the better. That put an end to her whining, (but not the loud sighs) and the infusion nurse gave me a hug and whispered his thanks as I was leaving the center.

Yooper profile image

🙏 Well said! God's peace and strength to all of us in our MS battles! 🙏

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